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  • Falk Johansson, MarcusDalarna University College,Högskolan Dalarna,Vårdvetenskap (author)

A comparison of spouse and non-spouse carers of people with dementia : a descriptive analysis of Swedish national survey data

  • Article/chapterEnglish2021

Publisher, publication year, extent ...

  • 2021-06-02
  • BioMed Central,2021
  • printrdacarrier

Numbers

  • LIBRIS-ID:oai:DiVA.org:lnu-105901
  • https://urn.kb.se/resolve?urn=urn:nbn:se:lnu:diva-105901URI
  • https://doi.org/10.1186/s12877-021-02264-0DOI
  • https://urn.kb.se/resolve?urn=urn:nbn:se:mdh:diva-55359URI
  • https://urn.kb.se/resolve?urn=urn:nbn:se:du-37261URI
  • https://urn.kb.se/resolve?urn=urn:nbn:se:su:diva-196139URI
  • https://lup.lub.lu.se/record/42e790da-50c8-4d09-8425-9f34c4e641bfURI
  • http://kipublications.ki.se/Default.aspx?queryparsed=id:146875918URI

Supplementary language notes

  • Language:English
  • Summary in:English

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  • Subject category:ref swepub-contenttype
  • Subject category:art swepub-publicationtype

Notes

  • BackgroundBeing an informal carer of a person with dementia (PwD) can have a negative effect on the carer's health and quality of life, and spouse carers have been found to be especially vulnerable. Yet relatively little is known about the care provided and support received by spouse carers. This study compares spouse carers to other informal carers of PwDs regarding their care provision, the support received and the psychosocial impact of care.MethodsThe study was a cross-sectional questionnaire-based survey of a stratified random sample of the Swedish population aged 18 or over. The questionnaire explored how much care the respondent provided, the support received, and the psychosocial impact of providing care. Of 30,009 people sampled, 11,168 (37.7%) responded, of whom 330 (2.95%) were informal carers of a PwD.ResultsIn comparison to non-spouse carers, spouse carers provided more care more frequently, did so with less support from family or the local authority, while more frequently experiencing negative impacts on their social life and psychological and physical health. Spouse carers also received more carer support and more frequently experienced a closeness in their relationship with the care-recipient.ConclusionsSpouse carers of PwD differed from non-spouse carers on virtually all aspects of their care situation. Policy and practice must be more sensitive to how the carer-care-recipient relationship shapes the experience of care, so that support is based on an understanding of the individual carer's actual needs and preferences rather than on preconceptions drawn from a generalised support model.

Subject headings and genre

Added entries (persons, corporate bodies, meetings, titles ...)

  • McKee, Kevin,1961-Dalarna University College,Högskolan Dalarna,Socialt arbete(Swepub:du)kmc (author)
  • Dahlberg, Lena,1970-Karolinska Institutet,Karolinska Institute,Dalarna University College,Stockholms universitet,Högskolan Dalarna,Socialt arbete,Karolinska Institutet; Stockholm University,Centrum för forskning om äldre och åldrande (ARC), (tills m KI),Dalarna University, Sweden(Swepub:du)ldh (author)
  • Williams, Christine L.Florida Atlantic Univ, Christine E Lynn Coll Nursing, USA,Florida Atlantic University (author)
  • Summer Meranius, Martina,1971-Mälardalens högskola,Hälsa och välfärd,COMCARE,Mälardalen University, Sweden(Swepub:mdh)mss03 (author)
  • Hanson, Elizabeth,1961-Linnéuniversitetet,Institutionen för hälso- och vårdvetenskap (HV),Linnaeus University, Swedish Family Care Competence Ctr, Box 762, Sweden(Swepub:lnu)vhael (author)
  • Magnusson, Lennart,1961-Linnéuniversitetet,Institutionen för hälso- och vårdvetenskap (HV),Linnaeus University, Swedish Family Care Competence Ctr, Sweden(Swepub:lnu)qmale (author)
  • Ekman, BjörnLund University,Lunds universitet,Socialmedicin och global hälsa,Forskargrupper vid Lunds universitet,Social Medicine and Global Health,Lund University Research Groups(Swepub:lu)nek-bek (author)
  • Marmstål Hammar, Lena,1979-Karolinska Institute,Dalarna University College,Högskolan Dalarna,Mälardalens högskola,Hälsa och välfärd,Dalama Univ, Sch Hlth & Welfare, SE-79188 Falun, Sweden.;Malardale.;Karolinska Inst, Dept Neurobiol Care Sci & Soc, Alfred Nobels Alle 23, SE-14152 Huddinge, Sweden.,PrILiv,Dalarna University, Sweden;Mälardalen University, Sweden;Karolinska Institutet, Sweden,Omvårdnad,Mälardalen University, Västerås; Karolinska Institutet, Huddinge(Swepub:du)lma (author)
  • Högskolan DalarnaVårdvetenskap (creator_code:org_t)

Related titles

  • In:BMC Geriatrics: BioMed Central21:11471-2318

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