A scoping review and mapping exercise comparing the content of patient-reported outcome measures (PROMs) across heart disease-specific scales

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Algurén, BeatrixGothenburg University,Göteborgs universitet,Jönköping University,The Jönköping Academy for Improvement of Health and Welfare,Department of Food and Nutrition, and Sport Science, Faculty of Education, University of Gothenburg, Gothenburg, Sweden,Institutionen för kost- och idrottsvetenskap,Department of Food and Nutrition, and Sport Science (author)

A scoping review and mapping exercise comparing the content of patient-reported outcome measures (PROMs) across heart disease-specific scales

Article/chapterEnglish2020

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2020-01-23
Springer,2020
printrdacarrier

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LIBRIS-ID:oai:DiVA.org:lnu-102681
https://urn.kb.se/resolve?urn=urn:nbn:se:lnu:diva-102681URI
https://doi.org/10.1186/s41687-019-0165-7DOI
https://urn.kb.se/resolve?urn=urn:nbn:se:hj:diva-47543URI
https://gup.ub.gu.se/publication/287960URI

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Language:English
Summary in:English

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SwePubSwePub

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Subject category:ref swepub-contenttype
Subject category:for swepub-publicationtype

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On behalf of the Collaboration and Exchange in Swedish cardiovascular caring Academic Research (CESAR) group.
BACKGROUND: Over the past decade, the importance of person-centered care has led to increased interest in patient-reported outcome measures (PROMs). In cardiovascular care, selecting an appropriate PROM for clinical use or research is challenging because multimorbidity is often common in patients. The aim was therefore to provide an overview of heart-disease specific PROMs and to compare the content of those outcomes using a bio-psycho-social framework of health.METHODS: A scoping review of heart disease-specific PROMs, including arrhythmia/atrial fibrillation, congenital heart disease, heart failure, ischemic heart disease, and valve diseases was conducted in PubMed (January 2018). All items contained in the disease-specific PROMs were mapped to WHO's International Classification of Functioning, Disability and Health (ICF) according to standardized linking rules.RESULTS: A total of 34 PROMs (heart diseases in general n = 5; cardiac arrhythmia n = 6; heart failure n = 14; ischemic heart disease n = 9) and 147 ICF categories were identified. ICF categories covered Body functions (n = 61), Activities & Participation (n = 69), and Environmental factors (n = 17). Most items were about experienced problems of Body functions and less often about patients' daily activities, and most PROMs were specifically developed for heart failure and no PROM were identified for valve disease or congenital heart disease.CONCLUSIONS: Our results motivate and provide information to develop comprehensive PROMs that consider activity and participation by patients with various types of heart disease.

Subject headings and genre

MEDICIN OCH HÄLSOVETENSKAP Klinisk medicin Kardiologi hsv//swe
MEDICAL AND HEALTH SCIENCES Clinical Medicine Cardiac and Cardiovascular Systems hsv//eng
MEDICIN OCH HÄLSOVETENSKAP Hälsovetenskap Hälso- och sjukvårdsorganisation, hälsopolitik och hälsoekonomi hsv//swe
MEDICAL AND HEALTH SCIENCES Health Sciences Health Care Service and Management, Health Policy and Services and Health Economy hsv//eng
SAMHÄLLSVETENSKAP Sociologi Socialt arbete hsv//swe
SOCIAL SCIENCES Sociology Social Work hsv//eng
MEDICIN OCH HÄLSOVETENSKAP Hälsovetenskap Omvårdnad hsv//swe
MEDICAL AND HEALTH SCIENCES Health Sciences Nursing hsv//eng
MEDICIN OCH HÄLSOVETENSKAP Hälsovetenskap Folkhälsovetenskap, global hälsa, socialmedicin och epidemiologi hsv//swe
MEDICAL AND HEALTH SCIENCES Health Sciences Public Health, Global Health, Social Medicine and Epidemiology hsv//eng
Healthcare quality
Patient outcome assessment
Heart disease
International Classification of Functioning
Disability and Health
Patient-reported outcome measures
Person-centered
Review
Health and Caring Sciences
Hälsovetenskap

Added entries (persons, corporate bodies, meetings, titles ...)

Coenen, MichaelaLMU Munich, Germany;Pettenkofer School of Public Health, Germany;ICF Research Branch, Switzerland,Institute for Medical Information Processing, Biometry and Epidemiology (IBE), Chair of Public Health and Health Services Research, Research Unit for Biopsychosocial Health, LMU Munich, Munich, Germany (author)
Malm, Dan,1954-Jönköping University,HHJ, Avdelningen för omvårdnad,HHJ. IMPROVE (Improvement, innovation, and leadership in health and welfare)(Swepub:hj)Dan (author)
Fridlund, BengtLinnéuniversitetet,Institutionen för hälso- och vårdvetenskap (HV),Centre of Interprofessional Collaboration within Emergency care (CICE), Linnaeus University, Växjö, Sweden(Swepub:hj)frbe (author)
Mårtensson, Jan,1966-Jönköping University,HHJ, Avdelningen för omvårdnad,HHJ. ADULT(Swepub:hj)maja (author)
Årestedt, Kristofer,1968-Linnéuniversitetet,Institutionen för hälso- och vårdvetenskap (HV),Hållbar hälsa,Region Kalmar County, Sweden,Faculty of Health and Life Sciences, Linnaeus University, Kalmar/Växjö, Sweden(Swepub:lnu)vfrkr (author)
Jönköping UniversityThe Jönköping Academy for Improvement of Health and Welfare (creator_code:org_t)

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In:Journal of Patient-Reported Outcomes: Springer4:12509-8020

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MEDICAL AND HEALTH SCIENCES: MEDICAL AND HEAL ...; and Clinical Medicin ...; and Cardiac and Card ...

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