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Optimizing access t...
Optimizing access to and use of formal dementia care : Qualitative findings from the European Actifcare study
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- Kerpershoek, Liselot (author)
- Alzheimer Centre Limburg, Maastricht University, Maastricht, Netherlands
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- Wolfs, Claire (author)
- Alzheimer Centre Limburg, Maastricht University, Maastricht, Netherlands
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- Verhey, Frans (author)
- Alzheimer Centre Limburg, Maastricht University, Maastricht, Netherlands
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- Jelley, Hannah (author)
- Bangor University, Bangor, UK
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- Woods, Bob (author)
- Bangor University, Bangor, UK
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- Bieber, Anja (author)
- Martin-Luther University Halle-Wittenberg, Halle, Germany
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- Bartoszek, Gabriele (author)
- Martin-Luther University Halle-Wittenberg, Halle, Germany
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- Stephan, Astrid (author)
- Martin-Luther University Halle-Wittenberg, Halle, Germany
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- Selbaek, Geir (author)
- Norwegian National Advisory Unit on Ageing and Health, Vestfold Hospital, Tonsberg, Norway; Centre for Old Age Psychiatry Research, Innlandet Hospital Trust, Ottestad, Norway;Faculty of Medicine, University of Oslo, Oslo, Norway
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- Eriksen, Siren (author)
- Norwegian National Advisory Unit on Ageing and Health, Vestfold Hospital, Tonsberg, Norway
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- Sjölund, Britt-Marie, 1958- (author)
- Högskolan i Gävle,Karolinska Institutet,Stockholms universitet,Centrum för forskning om äldre och åldrande (ARC), (tills m KI),University of Gävle, Sweden,Med-Vårdvetenskap,Aging Research Center (ARC), Department of Neurobiology, Care Sciences and Society (NVS), Karolinska Institutet and Stockholm University, Stockholm, Sweden
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- Hopper, Louise (author)
- School of Nursing and Human Sciences, Dublin City University, Dublin, Ireland
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- Irving, Kate (author)
- School of Nursing and Human Sciences, Dublin City University, Dublin, Ireland
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- Marques, Maria J. (author)
- CEDOC, Nova Medical School, Faculdade de Ciências Médicas, Universidade Nova de Lisboa, Lisbon, Portugal
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- Goncalves-Pereira, Manuel (author)
- CEDOC, Nova Medical School, Faculdade de Ciências Médicas, Universidade Nova de Lisboa, Lisbon, Portugal
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Portolani, Daniel (author)
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- Zanetti, Orazio (author)
- IRCCS Istituto Centro San Giovanni di Dio Fatebenefratelli, Brescia, Italy
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- Vugt, Marjolein (author)
- Alzheimer Centre Limburg, Maastricht University, Maastricht, Netherlands
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(creator_code:org_t)
- 2019-07-10
- 2019
- English.
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In: Health & Social Care in the Community. - : Hindawi Limited. - 0966-0410 .- 1365-2524. ; 27:5, s. e814-e823
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Abstract
Subject headings
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- This paper reports on qualitative data from the Actifcare study investigating experiences, attitudes, barriers and facilitators concerning access to and use of formal care. A total of 85 semi-structured in-depth interviews were conducted in eight European countries. Results were analysed with a deductive content analysis, first within country and then integrated in a cross-national analysis. Overall, analysis of the in-depth interviews revealed two major themes with five subcategories. The results can be summarised in an optimal pathway for access to dementia care. This pathway includes fixed factors such as disease-related factors and system-related factors. In addition there are personal factors that are subject to change such as attitudes towards care. An important finding consisted of the necessity of having sufficient information about the disease and available care and having a key contact person to guide you through the process of finding suitable care while monitoring your needs. In addition, it is important to involve your social network as they can take on care-giving tasks. It is helpful to have a diagnosis (in most countries). Concerning decision-making, the person closest to the person with dementia is in the majority of cases the one who makes the ultimate decision to access and use services and he/she should therefore be supported in this process. These results provide insight into the factors that influence the pathway to formal care use and help professionals to enhance access to formal dementia care by focusing on factors that can be modified.
Subject headings
- MEDICIN OCH HÄLSOVETENSKAP -- Hälsovetenskap -- Folkhälsovetenskap, global hälsa, socialmedicin och epidemiologi (hsv//swe)
- MEDICAL AND HEALTH SCIENCES -- Health Sciences -- Public Health, Global Health, Social Medicine and Epidemiology (hsv//eng)
- SAMHÄLLSVETENSKAP -- Sociologi (hsv//swe)
- SOCIAL SCIENCES -- Sociology (hsv//eng)
- MEDICIN OCH HÄLSOVETENSKAP -- Annan medicin och hälsovetenskap (hsv//swe)
- MEDICAL AND HEALTH SCIENCES -- Other Medical and Health Sciences (hsv//eng)
Keyword
- access to care
- dementia
- in-depth interviews
- informal care
- service use
- Health-Promoting Work
Publication and Content Type
- ref (subject category)
- art (subject category)
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- By the author/editor
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Kerpershoek, Lis ...
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Wolfs, Claire
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Verhey, Frans
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Jelley, Hannah
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Woods, Bob
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Bieber, Anja
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show more...
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Bartoszek, Gabri ...
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Stephan, Astrid
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Selbaek, Geir
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Eriksen, Siren
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Sjölund, Britt-M ...
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Hopper, Louise
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Irving, Kate
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Marques, Maria J ...
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Goncalves-Pereir ...
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Portolani, Danie ...
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Zanetti, Orazio
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Vugt, Marjolein
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- About the subject
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- MEDICAL AND HEALTH SCIENCES
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MEDICAL AND HEAL ...
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and Health Sciences
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and Public Health Gl ...
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- SOCIAL SCIENCES
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SOCIAL SCIENCES
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and Sociology
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- MEDICAL AND HEALTH SCIENCES
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MEDICAL AND HEAL ...
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and Other Medical an ...
- Articles in the publication
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Health & Social ...
- By the university
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Stockholm University
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Karolinska Institutet
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University of Gävle