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CHARGE syndrome :
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Anderzén-Carlsson, Agneta,1966-Örebro universitet,Institutionen för hälsovetenskap och medicin,Region Örebro län,Audiological Research Centre, Region Örebro County, Örebro University Hospital, Örebro, Sweden; The Swedish Institute for Disability Research (SIDR), Örebro, Sweden
(author)
CHARGE syndrome : a five case study of the syndrome characteristics and health care consumption during the first year in life
- Article/chapterEnglish2015
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Elsevier,2015
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printrdacarrier
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LIBRIS-ID:oai:DiVA.org:oru-41208
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https://urn.kb.se/resolve?urn=urn:nbn:se:oru:diva-41208URI
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https://doi.org/10.1016/j.pedn.2014.09.008DOI
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Language:English
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Summary in:English
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Subject category:ref swepub-contenttype
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Subject category:art swepub-publicationtype
Notes
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Funding Agencies:National Resource Center for DeafblindnessStiftelsen Mo GardNote: The Swedish Institute for Disability Research (SIDR). SIDR was established in 2000 as a joint initiative by Linköping University and Örebro University and in 2012 the University of Jönköping
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CHARGE syndrome is characterized by impaired vision and hearing, as well as physical malformations. The aim of this study is to describe the characteristics of the malformations and the health care consumption during the first year, in a Swedish sample having CHARGE syndrome. Three of the five individuals fulfilled all the traditional criteria for a clinical diagnosis of CHARGE syndrome. All infants were hospitalized from 26 to 230. days, subjected to 10-34 different diagnostic procedures and prescribed 10-28 different medications during their first year. Coordinated and individually adapted care is urged, as these infants and their families are in of need multiple health care contacts.
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Örebro universitetInstitutionen för hälsovetenskap och medicin
(creator_code:org_t)
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In:Journal of Pediatric Nursing: Elsevier30:1, s. 6-160882-59631532-8449
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