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Struggling to Enable Physical Activity for Children with Disabilities : A Narrative Model of Parental Roles

Delvert, Johanna (author)
Karlstads universitet,Institutionen för hälsovetenskaper (from 2013),Region Värmland County Council
Wikström, Sverre, 1978- (author)
Karlstads universitet,Örebro universitet,Institutionen för medicinska vetenskaper,Region Örebro län,Department of Health Sciences, Karlstad University, Karlstad, Sweden; Center for Clinical Research and the Habilitation services, Region Värmland County Council, Sweden,Institutionen för hälsovetenskaper (from 2013),Region Värmland County Council; Örebro University.
Bornehag, Carl-Gustaf, 1957- (author)
Karlstads universitet,Institutionen för hälsovetenskaper (from 2013),Icahn School of Medicine at Mount Sinai, USA
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Wadensjö, Helene V, 1969- (author)
Karlstads universitet,Institutionen för hälsovetenskaper (from 2013)
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 (creator_code:org_t)
Stockholm University Press, 2022
2022
English.
In: Scandinavian Journal of Disability Research. - : Stockholm University Press. - 1501-7419 .- 1745-3011. ; 24:1, s. 196-209
  • Journal article (peer-reviewed)
Abstract Subject headings
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  • This article presents a narrative model based on in-depth interviews with parents of children 6-12 years old with a variety of disabilities. It is a grounded theory study aiming to explore the parents' experiences of enabling health-promoting physical activity (PA) for their children. The core of the generated theory struggling between roles to facilitate PA describes how the parents, in different contexts and over time, are forced to take on roles as experts, coaches, minesweepers, and activists to facilitate adapted PA for their children. How tiresome this struggle became depended on contextual factors, the extent of effort put into the separate roles, and the interaction between them. The study revealed a complex picture unique for each family but at the same time suitable despite the character of the child's disability. This study adds knowledge to better support parents enabling PA on equal terms for all children.

Subject headings

MEDICIN OCH HÄLSOVETENSKAP  -- Klinisk medicin -- Pediatrik (hsv//swe)
MEDICAL AND HEALTH SCIENCES  -- Clinical Medicine -- Pediatrics (hsv//eng)
MEDICIN OCH HÄLSOVETENSKAP  -- Hälsovetenskap -- Arbetsmedicin och miljömedicin (hsv//swe)
MEDICAL AND HEALTH SCIENCES  -- Health Sciences -- Occupational Health and Environmental Health (hsv//eng)

Keyword

Child
Disability
Parenting
Physical Activity
Health Promotion
Grounded Theory
Public Health Science

Publication and Content Type

ref (subject category)
art (subject category)

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