Development of the International Spinal Cord Injury/Dysfunction Education Basic Data Set

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Development of the International Spinal Cord Injury/Dysfunction Education Basic Data Set

Carney, J. (author): Rehabilitation Department, Kennedy Krieger Rehabilitation Institute, Baltimore, United States

Fisher, R. (author): Baltimore, United States

Augutis, M. (author): Karolinska Institutet,Department of Neurobiology, Care Sciences and Society, Karolinska Institute, Stockholm, Sweden

Charlifue, S. (author): Research Department, Craig Hospital, CO USA, Englewood, United States,Rehabilitation Department, Kennedy Krieger Rehabilitation Institute, Baltimore, United States

Biering-Sørensen, F. (author): Neuroscience Centre, Rigshospitalet, University of Copenhagen, Department of Spinal Cord Injuries, Copenhagen, Denmark

Höfers, W. (author): Physiotherapy Department, Sunnaas Hospital, Norway

Hwang, M. (author): Research Department, Shriners Hospitals for Children, Chicago, Mexico

Wayne New, P. (author): Epworth-Monash Rehabilitation Unit, Department of Epidemilogy and Preventitive Medicine, School of Public Health and Preventative Medicine, Monash University, Melbourne, Australia

Post, M. (author): Center of Excellence for Rehabilitation Medicine, Brain Center Rudolf Magnus, University Utrecht and De Hoogstraat Rehabilitation, Utrecht, Netherlands

Sadowsky, C. (author): Rehabilitation Department, Kennedy Krieger Rehabilitation Institute, Baltimore, United States

Vogel, L. (author): Research Department, Shriners Hospitals for Children, Chicago, Mexico

Augustine, Lilly, 1979- (author): Jönköping University,HLK, CHILD,HHJ, Avdelningen för socialt arbete,HHJ. CHILD

Dent, K. (author): Department of Occupational Therapy, Center for Outcomes and Measurement, Jefferson College of Rehabilitation Sciences, Jefferson (Philadelphia University+Thomas Jefferson University), Philadelphia, PA USA

Mulcahey, M. J. (author): Department of Occupational Therapy, Center for Outcomes and Measurement, Jefferson College of Rehabilitation Sciences, Jefferson (Philadelphia University+Thomas Jefferson University), Philadelphia, PA USA

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(creator_code:org_t)

2019-10-21
2019
English.
In: Spinal cord series and cases. - : Nature Publishing Group. - 2058-6124. ; 5

Related links:: https://doi.org/10.1...; show more...; https://www.nature.c...; https://urn.kb.se/re...; https://doi.org/10.1...; http://kipublication...; show less...

Journal article (peer-reviewed)

Abstract Subject headings

Study design:Consensus among international experts.Objectives: The objective of this project was to develop the International Spinal Cord Injury/Dysfunction (SCI/D) Education Basic Data Set. Setting: International expert working group.Methods: The published guidelines for developing the International SCI Basic Data Sets were used to develop the International SCI/D Education Basic Data Set. Existing measures and literature on education and disability were reviewed to develop a preliminary draft of the basic education data set through iterative modifications via biweekly conference calls and email communication. The draft was disseminated to the larger International Workgroup for Development of Pediatric SCI/D Basic Data Sets and then to the members of the International Spinal Cord Society (ISCoS), American Spinal Injury Association (ASIA), and relevant expert groups and interested individuals for comments. All feedback received was taken into consideration before the final data set was approved by ISCoS and ASIA.Results: The finalized version of the International SCI/D Education Basic Data Set Version 1.0 contains 16 items divided into three domains: school setting/therapeutic services, school participation/academic success, and barriers/attitudes. Most of the variables have been adapted from established measures. This data set is intended for children and youth up to and including high school, but not for emerging adults in higher education or postsecondary vocational training or trade schools.Conclusion: The International SCI/D Education Basic Data Set has been developed for collection of a minimal amount of highly relevant information on the education experience in children and youth with SCI/D. Further validation work is needed.Sponsorship: This project was funded by the Rick Hansen Institute, Research Award #G2015-27 (Mulcahey, PI).

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By the author/editor: Carney, J.; Fisher, R.; Augutis, M.; Charlifue, S.; Biering-Sørensen ...; Höfers, W.; show more...; Hwang, M.; Wayne New, P.; Post, M.; Sadowsky, C.; Vogel, L.; Augustine, Lilly ...; Dent, K.; Mulcahey, M. J.; show less...

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By the university: Jönköping University; Karolinska Institutet

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Development of the International Spinal Cord Injury/Dysfunction Education Basic Data Set

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