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Impact of type 1 diabetes on health-related quality of life among 8–18-year-old children

Petersson, Christina (author)
Jönköping University,HHJ. CHILD,Jonkoping Univ, Sweden
Huus, Karina (author)
Jönköping University,HHJ, Avdelningen för omvårdnad,HHJ. CHILD,Jonkoping Univ, Sweden; CHILD Res Grp, Sweden
Enskär, Karin (author)
Jönköping University,HHJ, Avdelningen för omvårdnad,HHJ. CHILD,Jonkoping Univ, Sweden; CHILD Res Grp, Sweden
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Hanberger, Lena (author)
Linköpings universitet,Avdelningen för omvårdnad och reproduktiv hälsa,Medicinska fakulteten,Region Östergötland, H.K.H. Kronprinsessan Victorias barn- och ungdomssjukhus
Samulesson, Ulf (author)
Linköpings universitet,Institutionen för hälsa, medicin och vård,Medicinska fakulteten
Åkesson, Karin (author)
Jönköping University,The Jönköping Academy for Improvement of Health and Welfare,Futurum, Academy for Health and Care, Sweden,Jonkoping Univ, Sweden; Futurum, Sweden
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Jönköping University HHJ CHILD (creator_code:org_t)
2016-07
2016
English.
In: Comprehensive Child and Adolescent Nursing. - : Taylor & Francis. - 2469-4207 .- 2469-4193. ; 39:4, s. 245-255
  • Journal article (peer-reviewed)
Abstract Subject headings
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  • Measuring the health-related quality of life (HRQOL) is one way to understand an individual’s perspective on health, and, more specifically, how type 1 diabetes (T1D) affects a child’s everyday life. Early detection of poor HRQOL is considered a crucial factor for identifying children who are at risk of psychosocial problems. The aim of this study was to describe the differences in the HRQOL of children with T1D according to age, gender, and metabolic control (HbA1c). Cross-sectional data were collected from children with T1D using the DISABKIDS Chronic Generic Measure-37 (DCGM-37) and the diabetes specific module (DM-10). Non-parametric tests were used to investigate differences. There were differences between girls and boys, and girls reported lower HRQOL than boys (HRQOL total score: mean 74 and 67 respectively; p = .005). Adolescents described more worries and fears about the future compared with younger children. Children with poor metabolic control reported a lower HRQOL than those with better metabolic control (HRQOL total score:mean 68 and 76 respectively; p = .006), but the social dimensions were not affected. The findings of the present study elucidate the importance for paediatric nurses to explore potential problems in children with T1D and use this knowledge in clinical practice. Assessment of the HRQOL can provide the patient’s perspective on the quality of diabetes care. The HRQOL is correlated with HbA1c, gender, and age, and the HRQOL as well as HbA1c levels should be regularly assessed to establish a comprehensive care for children with T1D.

Subject headings

MEDICIN OCH HÄLSOVETENSKAP  -- Hälsovetenskap -- Omvårdnad (hsv//swe)
MEDICAL AND HEALTH SCIENCES  -- Health Sciences -- Nursing (hsv//eng)
MEDICIN OCH HÄLSOVETENSKAP  -- Klinisk medicin -- Pediatrik (hsv//swe)
MEDICAL AND HEALTH SCIENCES  -- Clinical Medicine -- Pediatrics (hsv//eng)

Keyword

Assessment
Chronic condition
Metabolic control
Quality of life

Publication and Content Type

ref (subject category)
art (subject category)

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