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Patient-Nurse Communication about Prognosis and End-of-Life Care
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- Hjelmfors, Lisa (author)
- Linköpings universitet,Hälsa, Aktivitet, Vård (HAV),Medicinska fakulteten,Department of Social and Welfare Studies (ISV), Faculty of Health Sciences, Linköping University, Sweden,University of Groningen, Netherlands
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- van der Wal, Martje H. L. (author)
- Linköpings universitet,Hälsa, Aktivitet, Vård (HAV),Medicinska fakulteten,University of Groningen, Netherlands
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- Friedrichsen, Maria (author)
- Linköpings universitet,Hälsa, Aktivitet, Vård (HAV),Medicinska fakulteten,Region Östergötland, Palliativt kompetenscentrum,Department of Social and Welfare Studies (ISV), Faculty of Health Sciences, Linköping University, Sweden
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- MARY ANN LIEBERT, INC, 2015
- 2015
- English.
- In: Journal of Palliative Medicine. - : MARY ANN LIEBERT, INC. - 1096-6218 .- 1557-7740. ; 18:10, s. 865-871
- Journal article (peer-reviewed)
Abstract
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- Background: Although several studies advise that discussions about prognosis and end-of-life care should be held throughout the whole heart failure (HF) trajectory, data is lacking on the prevalence and practice of such discussions in HF care. Objective: The study objective was to explore how often and why HF nurses in outpatient clinics discuss prognosis and end-of-life care in the context of patient education. Methods: This was a descriptive and comparative study. Participants were HF nurses from Swedish and Dutch HF outpatient clinics. Measurements were taken via a survey for both quantitative and qualitative data. Additional data was collected via open-ended questions and analyzed with content analysis. Results: Two hundred seventy-nine nurses registered 1809 patient conversations using a checklist. Prognosis and end-of-life care were among the least frequently discussed topics, whereas symptoms of HF was discussed most often. Prognosis was discussed with 687 patients (38%), and end-of-life care was discussed with 179 patients (10%). Prognosis and end-of-life care were discussed more frequently in The Netherlands than in Sweden (41% versus 34%, pless than0.001, 13% versus 4%, pless than0.001). The nurses did not always recognize prognosis and end-of-life care discussions as a part of their professional role. Conclusions: Currently, patient-nurse communication about prognosis and end-of-life care does not seem to be routine in patient education in HF clinics, and these discussions could be included more often. The reasons for nurses to discuss these topics were related to clinical routines, the patients situation, and professional responsibilities. To improve future care, communication with patients needs to be further developed.
Subject headings
- SAMHÄLLSVETENSKAP -- Sociologi (hsv//swe)
- SOCIAL SCIENCES -- Sociology (hsv//eng)
- MEDICIN OCH HÄLSOVETENSKAP -- Klinisk medicin (hsv//swe)
- MEDICAL AND HEALTH SCIENCES -- Clinical Medicine (hsv//eng)
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- art (subject category)
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- SOCIAL SCIENCES
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