Characteristics and Quality of Life of Patients Who Choose Home Care at the End of Life

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Ahlner-Elmqvist, MarianneLund University,Lunds universitet,Malmö högskola,Fakulteten för hälsa och samhälle (HS),Laryngoesofagologi, allergi och livskvalitet,Forskargrupper vid Lunds universitet,Laryngoesophagology, Allergy and Life Quality,Lund University Research Groups (author)

Characteristics and Quality of Life of Patients Who Choose Home Care at the End of Life

Article/chapterEnglish2008

Publisher, publication year, extent ...

Elsevier Inc.2008
printrdacarrier

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LIBRIS-ID:oai:DiVA.org:mau-4974
https://urn.kb.se/resolve?urn=urn:nbn:se:mau:diva-4974URI
https://doi.org/10.1016/j.jpainsymman.2007.10.010DOI
https://lup.lub.lu.se/record/1147577URI

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Language:English
Summary in:English

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SwePubSwePub

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Subject category:ref swepub-contenttype
Subject category:art swepub-publicationtype

Notes

Cancer patients with advanced disease and short-survival expectancy were given hospitalbased advanced home care (AHC) or conventional care (CC), according to their preference. The two groups were compared at baseline to investigate whether there were differences between the AHC and the CC patients that may help explain their choice of care. The patients were consecutively recruited over 2½ years. Sociodemographic and medical data, and the health-related quality of life (HRQL) of the two groups were compared. HRQL was assessed using a self-reporting questionnaire, including the European Organization for Research and Treatment of Cancer Core Quality of Life Questionnaire (EORTC QLQC30), the Impact of Event Scale (IES), five questions about social support, and two items concerning general well-being. The AHC group showed significantly poorer functioning on all the EORTC QLQ-C30 scales and an overall higher symptom burden than the CC patients. Fewer of the AHC patients were receiving cancer treatment. The AHC patients had lived longer with their cancer diagnosis, had a significantly shorter survival after study enrollment, and a significantly poorer performance status. The major differences between the two groups seemed to be related to being at different stages in their disease. The results indicate that patients are reluctant to accept home care until absolutely necessary due to severity of functioning impairments and symptom burden. These findings should be taken into consideration in planning palliative care services. J Pain Symptom Manage 2008;36:217e227. 2008 U.S. Cancer Pain Relief Committee. Published by Elsevier Inc. All rights reserved.

Subject headings and genre

MEDICIN OCH HÄLSOVETENSKAP Klinisk medicin Hematologi hsv//swe
MEDICAL AND HEALTH SCIENCES Clinical Medicine Hematology hsv//eng
MEDICIN OCH HÄLSOVETENSKAP Klinisk medicin Oto-rhino-laryngologi hsv//swe
MEDICAL AND HEALTH SCIENCES Clinical Medicine Otorhinolaryngology hsv//eng
advanced home care
preferences
health-related quality of life
EORTC

Added entries (persons, corporate bodies, meetings, titles ...)

Jordhøy, Marit S (author)
Bjordal, Kristin (author)
Jannert, MagnusLund University,Lunds universitet,Laryngoesofagologi, allergi och livskvalitet,Forskargrupper vid Lunds universitet,Laryngoesophagology, Allergy and Life Quality,Lund University Research Groups(Swepub:lu)oron-mja (author)
Kaasa, Stein (author)
Malmö högskolaFakulteten för hälsa och samhälle (HS) (creator_code:org_t)

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In:Journal of Pain and Symptom Management: Elsevier Inc.36:3, s. 217-2270885-39241873-6513

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MEDICAL AND HEALTH SCIENCES: MEDICAL AND HEAL ...; and Clinical Medicin ...; and Hematology

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