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  • Axelsson, LenaLinnaeus University,Sophiahemmet Högskola,Linnéuniversitetet,Institutionen för hälso- och vårdvetenskap (HV),Sophiahemmet University, Sweden,Ctr Collaborat Palliat Care,Linnéuniversitetet; Sophiahemmet högskola (author)

Unmet Palliative Care Needs Among Patients With End-Stage Kidney Disease : A National Registry Study About the Last Week of Life

  • Article/chapterEnglish2018

Publisher, publication year, extent ...

  • Elsevier,2018
  • printrdacarrier

Numbers

  • LIBRIS-ID:oai:DiVA.org:lnu-71449
  • https://urn.kb.se/resolve?urn=urn:nbn:se:lnu:diva-71449URI
  • https://doi.org/10.1016/j.jpainsymman.2017.09.015DOI
  • https://urn.kb.se/resolve?urn=urn:nbn:se:shh:diva-2769URI
  • https://lup.lub.lu.se/record/379c5654-a865-4c30-848a-52b23c34fbcfURI
  • https://urn.kb.se/resolve?urn=urn:nbn:se:esh:diva-6644URI
  • https://gup.ub.gu.se/publication/261958URI

Supplementary language notes

  • Language:English
  • Summary in:English

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  • Subject category:ref swepub-contenttype
  • Subject category:art swepub-publicationtype

Notes

  • Context. End-stage kidney disease (ESKD) is characterized by high physical and psychological burden, and therefore, more knowledge about the palliative care provided close to death is needed. Objectives. To describe symptom prevalence, relief, and management during the last week of life, as well as end-of-life communication, in patients with ESKD. Methods. This study was based on data from the Swedish Register of Palliative Care. Patients aged 18 or older who died from a chronic kidney disease, with or without dialysis treatment (International Classification of Diseases, Tenth Revision, Sweden; N18.5 or N18.9), during 2011 and 2012 were selected. Results. About 472 patients were included. Of six predefined symptoms, pain was the most prevalent (69%), followed by respiratory secretion (46%), anxiety (41%), confusion (30%), shortness of breath (22%), and nausea (17%). Of patients with pain and/or anxiety, 32% and 44%, respectively, were only partly relieved or not relieved at all. Of patients with the other symptoms, a majority (55%-84%) were partly relieved or not relieved at all. End-of-life discussions were reported in 41% of patients and 71% of families. A minority died in specialized palliative care: 8% in hospice/inpatient palliative care and 5% in palliative home care. Of all patients, 19% died alone. Bereavement support was offered to 38% of families. Conclusion. Even if death is expected, most patients dying with ESKD had unmet palliative care needs regarding symptom management, advance care planning, and bereavement support. (C) 2017 American Academy of Hospice and Palliative Medicine. Published by Elsevier Inc. All rights reserved.

Subject headings and genre

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  • Alvariza, AnetteErsta Sköndal Bräcke högskola,Palliativt forskningscentrum, PFC,Capio Palliativ vård Dalen(Swepub:esh)anealv (author)
  • Lindberg, JennyLund University,Lunds universitet,Medicinsk etik,Sektion II,Institutionen för kliniska vetenskaper, Lund,Medicinska fakulteten,Medical Ethics,Section II,Department of Clinical Sciences, Lund,Faculty of Medicine,Skåne University Hospital,Lunds universitet; Skånes universitetssjukhus(Swepub:lu)med-jyo (author)
  • Öhlén, Joakim,1958Gothenburg University,Göteborgs universitet,Centrum för personcentrerad vård vid Göteborgs universitet (GPCC),Institutionen för vårdvetenskap och hälsa,University of Gothenburg Centre for person-centred care (GPCC),Institute of Health and Care Sciences(Swepub:gu)xohlej (author)
  • Håkanson, CeciliaSophiahemmet Högskola,Sophiahemmet University, Sweden,Sophiahemmet högskola(Swepub:esh)cechak (author)
  • Reimertz, HeleneRegion Kronoberg, Sweden,Ctr Collaborat Palliat Care (author)
  • Fürst, Carl JohanLund University,Lunds universitet,Palliativt Utvecklingscentrum,Forskargrupper vid Lunds universitet,The Institute for Palliative Care,Lund University Research Groups,Lunds universitet; Region Skåne(Swepub:lu)med-crf (author)
  • Årestedt, Kristofer,1968-Linnéuniversitetet,Institutionen för hälso- och vårdvetenskap (HV),Kalmar County Hospital, Sweden,Linnéuniversitetet; Länssjukhuset i Kalmar(Swepub:lnu)vfrkr (author)
  • LinnéuniversitetetInstitutionen för hälso- och vårdvetenskap (HV) (creator_code:org_t)

Related titles

  • In:Journal of Pain and Symptom Management: Elsevier55:2, s. 236-2440885-39241873-6513

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