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LIBRIS Formathandbok  (Information om MARC21)
FältnamnIndikatorerMetadata
00009687naa a2201177 4500
001oai:DiVA.org:liu-134993
003SwePub
008170306s2016 | |||||||||||000 ||eng|
024a https://urn.kb.se/resolve?urn=urn:nbn:se:liu:diva-1349932 URI
024a https://doi.org/10.1016/j.atherosclerosissup.2016.10.0012 DOI
040 a (SwePub)liu
041 a engb eng
042 9 SwePub
072 7a ref2 swepub-contenttype
072 7a art2 swepub-publicationtype
100a Vallejo-Vaz, Antonio J.u Imperial Coll London, England4 aut
2451 0a Pooling and expanding registries of familial hypercholesterolaemia to assess gaps in care and improve disease management and outcomes: Rationale and design of the global EAS Familial Hypercholesterolaemia Studies Collaboration
264 1b ELSEVIER IRELAND LTD,c 2016
338 a electronic2 rdacarrier
500 a Funding Agencies|Pfizer Independent Grant for Learning Change [16157823]; Amgen; MSD; Sanofi-Aventis; Latvian State Research Programme BIOMEDICINE; Czech Republic [MZ CR AZV 15-28277A, 16-29084A]
520 a Background: The potential for global collaborations to better inform public health policy regarding major non-hypercholesterolaemia (FH), a common genetic disorder associated with premature cardiovascular disease, is yet to be reliably ascertained using similar approaches. The European Atherosclerosis Society FH Studies Collaboration (EAS FHSC) is a new initiative of international stakeholders which will help establish a global FH registry to generate large-scale, robust data on the burden of FH worldwide. Methods: The EAS FHSC will maximise the potential exploitation of currently available and future FH data (retrospective and prospective) by bringing together regional/national/international data sources with access to individuals with a clinical and/or genetic diagnosis of heterozygous or homozygous FH. A novel bespoke electronic platform and FH Data Warehouse will be developed to allow secure data sharing, validation, cleaning, pooling, harmonisation and analysis irrespective of the source or format. Standard statistical procedures will allow us to investigate cross-sectional associations, patterns of real-world practice, trends over time, and analyse risk and outcomes (e.g. cardiovascular outcomes, all-cause death), accounting for potential confounders and subgroup effects. Conclusions: The EAS FHSC represents an excellent opportunity to integrate individual efforts across the world to tackle the global burden of FH. The information garnered from the registry will help reduce gaps in knowledge, inform best practices, assist in clinical trials design, support clinical guidelines and policies development, and ultimately improve the care of FH patients. (C) 2016 Elsevier Ireland Ltd.
650 7a MEDICIN OCH HÄLSOVETENSKAPx Klinisk medicinx Kardiologi0 (SwePub)302062 hsv//swe
650 7a MEDICAL AND HEALTH SCIENCESx Clinical Medicinex Cardiac and Cardiovascular Systems0 (SwePub)302062 hsv//eng
653 a Familial hypercholesterolaemia; LDL-Cholesterol; Cardiovascular disease; Registry; Study design; Familial Hypercholesterolaemia Studies Collaboration
700a Akram, Asifu Imperial Coll London, England; Nanyang Technology University, Singapore4 aut
700a Rao Kondapally Seshasai, Sreenivasau St Georges University of London, England4 aut
700a Cole, Dellau St Georges University of London, England4 aut
700a Watts, Gerald F.u University of Western Australia, Australia4 aut
700a Kees Hovingh, G.u Academic Medical Centre, Netherlands4 aut
700a Kastelein, John J. P.u Academic Medical Centre, Netherlands4 aut
700a Mata, Pedrou Fdn Hipercolesterolemia Familiar, Spain4 aut
700a Raal, Frederick J.u University of Witwatersrand, South Africa4 aut
700a Santos, Raul D.u University of Sao Paulo, Brazil4 aut
700a Soran, Handreanu Central Manchester University Hospital, England4 aut
700a Freiberger, Tomasu Centre Cardiovasc Surg and Transplantat, Czech Republic; Masaryk University, Czech Republic4 aut
700a Abifadel, Marianneu St Joseph University, Lebanon4 aut
700a Aguilar-Salinas, Carlos A.u Institute Nacl Ciencias Medical and Nutr Salvador Zubiran, Mexico4 aut
700a Alnouri, Fahadu Prince Sultan Cardiac Centre Riyadh, Saudi Arabia4 aut
700a Alonso, Rodrigou Clin Las Condes, Chile4 aut
700a Al-Rasadi, Khalidu Sultan Qaboos University Hospital, Oman4 aut
700a Banach, Macieju Medical University of Lodz, Poland4 aut
700a Bogsrud, Martin P.u Oslo University Hospital, Norway4 aut
700a Bourbon, Mafaldau University of Lisbon, Portugal; University of Lisbon, Portugal4 aut
700a Bruckert, Ericu Hop La Pitie Salpetriere, France4 aut
700a Car, Josipu Imperial Coll London, England; Nanyang Technology University, Singapore4 aut
700a Ceska, Richardu Charles University of Prague, Czech Republic4 aut
700a Corral, Pablou FASTA University, Argentina4 aut
700a Descamps, Olivieru Centre Hospital Jolimont, Belgium4 aut
700a Dieplinger, Hansu Medical University of Innsbruck, Austria4 aut
700a Do, Can T.u Bach Mai Hospital, Vietnam4 aut
700a Durst, Ronenu Hadassah Hebrew University, Israel4 aut
700a Ezhov, Marat V.u Russian Cardiol Research and Prod Centre, Russia4 aut
700a Fras, Zlatkou University of Medical Centre Ljubljana, Slovenia; University of Ljubljana, Slovenia4 aut
700a Gaita, Danu University of Medical and Farm Victor Babes Timisoara, Romania4 aut
700a Gaspar, Isabel M.u University of Lisbon, Portugal4 aut
700a Genest, Jaquesu McGill University, Canada4 aut
700a Harada-Shiba, Marikou National Cerebral and Cardiovasc Centre, Japan4 aut
700a Jiang, Lixinu Fuwai Hospital, Peoples R China4 aut
700a Kayikcioglu, Meralu Ege University, Turkey4 aut
700a Lam, Carolyn S. P.u National Heart Centre Singapore, Singapore; Duke National University of Singapore, Singapore4 aut
700a Latkovskis, Gustavsu University of Latvia, Latvia4 aut
700a Laufs, Ulrichu University of Saarland, Germany4 aut
700a Liberopoulos, Evangelosu University of Ioannina, Greece4 aut
700a Lin, Jieu Capital Medical University, Peoples R China4 aut
700a Lin, Nanu Imperial Coll London, England4 aut
700a Maher, Vincentu Tallaght Hospital, Ireland4 aut
700a Majano, Nelsonu Hospital Mil Caracas, Venezuela4 aut
700a David Marais, A.u University of Cape Town, South Africa; National Health Lab Serv, South Africa4 aut
700a Maerz, Winfriedu Heidelberg University, Germany4 aut
700a Mirrakhimov, Erkinu Kyrgyz State Medical Acad, Kyrgyzstan4 aut
700a Miserez, Andre R.u Diagene GmbH, Switzerland; University of Basel, Switzerland4 aut
700a Mitchenko, Olenau Institute Cardiol AMS Ukraine, Ukraine; University of Teknol MARA, Malaysia4 aut
700a Nawawi, Hapizahu Institute Pathol Lab and Forens Medical I PPerForM, Malaysia4 aut
700a Nilsson, Lennartu Linköpings universitet,Avdelningen för kardiovaskulär medicin,Medicinska fakulteten,Region Östergötland, Kardiologiska kliniken US4 aut0 (Swepub:liu)lenni29
700a Nordestgaard, Borge G.u University of Copenhagen, Denmark4 aut
700a Paragh, Gyorgyu University of Debrecen, Hungary4 aut
700a Petrulioniene, Zanetau Vilnius University, Lithuania4 aut
700a Pojskic, Belmau Cantonal Hospital, Bosnia and Herceg4 aut
700a Reiner, Zeljkou University of Zagreb, Croatia4 aut
700a Sahebkar, Amirhosseinu Mashhad University of Medical Science, Iran4 aut
700a Santos, Lourdes E.u University of Philippines, Philippines4 aut
700a Schunkert, Heribertu Technical University of Munich, Germany4 aut
700a Shehab, Abdullahu UAE University, U Arab Emirates4 aut
700a Naceur Slimane, M.u Fac Medical Monastir, Tunisia4 aut
700a Stoll, Mariou Cardiovasc Health Commiss, Uruguay4 aut
700a Su, Ta-Chenu National Taiwan University Hospital, Taiwan; National Taiwan University Hospital, Taiwan4 aut
700a Susekov, Andreyu Russian Medical Academic Postgrad Educ, Russia4 aut
700a Tilney, Myrau University of Malta, Malta4 aut
700a Tomlinson, Brianu Chinese University of Hong Kong, Peoples R China4 aut
700a Tselepis, Alexandros D.u University of Ioannina, Greece4 aut
700a Vohnout, Branislavu Comenius University, Slovakia4 aut
700a Widen, Elisabethu University of Helsinki, Finland4 aut
700a Yamashita, Shizuyau Rinku Gen Medical Centre, Japan; Osaka University, Japan4 aut
700a Catapano, Alberico L.u University of Milan, Italy; Multimed IRCCS, Italy4 aut
700a Ray, Kausik K.u Imperial Coll London, England4 aut
710a Imperial Coll London, Englandb Imperial Coll London, England; Nanyang Technology University, Singapore4 org
773t Atherosclerosis Supplementsd : ELSEVIER IRELAND LTDg 22q 22x 1567-5688x 1878-5050
856u https://liu.diva-portal.org/smash/get/diva2:1078793/FULLTEXT01.pdfx primaryx Raw objecty fulltext:print
856u https://doi.org/10.1016/j.atherosclerosissup.2016.10.001
8564 8u https://urn.kb.se/resolve?urn=urn:nbn:se:liu:diva-134993
8564 8u https://doi.org/10.1016/j.atherosclerosissup.2016.10.001

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