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Effects of a support group programme for patients with life-threatening illness during ongoing palliative care

Henriksson, Anette, 1967- (author)
Örebro universitet,Institutionen för hälsovetenskap och medicin,University of Örebro, Sweden
Arestedt, Kristofer (author)
Linnéuniversitetet,Linköpings universitet,Omvårdnad,Hälsouniversitetet,School of Health and Caring Sciences, Linnaeus University, Växjö, Sweden; Department of Medical and Health Sciences, Linköping University, Linköping, Sweden,Institutionen för hälso- och vårdvetenskap (HV),Linköping universitet; Linnéuniversitet
Benzein, Eva (author)
Ersta Sköndal högskola,Linnéuniversitetet,Institutionen för hälso- och vårdvetenskap (HV),Palliativt forskningscentrum, PFC,Linnaeus University, Sweden
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Ternestedt, Britt-Marie, 1943- (author)
Ersta Sköndal högskola,Palliativt forskningscentrum, PFC,Karolinska institutet; Stockholms sjukhem,Ersta Skondal University of Coll, Sweden
Andershed, Birgitta, 1947- (author)
Ersta Sköndal högskola,Palliativt forskningscentrum, PFC,Gjøvik University College, Norway,Ersta Skondal University of Coll, Sweden
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 (creator_code:org_t)
2012-05-04
2013
English.
In: Palliative Medicine. - London, United Kingdom : SAGE Publications (UK and US). - 0269-2163 .- 1477-030X. ; 27:3, s. 257-264
  • Journal article (peer-reviewed)
Abstract Subject headings
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  • Background: Health care systems in many countries are moving towards outpatient care in which family members are central in providing care for patients with life-threatening illness. Several studies show that family members report a lack of preparation, knowledge and the ability to handle the caregiver role, and a need for information and psychosocial support. less thanbrgreater than less thanbrgreater thanAim: The aim was to investigate the effects of a support group programme for family members of patients with life-threatening illness during ongoing palliative care. less thanbrgreater than less thanbrgreater thanDesign: A prospective quasi-experimental design, including an intervention group and a comparison group, was used. less thanbrgreater than less thanbrgreater thanSettings/participants: A support group programme was offered to family members during ongoing palliative care at three intervention settings: two specialist palliative care units and one haematology unit. A fourth setting, a specialist palliative care unit, was used for comparisons. less thanbrgreater than less thanbrgreater thanResults: Family members taking part in the support group programme significantly increased their perceptions of preparedness for caregiving, competence for caregiving, and rewards of caregiving. Hope, anxiety, depression symptoms and health showed no significant changes. less thanbrgreater than less thanbrgreater thanConclusions: The intervention, including a support group programme delivered to family members of patients with life-threatening illness during ongoing palliative care, proved to be effective in certain domains of caregiving. No negative outcomes were detected. The results indicate that this intervention could be implemented and delivered to family members during ongoing palliative care.

Subject headings

MEDICIN OCH HÄLSOVETENSKAP  -- Hälsovetenskap -- Omvårdnad (hsv//swe)
MEDICAL AND HEALTH SCIENCES  -- Health Sciences -- Nursing (hsv//eng)
MEDICIN OCH HÄLSOVETENSKAP  -- Hälsovetenskap (hsv//swe)
MEDICAL AND HEALTH SCIENCES  -- Health Sciences (hsv//eng)

Keyword

Palliative care
family members
intervention
support groups
MEDICINE
MEDICIN
Caring sciences
Omvårdnad

Publication and Content Type

ref (subject category)
art (subject category)

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