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  • Hoffmann, MikaelLinköpings universitet,Avdelningen för samhälle och hälsa,Medicinska fakulteten (author)

Guiding principles for the use of knowledge bases and real-world data in clinical decision support systems : report by an international expert workshop at Karolinska Institutet

  • Article/chapterEnglish2020

Publisher, publication year, extent ...

  • 2020-09-29
  • Taylor & Francis,2020
  • printrdacarrier

Numbers

  • LIBRIS-ID:oai:DiVA.org:lnu-98544
  • https://urn.kb.se/resolve?urn=urn:nbn:se:lnu:diva-98544URI
  • https://doi.org/10.1080/17512433.2020.1805314DOI
  • https://urn.kb.se/resolve?urn=urn:nbn:se:umu:diva-176109URI
  • https://urn.kb.se/resolve?urn=urn:nbn:se:liu:diva-170542URI
  • http://kipublications.ki.se/Default.aspx?queryparsed=id:144778311URI
  • https://urn.kb.se/resolve?urn=urn:nbn:se:su:diva-186993URI

Supplementary language notes

  • Language:English
  • Summary in:English

Part of subdatabase

Classification

  • Subject category:ref swepub-contenttype
  • Subject category:art swepub-publicationtype

Notes

  • Funding Agencies|Swedish Research CouncilSwedish Research Council [2018-00747_3]; NEPI Foundation; Swedish Institute for Drug Informatics (SIDI); Swedish Society for Clinical Pharmacology and Pharmacotherapy
  • Introduction Technical and logical breakthroughs have provided new opportunities in medicine to use knowledge bases and large-scale clinical data (real-world) at point-of-care as part of a learning healthcare system to diminish the knowledge-practice gap. Areas covered The article is based on presentations, discussions and recommendations from an international scientific workshop. Value, research needs and funding avenues of knowledge bases and access to real-world data as well as transparency and incorporation of patient perspectives are discussed. Expert opinion Evidence-based, publicly funded, well-structured and curated knowledge bases are of global importance. They ought to be considered as a public responsibility requiring transparency and handling of conflicts of interest. Information has to be made accessible for clinical decision support systems (CDSS) for healthcare staff and patients. Access to rich and real-world data is essential for a learning health care ecosystem and can be augmented by data on patient-reported outcomes and preferences. This field can progress by the establishment of an international policy group for developing a best practice guideline on the development, maintenance, governance, evaluation principles and financing of open-source knowledge bases and handling of real-world data.

Subject headings and genre

Added entries (persons, corporate bodies, meetings, titles ...)

  • Vander Stichele, RobertUniv Ghent, Belgium (author)
  • Bates, David W.Brigham & Womens Hosp, MA 02115 USA; Harvard Med Sch, MA 02115 USA (author)
  • Björklund, Johanna,1961-Umeå universitet,Institutionen för datavetenskap,Umeå University, Sweden,Umea Univ, Sweden(Swepub:umu)joahog02 (author)
  • Alexander, SteveUniv Nottingham, UK,Univ Nottingham, England (author)
  • Andersson, Marine L.Karolinska Institutet (author)
  • Auraaen, AneOrg Econ Cooperat & Dev OECD, France (author)
  • Bennie, MarionUniv Strathclyde, UK,Univ Strathclyde, Scotland (author)
  • Dahl, Marja-LiisaKarolinska Institutet (author)
  • Eiermann, BirgitKarolinska Institutet (author)
  • Hackl, WernerUMIT Private Univ Hlth Sci Med Informat & Technol, Austria (author)
  • Hammar, Tora,1984-Linnéuniversitetet,Institutionen för medicin och optometri (MEO),Hållbar hälsa,eHälsoinstitutet;eHealth Institute;DISA;DISA-IDP,Linnaeus Univ, Sweden(Swepub:lnu)eloto (author)
  • Hjemdahl, PaulKarolinska Institutet (author)
  • Koch, SabineKarolinska Institutet (author)
  • Kunnamo, IlkkaFinnish Med Soc Duodecim, Finland (author)
  • Le Louet, HerveCouncil Int Org Med Sci CIOMS, Switzerland (author)
  • Papapetrou, PanagiotisStockholms universitet,Institutionen för data- och systemvetenskap(Swepub:su)ppapa (author)
  • Raego, LembitCouncil Int Org Med Sci CIOMS, Switzerland (author)
  • Spedding, MichaelInt Union Basic & Clin Pharmacol IUPHAR, France,Heidelberg Univ, Germany (author)
  • Seidling, Hanna M.Heidelberg Univ, Germany (author)
  • Demner-Fushman, DinaNIH, MD USA (author)
  • Gustafsson, Lars L.Karolinska Institutet (author)
  • Linköpings universitetAvdelningen för samhälle och hälsa (creator_code:org_t)

Related titles

  • In:Expert Review of Clinical Pharmacology: Taylor & Francis13:9, s. 925-9341751-24331751-2441

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