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PCBaSe Sweden : a register-based resource for prostate cancer research

Hagel, Eva (author)
Umeå universitet,Urologi och andrologi
Garmo, Hans (author)
Bill-Axelson, Anna (author)
Karolinska Institutet,Uppsala universitet,Urologkirurgi
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Bratt, Ola (author)
Lund University,Lunds universitet,Urologi,Forskargrupper vid Lunds universitet,Urology,Lund University Research Groups
Johansson, Jan-Erik (author)
Uppsala universitet,Örebro universitet,Hälsoakademin,Urologkirurgi
Adolfsson, Jan (author)
Karolinska Institutet
Lambe, Mats (author)
Karolinska Institutet
Stattin, Pär (author)
Umeå universitet,Urologi och andrologi
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 (creator_code:org_t)
2009-11-18
2009
English.
In: Scandinavian Journal of Urology and Nephrology. - London : Taylor & Francis. - 0036-5599 .- 1651-2065. ; 43:5, s. 342-9
  • Journal article (peer-reviewed)
Abstract Subject headings
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  • Objective. To construct a database for clinical epidemiological prostate cancer research based on linkages between the National Prostate Cancer Register (NPCR) of Sweden, a population-based, nationwide quality database, and other nationwide registries. Material and methods. By use of the individually unique Swedish Personal Identity Number, the NPCR was linked to the Swedish Cancer Registry, the Cause of Death Register, the Prescribed Drug Register, the National Patient Register and the Acute Myocardial Infarction Register, all held at the Centre for Epidemiology at the National Board of Health and Welfare, and the Register of the Total Population, the Longitudinal Integration Database for Health Insurance and Labor Market Studies and the Multi-Generation Register, held at Statistics Sweden, and to the Swedish Hernia Register. Results. Record linkages between the NPCR and the Swedish Cancer Registry, the Cause of Death Register and the Register of the Total Population generated a database, named PCBaSe Sweden, including 80 079 prostate cancer cases, diagnosed between 1 January 1996 and 31 December 2006. Record linkage between PCBaSe Sweden and the Prescribed Drug Register generated 59 721 unique matches and linkage to the Acute Myocardial Infarction Register resulted in 11 459 matches. Conclusion. PCBaSe Sweden is a newly created and unique database with over 80 000 cases of prostate cancer with comprehensive data on inpatient and outpatient care, patterns of use of prescribed drugs and socioeconomic and familial factors. Many topics in clinical prostate cancer epidemiology can be investigated. using PCBaSe Sweden.

Subject headings

MEDICIN OCH HÄLSOVETENSKAP  -- Klinisk medicin -- Cancer och onkologi (hsv//swe)
MEDICAL AND HEALTH SCIENCES  -- Clinical Medicine -- Cancer and Oncology (hsv//eng)
MEDICIN OCH HÄLSOVETENSKAP  -- Klinisk medicin -- Urologi och njurmedicin (hsv//swe)
MEDICAL AND HEALTH SCIENCES  -- Clinical Medicine -- Urology and Nephrology (hsv//eng)

Keyword

MEDICINE
MEDICIN
Oncology
Onkologi
Onkologi
Oncology
record linkage
prostate neoplasm
quality register
personal identity
number

Publication and Content Type

ref (subject category)
art (subject category)

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