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  • Billaud Feragen, KristinOslo University Hospital, Norway; Statped Sorost, Norway (author)

Scandcleft randomised trials of primary surgery for unilateral cleft lip and palate: 10. Parental perceptions of appearance and treatment outcomes in their 5-year-old child

  • Article/chapterEnglish2017

Publisher, publication year, extent ...

  • TAYLOR & FRANCIS LTD,2017
  • printrdacarrier

Numbers

  • LIBRIS-ID:oai:DiVA.org:liu-136215
  • https://urn.kb.se/resolve?urn=urn:nbn:se:liu:diva-136215URI
  • https://doi.org/10.1080/2000656X.2016.1254642DOI
  • http://kipublications.ki.se/Default.aspx?queryparsed=id:135262474URI

Supplementary language notes

  • Language:English
  • Summary in:English

Part of subdatabase

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  • Subject category:ref swepub-contenttype
  • Subject category:art swepub-publicationtype

Notes

  • Background and aim: Few studies have explored childrens emotional and behavioural reactions to cleft surgery and treatment-related stress. The objective was to investigate parents evaluations of appearance and treatment outcomes in their 5-year-old child with unilateral cleft lip and palate (UCLP), and their perceptions of how their child was coping with treatment, comparing this information with recorded postsurgical complications.Design: Three parallel group randomised clinical trials were undertaken as an international multicentre study by 10 cleft teams in five countries: Denmark, Finland, Sweden, Norway, and the UK.Methods: Three different surgical procedures for primary palatal repair were tested against a common procedure in the total cohort of 448 children born with a non-syndromic UCLP. A total of 356 parents completed the Scandcleft Parent Questionnaire, and 346 parents completed the Cleft Evaluation Profile.Results: The results indicated that the majority of parents were satisfied with cleft-related features of their childs appearance. Further, most children coped well with treatment according to their parents. Nevertheless, 17.5% of the children showed minor or short-term reactions after treatment experiences, and 2% had major or lasting difficulties. There were no significant relationships between parent perceptions of treatment-related problems and the occurrence of post-surgical medical complications.Conclusions: Most parents reported satisfaction with their childs appearance. However, treatment-related problems were described in some children, urging cleft centres to be aware of potential negative emotional and behavioural reactions to treatment in some young children, with a view to preventing the development of more severe treatment-related anxiety.

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Added entries (persons, corporate bodies, meetings, titles ...)

  • Semb, GunvorUniversity of Manchester, England; National Hospital Norway, Norway (author)
  • Heliovaara, ArjaUniversity of Helsinki, Finland (author)
  • Lohmander, AnetteKarolinska Institutet,Karolinska Institute, Sweden (author)
  • Johannessen, Emma ChristineStatped Sorost, Norway (author)
  • Boysen, Betty MarieUniversity of Copenhagen Hospital, Denmark (author)
  • Havstam, ChristinaSahlgrens University Hospital, Sweden (author)
  • Lundeborg, Inger,1956-Linköpings universitet,Avdelningen för Logopedi, Audiologi och Otorhinolaryngologi,Medicinska fakulteten(Swepub:liu)inglu20 (author)
  • Nyberg, JillKarolinska Institutet,Karolinska University Hospital, Sweden (author)
  • Pedersen, Nina-HelenStatped Vest, Norway (author)
  • Bogh-Nielsen, JoanCleft Palate Centre, Denmark (author)
  • Eyres, PhilipUniversity of Manchester, England (author)
  • Bradbury, EileenPrivate Practice, Manchester, UK (author)
  • Rumsey, NicholaUniversity of West England, England (author)
  • Oslo University Hospital, Norway; Statped Sorost, NorwayUniversity of Manchester, England; National Hospital Norway, Norway (creator_code:org_t)

Related titles

  • In:Journal of Plastic Surgery and Hand Surgery: TAYLOR & FRANCIS LTD51:1, s. 81-872000-656X2000-6764

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