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Preparedness for caregiving and preparedness for death : Associations and modifiable thereafter factors among family caregivers of patients with advanced cancer in specialized home care

Häger Tibell, Louise (author)
Marie Cederschiöld högskola,Palliativt forskningscentrum, PFC,Tema Cancer, BES: Breast-Endocrine Tumours and Sarcoma, Karolinska University Hospital, Stockholm, Sweden
Årestedt, Kristofer, 1968- (author)
Linnéuniversitetet,Institutionen för hälso- och vårdvetenskap (HV),Faculty of Health and Life Sciences, Linnaeus University, Kalmar, Sweden; Department of Research, Region Kalmar County, Kalmar, Sweden
Holm, Maja, 1982- (author)
Marie Cederschiöld högskola,Sophiahemmet Högskola,Marie Cederschiöld University, Sweden;Sophiahemmet University, Sweden,Palliativt forskningscentrum, PFC,Department of Nursing Science, Sophiahemmet University, Stockholm, Sweden
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Wallin, Viktoria (author)
Marie Cederschiöld högskola,Palliativt forskningscentrum, PFC
Steineck, Gunnar (author)
Department of Clinical Cancer Epidemiology, Karolinska Institutet, Stockholm, Sweden; Division of Clinical Cancer Epidemiology, Sahlgrenska University Hospital, Gothenburg, Sweden
Hudson, Peter (author)
St Vincents Hosp, Australia;Univ Melbourne, Australia;Vrije Univ Brussels, Belgium,Centre for Palliative Care, St Vincent´s Hospital and The University of Melbourne, Melbourne, Australia; Vrije University Brussels, Brussels, Belgium
Kreicbergs, Ulrika (author)
Marie Cederschiöld högskola,Palliativt forskningscentrum, PFC,Department of Women's and Children's Health, Karolinska Institutet, Stockholm, Sweden
Alvariza, Anette (author)
Research and Development-Unit/Palliative Care, Stockholms Sjukhem, Stockholm, Sweden
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 (creator_code:org_t)
Taylor & Francis Group, 2024
English.
In: Death Studies. - : Taylor & Francis Group. - 0748-1187 .- 1091-7683. ; 48:4, s. 407-416
  • Journal article (peer-reviewed)
Abstract Subject headings
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  • The purpose of this study was to (1) explore associations between preparedness for caregiving and preparedness for death among family caregivers of patients with advanced cancer and (2) explore modifiable preparedness factors, such as communication and support. Data was derived from a baseline questionnaire collected in specialized home care. The questionnaire included socio-demographics, the Preparedness for Caregiving Scale, and single items addressing preparedness for death, received support and communication about incurable illness. Data was analyzed using descriptive statistics and Spearman correlations. Altogether 39 family caregivers participated. A significant association was found between preparedness for caregiving and preparedness for death. Received support and communication about the illness was associated with higher levels of preparedness for caregiving and death. This study contributes to evidence on the association between preparedness for caregiving and death, but also that communication and support employed by healthcare professionals could improve family caregiver preparedness and wellbeing.

Subject headings

MEDICIN OCH HÄLSOVETENSKAP  -- Hälsovetenskap -- Omvårdnad (hsv//swe)
MEDICAL AND HEALTH SCIENCES  -- Health Sciences -- Nursing (hsv//eng)

Keyword

Omvårdnad
Nursing

Publication and Content Type

ref (subject category)
art (subject category)

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