End of life of patients treated with haemodialysis as narrated by their close relatives

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Axelsson, LenaSophiahemmet Högskola,Sophiahemmet högskola; Karolinska institutet (author)

End of life of patients treated with haemodialysis as narrated by their close relatives

Article/chapterEnglish2015

Publisher, publication year, extent ...

2015-03-09
Wiley,2015
electronicrdacarrier

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LIBRIS-ID:oai:DiVA.org:shh-1814
https://urn.kb.se/resolve?urn=urn:nbn:se:shh:diva-1814URI
https://doi.org/10.1111/scs.12209DOI
http://kipublications.ki.se/Default.aspx?queryparsed=id:132836055URI
https://urn.kb.se/resolve?urn=urn:nbn:se:esh:diva-7128URI

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Language:English
Summary in:English

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SwePubSwePub

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Subject category:ref swepub-contenttype
Subject category:art swepub-publicationtype

Notes

AIM: The study aimed to describe end of life for patients treated with maintenance haemodialysis as narrated by their close relatives.INTRODUCTION: Many patients undergoing haemodialysis are older, have several comorbidities and underestimated symptoms and are in their last year of life. To improve care, we need to know more about their end-of-life situation.DESIGN: Qualitative and descriptive.METHODS: Qualitative retrospective interviews were conducted with 14 close relatives of deceased haemodialysis patients (3-13 months after death). Data were analysed using qualitative content analysis. The study is ethically approved.FINDINGS: In the last months, a gradual deterioration in health with acute episodes necessitating hospital admissions was described. This involved diminishing living space and expressions of dejection, but also of joy. Three patterns emerged in the last weeks: uncertain anticipation of death as life fades away; awaiting death after haemodialysis withdrawal; and sudden but not unexpected death following intensive care. Findings show complexities of decisions on haemodialysis withdrawal.CONCLUSIONS: Different end-of-life patterns all involved increasingly complex care needs and existential issues. Findings show a need for earlier care planning. The identification of organisational factors to facilitate continuity and whole person care to meet these patients' specific care needs with their complex symptom burdens and comorbidities is needed. Findings indicate the need for integration of a palliative care approach in the treatment of patients in haemodialysis care.

Subject headings and genre

MEDICIN OCH HÄLSOVETENSKAP Hälsovetenskap Omvårdnad hsv//swe
MEDICAL AND HEALTH SCIENCES Health Sciences Nursing hsv//eng
End of life
End-stage renal disease
Haemodialysis
Qualitative content analysis
Qualitative interviews
Retrospective interviews

Added entries (persons, corporate bodies, meetings, titles ...)

Klang, BirgittaKarolinska institutet (author)
Lundh Hagelin, CarinaKarolinska Institutet,Sophiahemmet Högskola,Sophiahemmet högskola; Karolinska institutet; Stiftelsen Stockholms sjukhem(Swepub:esh)carlun (author)
Jacobson, Stefan HKarolinska Institutet,Karolinska institutet; Danderyds sjukhus (author)
Andreassen Gleissman, SisselSophiahemmet Högskola,Sophiahemmet högskola; Karolinska institutet; Danderyds sjukhus(Swepub:shh)sisselan (author)
Sophiahemmet HögskolaSophiahemmet högskola; Karolinska institutet (creator_code:org_t)

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In:Scandinavian Journal of Caring Sciences: Wiley29:4, s. 776-7840283-93181471-6712

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MEDICAL AND HEALTH SCIENCES: MEDICAL AND HEAL ...; and Health Sciences; and Nursing

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