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Development of a Ba...
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Coulman, Karen D.National Institute for Health Research Bristol Biomedical Research Centre, University of Bristol, Bristol, BS8 2BN, UK; Bristol Centre for Surgical Research, University of Bristol, Bristol, BS8 2PS, UK; Obesity and Bariatric Surgery Service, North Bristol NHS Trust, Bristol, BS10 5NB, UK
(author)
Development of a Bariatric Surgery Core Data Set for an International Registry
- Article/chapterEnglish2023
Publisher, publication year, extent ...
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2023-03-24
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Springer,2023
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printrdacarrier
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LIBRIS-ID:oai:DiVA.org:oru-105194
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https://urn.kb.se/resolve?urn=urn:nbn:se:oru:diva-105194URI
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https://doi.org/10.1007/s11695-023-06545-yDOI
Supplementary language notes
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Language:English
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Summary in:English
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Subject category:ref swepub-contenttype
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Subject category:art swepub-publicationtype
Notes
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Funding agencies:International Federation for the Surgery of Obesity and Metabolic DisordersRoyal College of Surgeons of England Bristol Surgical Trials Centre BRC-1215-20011Health Education England (HEE) / National Institute for Health Research (NIHR) ICA-CL-2018-04-ST2-008Bristol Centre for Surgical Research at University Hospitals Bristol NHS Foundation TrustNIHR Biomedical Research Centre at University Hospitals Bristol NHS Foundation TrustUniversity of Bristol
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PURPOSE: Bariatric and metabolic surgery is an effective treatment for severe and complex obesity; however, robust long-term data comparing operations is lacking. Clinical registries complement clinical trials in contributing to this evidence base. Agreement on standard data for bariatric registries is needed to facilitate comparisons. This study developed a Core Registry Set (CRS) - core data to include in bariatric surgery registries globally.MATERIALS AND METHODS: Relevant items were identified from a bariatric surgery research core outcome set, a registry data dictionary project, systematic literature searches, and a patient advisory group. This comprehensive list informed a questionnaire for a two-round Delphi survey with international health professionals. Participants rated each item's importance and received anonymized feedback in round 2. Using pre-defined criteria, items were then categorized for voting at a consensus meeting to agree the CRS.RESULTS: Items identified from all sources were grouped into 97 questionnaire items. Professionals (n = 272) from 56 countries participated in the round 1 survey of which 45% responded to round 2. Twenty-four professionals from 13 countries participated in the consensus meeting. Twelve items were voted into the CRS including demographic and bariatric procedure information, effectiveness, and safety outcomes.CONCLUSION: This CRS is the first step towards unifying bariatric surgery registries internationally. We recommend the CRS is included as a minimum dataset in all bariatric registries worldwide. Adoption of the CRS will enable meaningful international comparisons of bariatric operations. Future work will agree definitions and measures for the CRS including incorporating quality-of-life measures defined in a parallel project.
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Chalmers, KatyNational Institute for Health Research Bristol Biomedical Research Centre, University of Bristol, Bristol, BS8 2BN, UK; Bristol Centre for Surgical Research, University of Bristol, Bristol, BS8 2PS, UK
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Blazeby, JaneNational Institute for Health Research Bristol Biomedical Research Centre, University of Bristol, Bristol, BS8 2BN, UK; Bristol Centre for Surgical Research, University of Bristol, Bristol, BS8 2PS, UK
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Dixon, JohnIverson Health Innovation Research Institute, Swinburne University of Technology, Melbourne, 3122, Australia
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Kow, LilianCollege of Medicine and Public Health, Flinders University, Adelaide, 5042, Australia
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Liem, RonaldDepartment of Surgery, Groene Hart Hospital, 2803 HH, Gouda, The Netherlands
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Pournaras, Dimitri J.Obesity and Bariatric Surgery Service, North Bristol NHS Trust, Bristol, BS10 5NB, UK
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Ottosson, Johan,1957-Örebro universitet,Institutionen för medicinska vetenskaper,Region Örebro län(Swepub:oru)jhon
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Welbourn, RichardDepartment of Upper GI and Bariatric Surgery, Somerset NHS Foundation Trust, Taunton, TA1 5DA, UK
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Brown, WendyDepartment of Surgery, Monash University, Melbourne, 3800, Australia
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Avery, KerryNational Institute for Health Research Bristol Biomedical Research Centre, University of Bristol, Bristol, BS8 2BN, UK; Bristol Centre for Surgical Research, University of Bristol, Bristol, BS8 2PS, UK
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National Institute for Health Research Bristol Biomedical Research Centre, University of Bristol, Bristol, BS8 2BN, UK; Bristol Centre for Surgical Research, University of Bristol, Bristol, BS8 2PS, UK; Obesity and Bariatric Surgery Service, North Bristol NHS Trust, Bristol, BS10 5NB, UKNational Institute for Health Research Bristol Biomedical Research Centre, University of Bristol, Bristol, BS8 2BN, UK; Bristol Centre for Surgical Research, University of Bristol, Bristol, BS8 2PS, UK
(creator_code:org_t)
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In:Obesity Surgery: Springer33:5, s. 1463-14750960-89231708-0428
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