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- Bergkvist, KarinSophiahemmet University,Sophiahemmet Högskola (author)
Support in the context of allogeneic hematopoietic stem cell transplantation : The perspectives of family caregivers
- Article/chapterEnglish2020
Publisher, publication year, extent ...
- 2020
- Elsevier BV,2020
- printrdacarrier
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- LIBRIS-ID:oai:DiVA.org:shh-3715
- https://urn.kb.se/resolve?urn=urn:nbn:se:shh:diva-3715URI
- https://doi.org/10.1016/j.ejon.2020.101740DOI
- http://kipublications.ki.se/Default.aspx?queryparsed=id:144051021URI
- https://lup.lub.lu.se/record/92e5d0b7-ff4c-4b15-a5d0-013db2c4a30cURI
Supplementary language notes
- Language:English
- Summary in:English
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- SwePubSwePub
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Notes
- BACKGROUND AND AIM: Family caregivers are often involved in helping recipients during allogeneic hematopoietic stem cell transplantation (allo-HSCT). Although the distress that often arises along the trajectory is evident to family caregivers, research on their perceptions of providing and receiving support is limited. The aim of this study was to explore family caregivers' experiences of providing and receiving support during allo-HSCT.METHOD: Data were collected through semi-structured interviews with fourteen family caregivers 16 weeks after the recipient's allo-HSCT. Inductive qualitative content analysis was used to analyse the data.RESULTS: The analysis revealed four generic categories that focus on prerequisites for family caregivers' ability to provide support: Individual characteristics influence the ability to be supportive, Social context influences the ability to be supportive, Medical information provides knowledge and a sense of participation and Interaction with the healthcare organization provides a sense of participation. These prerequisites are linked in the fifth generic category: Family caregivers' support is multifaceted and dependent on the recipient's health.CONCLUSIONS: Family caregivers' risk of experiencing a stronger sense of uncertainty and lack of participation is higher in the absence of the above-mentioned prerequisites. Professional support is thus required, which implies that the healthcare organization is responsible for identifying the needs of each family caregiver and delivering individualized support.
Subject headings and genre
- MEDICIN OCH HÄLSOVETENSKAP Hälsovetenskap Omvårdnad hsv//swe
- MEDICAL AND HEALTH SCIENCES Health Sciences Nursing hsv//eng
- MEDICIN OCH HÄLSOVETENSKAP Hälsovetenskap Hälso- och sjukvårdsorganisation, hälsopolitik och hälsoekonomi hsv//swe
- MEDICAL AND HEALTH SCIENCES Health Sciences Health Care Service and Management, Health Policy and Services and Health Economy hsv//eng
- Allogeneic hematopoietic stem cell transplantation
- Family caregivers
- Support
- Allogeneic hematopoietic stem cell transplantation
- Family caregivers
- Support
Added entries (persons, corporate bodies, meetings, titles ...)
- Winterling, JeanetteKarolinska Institute,Karolinska Institutet,Karolinska University Hospital (author)
- Kisch, Annika M.Lund University,Lunds universitet,Vård i högteknologisk miljö,Forskargrupper vid Lunds universitet,Care in high technological environments,Lund University Research Groups,Skåne University Hospital(Swepub:lu)an8873ma (author)
- Sophiahemmet UniversitySophiahemmet Högskola (creator_code:org_t)
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- In:European Journal of Oncology Nursing: Elsevier BV461462-38891532-2122
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