Scandcleft randomised trials of primary surgery for unilateral cleft lip and palate: 10. Parental perceptions of appearance and treatment outcomes in their 5-year-old child

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Scandcleft randomised trials of primary surgery for unilateral cleft lip and palate: 10. Parental perceptions of appearance and treatment outcomes in their 5-year-old child

Billaud Feragen, Kristin (author): Oslo University Hospital, Norway; Statped Sorost, Norway

Semb, Gunvor (author): University of Manchester, England; National Hospital Norway, Norway

Heliovaara, Arja (author): University of Helsinki, Finland

Lohmander, Anette (author): Karolinska Institutet,Karolinska Institute, Sweden

Johannessen, Emma Christine (author): Statped Sorost, Norway

Boysen, Betty Marie (author): University of Copenhagen Hospital, Denmark

Havstam, Christina (author): Sahlgrens University Hospital, Sweden

Lundeborg, Inger, 1956- (author): Linköpings universitet,Avdelningen för Logopedi, Audiologi och Otorhinolaryngologi,Medicinska fakulteten

Nyberg, Jill (author): Karolinska Institutet,Karolinska University Hospital, Sweden

Pedersen, Nina-Helen (author): Statped Vest, Norway

Bogh-Nielsen, Joan (author): Cleft Palate Centre, Denmark

Eyres, Philip (author): University of Manchester, England

Bradbury, Eileen (author): Private Practice, Manchester, UK

Rumsey, Nichola (author): University of West England, England

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(creator_code:org_t)

TAYLOR & FRANCIS LTD, 2017
2017
English.
In: Journal of Plastic Surgery and Hand Surgery. - : TAYLOR & FRANCIS LTD. - 2000-656X .- 2000-6764. ; 51:1, s. 81-87

Related links:: https://urn.kb.se/re...; show more...; https://doi.org/10.1...; http://kipublication...; show less...

Journal article (peer-reviewed)

Abstract Subject headings

Background and aim: Few studies have explored childrens emotional and behavioural reactions to cleft surgery and treatment-related stress. The objective was to investigate parents evaluations of appearance and treatment outcomes in their 5-year-old child with unilateral cleft lip and palate (UCLP), and their perceptions of how their child was coping with treatment, comparing this information with recorded postsurgical complications.Design: Three parallel group randomised clinical trials were undertaken as an international multicentre study by 10 cleft teams in five countries: Denmark, Finland, Sweden, Norway, and the UK.Methods: Three different surgical procedures for primary palatal repair were tested against a common procedure in the total cohort of 448 children born with a non-syndromic UCLP. A total of 356 parents completed the Scandcleft Parent Questionnaire, and 346 parents completed the Cleft Evaluation Profile.Results: The results indicated that the majority of parents were satisfied with cleft-related features of their childs appearance. Further, most children coped well with treatment according to their parents. Nevertheless, 17.5% of the children showed minor or short-term reactions after treatment experiences, and 2% had major or lasting difficulties. There were no significant relationships between parent perceptions of treatment-related problems and the occurrence of post-surgical medical complications.Conclusions: Most parents reported satisfaction with their childs appearance. However, treatment-related problems were described in some children, urging cleft centres to be aware of potential negative emotional and behavioural reactions to treatment in some young children, with a view to preventing the development of more severe treatment-related anxiety.

Subject headings

MEDICIN OCH HÄLSOVETENSKAP -- Klinisk medicin -- Kirurgi (hsv//swe)
MEDICAL AND HEALTH SCIENCES -- Clinical Medicine -- Surgery (hsv//eng)

Keyword

Parent satisfaction; cleft; appearance; treatment anxiety; treatment-related problems; coping

Publication and Content Type

ref (subject category)
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By the author/editor: Billaud Feragen, ...; Semb, Gunvor; Heliovaara, Arja; Lohmander, Anett ...; Johannessen, Emm ...; Boysen, Betty Ma ...; show more...; Havstam, Christi ...; Lundeborg, Inger ...; Nyberg, Jill; Pedersen, Nina-H ...; Bogh-Nielsen, Jo ...; Eyres, Philip; Bradbury, Eileen; Rumsey, Nichola; show less...

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MEDICAL AND HEALTH SCIENCES: MEDICAL AND HEAL ...; and Clinical Medicin ...; and Surgery

Articles in the publication: Journal of Plast ...

By the university: Linköping University; Karolinska Institutet

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