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Family caregiving f...
Family caregiving for persons with heart failure at the intersection of heart failure and palliative care: a state-of-the-science review
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- Dionne-Odom, J. Nicholas (author)
- University of Alabama Birmingham, AL 35294 USA
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- Hooker, Stephanie A. (author)
- University of Colorado, CO 80217 USA
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- Bekelman, David (author)
- University of Colorado, CO 80220 USA
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- Ejem, Deborah (author)
- University of Alabama Birmingham, AL 35294 USA
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- McGhan, Gwen (author)
- University of Alabama Birmingham, AL 35294 USA
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- Kitko, Lisa (author)
- Penn State University, PA 16802 USA
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- Strömberg, Anna (author)
- Linköpings universitet,Avdelningen för omvårdnad,Medicinska fakulteten,Region Östergötland, Kardiologiska kliniken US
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- Wells, Rachel (author)
- University of Alabama Birmingham, AL 35294 USA
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- Astin, Meka (author)
- University of Alabama Birmingham, AL 35294 USA
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- Gok Metin, Zehra (author)
- Hacettepe University, Turkey
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- Mancarella, Gisella (author)
- University of Alabama Birmingham, AL 35294 USA
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- Pamboukian, Salpy V. (author)
- University of Alabama Birmingham, AL 35294 USA
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- Evangelista, Lorraine (author)
- University of Calif Irvine, CA 92697 USA
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- Buck, Harleah G. (author)
- University of S Florida, FL 33612 USA
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- Bakitas, Marie A. (author)
- University of Alabama Birmingham, AL 35294 USA
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(creator_code:org_t)
- 2017-02-04
- 2017
- English.
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In: Heart Failure Reviews. - : SPRINGER. - 1382-4147 .- 1573-7322. ; 22:5, s. 543-557
- Related links:
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http://openaccess.ha...
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https://urn.kb.se/re...
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https://doi.org/10.1...
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Abstract
Subject headings
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- Many of the 23 million individuals with heart failure (HF) worldwide receive daily, unpaid support from a family member or friend. Although HF and palliative care practice guidelines stipulate that support be provided to family caregivers, the evidence base to guide care for this population has not been comprehensively assessed. In order to appraise the state-of-the-science of HF family caregiving and recommend areas for future research, the aims of this review were to summarize (1) how caregivers influence patients, (2) the consequences of HF for caregivers, and (3) interventions directed at HF caregivers. We reviewed all literature to December 2015 in PubMed and CINAHL using the search terms "heart failure" AND "caregiver." Inclusion criteria dictated that studies report original research of HF family caregiving. Articles focused on children or instrument development or aggregated HF with other illnesses were excluded. We identified 120 studies, representing 5700 caregivers. Research on this population indicates that (1) caregiving situations vary widely with equally wide-ranging tasks for patients to help facilitate their health behaviors, psychological health and relationships, and quality of life (QoL); (2) caregivers have numerous unmet needs that fluctuate with patients unpredictable medical status, are felt to be ignored by the formal healthcare system, and can lead to distress, burden, and reduced QoL; and (3) relatively few interventions have been developed and tested that effectively support HF family caregivers. We provide recommendations to progress the science forward in each of these areas that moves beyond descriptive work to intervention development and clinical trials testing.
Subject headings
- MEDICIN OCH HÄLSOVETENSKAP -- Klinisk medicin -- Kardiologi (hsv//swe)
- MEDICAL AND HEALTH SCIENCES -- Clinical Medicine -- Cardiac and Cardiovascular Systems (hsv//eng)
Keyword
- Heart failure; Family caregiving; Palliative care
Publication and Content Type
- ref (subject category)
- for (subject category)
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- By the author/editor
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Dionne-Odom, J. ...
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Hooker, Stephani ...
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Bekelman, David
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Ejem, Deborah
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McGhan, Gwen
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Kitko, Lisa
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show more...
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Strömberg, Anna
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Wells, Rachel
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Astin, Meka
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Gok Metin, Zehra
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Mancarella, Gise ...
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Pamboukian, Salp ...
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Evangelista, Lor ...
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Buck, Harleah G.
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Bakitas, Marie A ...
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show less...
- About the subject
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- MEDICAL AND HEALTH SCIENCES
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MEDICAL AND HEAL ...
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and Clinical Medicin ...
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and Cardiac and Card ...
- Articles in the publication
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Heart Failure Re ...
- By the university
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Linköping University