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Implantable Cardiov...
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Lévesque, ValérieUniversité de Montréal, Montreal Heart Institute, Montreal, Canada (CAN)
(author)
Implantable Cardioverter-Defibrillators and Patient-Reported Outcomes in Adults with Congenital Heart Disease : an International Study
- Article/chapterEnglish2020
Publisher, publication year, extent ...
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Elsevier BV,2020
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printrdacarrier
Numbers
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LIBRIS-ID:oai:DiVA.org:hv-14752
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https://urn.kb.se/resolve?urn=urn:nbn:se:hv:diva-14752URI
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https://doi.org/10.1016/j.hrthm.2019.11.026DOI
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https://urn.kb.se/resolve?urn=urn:nbn:se:umu:diva-171969URI
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https://gup.ub.gu.se/publication/286419URI
Supplementary language notes
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Language:English
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Summary in:English
Part of subdatabase
Classification
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Subject category:ref swepub-contenttype
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Subject category:art swepub-publicationtype
Notes
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Funders:Research Fund-KU Leuven (Leuven, Belgium) [OT/11/033];Cardiac Children's Foundation (Taiwan) [CCF2013_02]
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Published on behalf of the APPROACH-IS Consortium and the International Society for Adult Congenital Heart Disease (ISACHD)
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BACKGROUND: Implantable cardioverter-defibrillators (ICDs) are increasingly used to prevent sudden deaths in the growing population of adults with congenital heart disease (CHD). Yet, little is known about their impact on patient-reported outcomes (PROs).OBJECTIVE: We assessed and compared PROs in adults with CHD with and without ICDs.METHODS: A propensity-based matching weight analysis was conducted to evaluate PROs in an international cross-sectional study of adults with CHD from 15 countries across 5 continents.RESULTS: A total of 3,188 patients were included: 107 with ICDs and 3,081 weight-matched controls without ICDs. ICD recipients averaged 40.1±12.4 years of age, with >95% having moderate or complex CHD. Defibrillators were implanted for primary and secondary prevention in 38.3% and 61.7%, respectively. Perceived health status, psychological distress, sense of coherence, and health behaviours did not differ significantly in patients with and without ICDs. However, ICD recipients had a more threatening view of their illness (relative % difference 8.56, P=0.011). Those with secondary compared to primary prevention indications had a significantly lower quality of life score (linear analogue scale 72.0±23.1 versus 79.2±13.0, P=0.047). Marked geographic variations were observed. Overall sense of well-being, assessed by a summary score that combines various PROs, was significantly lower in ICD recipients (versus controls) from Switzerland, Argentina, Taiwan, and USA.CONCLUSIONS: In an international cohort of adults with CHD, ICDs were associated with a more threatening illness perception, with a lower quality of life in those with secondary compared to primary prevention indications. However, marked geographic variability in PROs was observed.
Subject headings and genre
Added entries (persons, corporate bodies, meetings, titles ...)
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Laplante, LaurenceUniversité de Montréal, Montreal Heart Institute, Montreal, Canada (CAN),Center for Biobehavioral Health, Nationwide Children's Hospital, Columbus, OH, USA (USA)
(author)
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Shohoudi, AzadehUniversité de Montréal, Montreal Heart Institute, Montreal, Canada (CAN)
(author)
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Apers, SilkeKU Leuven Department of Public Health and Primary Care; University of Leuven, Leuven, Belgium (BEL)
(author)
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Kovacs, Adrienne HKnight Cardiovascular Institute, Oregon Health & Science University, Portland, Oregon, USA (USA)
(author)
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Luyckx, KoenKU Leuven - University of Leuven, School Psychology and Child and Adolescent Development,Leuven, Belgium BEL); University of the Free State, UNIBS, Bloemfontein, South Africa (ZAF)
(author)
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Thomet, CorinaUniversity of Bern, Center for Congenital Heart Disease, Department of Cardiology, Inselspital, Bern University Hospital, Bern, Switzerland (CHE)
(author)
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Budts, WernerDivision of Congenital and Structural Cardiology, University Hospitals Leuven, Leuven, Belgium (BEL); KU Leuven - University of Leuven, KU Leuven Department of Cardiovascular Sciences, Leuven, Belgium (BEL).
(author)
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Enomoto, JunkoDepartment of Adult Congenital Heart Disease,Cardiovascular Center, Chiba, Chiba, Japan (JPN)
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Sluman, Maayke ADepartment of Cardiology, Academic Medical Center, Amsterdam, The Netherlands (NLD); Department of Cardiology, Jeroen Bosch Hospital, Hertogenbosch, Amsterdam, the Netherlands (NLD)
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Lu, Chun-WeiDepartment of Pediatrics, National Taiwan University Hospital, Taipei, Taiwan (TWN)
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Jackson, Jamie LCenter for Biobehavioral Health, Nationwide Children's Hospital, Columbus, OH, USA (USA)
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Cook, Stephen CAdult Congenital Heart Disease Center, Helen DeVos Children's Hospital, Grand Rapids, MI, USA (USA)
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Chidambarathanu, ShanthiPediatric Cardiology, Frontier Lifeline Hospital (Dr. K. M. Cherian Heart Foundation), Chennai, India (IND)
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Alday, LuisMonash University,Monash Medical Centre, Melbourne, Australia (AUS)
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Eriksen, KatrineDepartment of Cardiology, Oslo University Hospital–Rikshospitalet, Oslo, Norway (NOR)
(author)
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Dellborg, Mikael,1954Gothenburg University,Göteborgs universitet,Institutionen för medicin, avdelningen för molekylär och klinisk medicin,Institute of Medicine, Department of Molecular and Clinical Medicine(Swepub:gu)xdelmi
(author)
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Berghammer, Malin,1970-Gothenburg University,Göteborgs universitet,Högskolan Väst,Avdelningen för omvårdnad - avancerad nivå,University of Gothenburg, Centre for Person-Centred Care (GPCC), Sweden,Centrum för personcentrerad vård vid Göteborgs universitet (GPCC),University of Gothenburg Centre for person-centred care (GPCC)(Swepub:gu)xbmalq
(author)
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Johansson, BengtUmeå universitet,Kardiologi,Umeå University, Department of Public Health and Clinical Medicine, Umeå, Sweden(Swepub:umu)bejo0003
(author)
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Mackie, Andrew SUniversity of Alberta, Division of Cardiology, Stollery Children's Hospital, Edmonton, Canada (CAN)
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Menahem, SamuelMonash University, Monash Heart, Monash Medical Centre, Melbourne, Australia (AUS)
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Caruana, MaryanneDepartment of Cardiology, Mater Dei Hospital, Birkirkara Bypass, Malta (MLT)
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Veldtman, GruschenAdult Congenital Heart Disease Center, Cincinnati Children's Hospital Medical Center, Cincinnati, OH, USA (USA)
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Soufi, AlexandraDepartment of Congenital Heart Disease, Louis Pradel Hospital, Hospices civils de Lyon, Lyon, France (FRA)
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Fernandes, Susan MDepartment of Pediatrics and Medicine, Palo Alto, California USA (USA)
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White, Kamila SWashington University, Adult Congenital Heart Disease Center, USA (USA); University of Missouri, Barnes Jewish Heart & Vascular Center, Saint Louis, Missour USA (USA)
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Callus, EdwardClinical Psychology Service, IRCCS Policlinico San Donato, Milan, Italy (ITA); Università degli Studi di Milano, Department of Biomedical Sciences for Health, Milan, Italy (ITA)
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Kutty, ShelbyUniversity of Nebraska Medical Center, Adult Congenital Heart Disease Center, Children's Hospital and Medical Center, Omaha, NE, USA (USA)
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Brouillette, JudithUniversité de Montréal, Montreal Heart Institute, Montreal, Canada (CAN)
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Casteigt, BenjaminUniversité de Montréal, Montreal Heart Institute, Montreal, Canada (CAN)
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Moons, Philip,1968Gothenburg University,Göteborgs universitet,Centrum för personcentrerad vård vid Göteborgs universitet (GPCC),Institutionen för vårdvetenskap och hälsa,University of Gothenburg Centre for person-centred care (GPCC),Institute of Health and Care Sciences(Swepub:gu)xmooph
(author)
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Khairy, PaulUniversité de Montréal, Montreal Heart Institute, Montreal, Canada (CAN)
(author)
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Université de Montréal, Montreal Heart Institute, Montreal, Canada (CAN)Center for Biobehavioral Health, Nationwide Children's Hospital, Columbus, OH, USA (USA)
(creator_code:org_t)
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In:Heart Rhythm: Elsevier BV17:5, s. 768-7761547-52711556-3871
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Lévesque, Valéri ...
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Laplante, Lauren ...
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Shohoudi, Azadeh
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Apers, Silke
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Kovacs, Adrienne ...
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Luyckx, Koen
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Thomet, Corina
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Budts, Werner
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Enomoto, Junko
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Sluman, Maayke A
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Lu, Chun-Wei
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Jackson, Jamie L
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Cook, Stephen C
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Chidambarathanu, ...
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Alday, Luis
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Eriksen, Katrine
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Dellborg, Mikael ...
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Berghammer, Mali ...
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Johansson, Bengt
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Mackie, Andrew S
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Menahem, Samuel
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Caruana, Maryann ...
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Veldtman, Grusch ...
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Soufi, Alexandra
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Fernandes, Susan ...
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White, Kamila S
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Callus, Edward
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Kutty, Shelby
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Brouillette, Jud ...
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Casteigt, Benjam ...
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Moons, Philip, 1 ...
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Khairy, Paul
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