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Use of the national...
Use of the national quality registry to monitor health-related quality of life of children with type 1 diabetes : A pilot study
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- Petersson, Christina, 1975- (author)
- Jönköping University,HHJ. CHILD,Jonköping University, Sweden
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- Huus, Karina (author)
- Linköpings universitet,Jönköping University,HHJ, Avdelningen för omvårdnad,HHJ. CHILD,Avdelningen för kliniska vetenskaper,Medicinska fakulteten
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- Samuelsson, Ulf (author)
- Linköpings universitet,Avdelningen för kliniska vetenskaper,Medicinska fakulteten,Region Östergötland, Barn- och ungdomskliniken i Linköping
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- Hanberger, Lena (author)
- Linköpings universitet,Avdelningen för omvårdnad,Medicinska fakulteten
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- Akesson, Karin (author)
- Ryhov County Hospital,Ryhov Hospital Jonköping, Sweden
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Jönköping University HHJ CHILD (creator_code:org_t)
- 2013-08-23
- 2015
- English.
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In: Journal of Child Health Care. - : Sage Publications. - 1367-4935 .- 1741-2889. ; 19:1, s. 30-42
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Abstract
Subject headings
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- The management of diabetes is complicated, as treatment affects the everyday life of both children and their families. To enable optimal care for children with type 1 diabetes, it is important to highlight health-related quality of life (HrQoL) as well as medical outcomes to detect psychological problems that otherwise could be missed. The aim was to study HrQoL in children and adolescents with type 1 diabetes dependent on gender, age and co-morbidity and to study the consistency between children’s self-reporting and parents’ proxy reporting. The cross-sectional data were collected using the questionnaire DISABKIDS Chronic Generic Measure and the DISABKIDS diabetes module. Parents in the proxy report perceived their children’s HrQoL to be lower than children themselves. Boys reported their HrQoL to be better than girls. Results show that living with an additional disease has an impact on the HrQoL, which is an important factor to consider in the quality registry. Assessing HrQoL on a routine basis may facilitate detection and discussion of HrQoL-related questions in the national quality registry.
Subject headings
- MEDICIN OCH HÄLSOVETENSKAP -- Klinisk medicin (hsv//swe)
- MEDICAL AND HEALTH SCIENCES -- Clinical Medicine (hsv//eng)
Keyword
- Assessment
- diabetes
- paediatric
- statistics
Publication and Content Type
- ref (subject category)
- art (subject category)
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