How a family is affected when a child is born with anorectal malformation : Interviews with three patients and their parents

• Increased knowledge about families with a malformed child affects nursing practice. This study illuminates the experiences and psychosocial situation of 3 patients with imperforate anus and their parents. A qualitative method has been used to analyze the data. We found that the parents’ experiences of suffering were overwhelming and that the 3 patients had been depressed during periods. The patients were not as open as their parents; we need to devise better tools to explore and understand children’s experiences. The children and their parents need special care and an opportunity to express their anxieties.

Nyckelord

imperforate anus

parents’ experiences

children

Publikations- och innehållstyp

ref (ämneskategori)

art (ämneskategori)