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ReCOV : recovery and rehabilitation during and after COVID-19-a study protocol of a longitudinal observational study on patients, next of kin and health care staff

Rydwik, E. (author)
Karolinska Institutet
Anmyr, L. (author)
Karolinska Institutet
Regardt, M. (author)
Karolinska Institutet
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McAllister, A. (author)
Karolinska Institutet
Zarenoe, R. (author)
Åkerman, E. (author)
Karolinska Institutet
Orrevall, Y. (author)
Karolinska Institutet
Bragesjö, M. (author)
Karolinska Institutet
Dahl, O. (author)
Karolinska Institutet
Kemani, Mike K. (author)
Stockholms universitet,Stressforskningsinstitutet,Karolinska University Hospital, Sweden
Nordstrand, L. (author)
Ekman, U. (author)
Karolinska Institutet
Holmström, L. (author)
Karolinska Institutet
Nygren-Bonnier, M. (author)
Karolinska Institutet
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 (creator_code:org_t)
2021-06-30
2021
English.
In: BMC Sports Science, Medicine and Rehabilitation. - : Springer Science and Business Media LLC. - 2052-1847. ; 13:1
  • Journal article (peer-reviewed)
Abstract Subject headings
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  • Background: The knowledge of the long-term consequences of covid-19 is limited. In patients, symptoms such as fatigue, decreased physical, psychological, and cognitive function, and nutritional problems have been reported. How the disease has affected next of kin, as well as staff involved in the care of patients with covid-19, is also largely unknown. The overall aim of this study is therefore three-fold: (1) to describe and evaluate predictors of patient recovery, the type of rehabilitation received and patients’ experiences of specialized rehabilitation following COVID-19 infection; (2) to study how next of kin experienced the hospital care of their relative and their experiences of the psychosocial support they received as well as their psychological wellbeing; (3) to describe experiences of caring for patients with COVID-19 and evaluate psychological wellbeing, coping mechanisms and predictors for development of psychological distress over time in health care staff.Methods: This observational longitudinal study consists of three cohorts; patients, next of kin, and health care staff. The assessments for the patients consist of physical tests (lung function, muscle strength, physical capacity) and questionnaires (communication and swallowing, nutritional status, hearing, activities of daily living, physical activity, fatigue, cognition) longitudinally at 3, 6 and 12 months. Patient records auditing (care, rehabilitation) will be done retrospectively at 12 months. Patients (3, 6 and 12 months), next of kin (6 months) and health care staff (baseline, 3, 6, 9 and 12 months) will receive questionnaires regarding, health-related quality of life, depression, anxiety, sleeping disorders, and post-traumatic stress. Staff will also answer questionnaires about burnout and coping strategies. Interviews will be conducted in all three cohorts.Discussion: This study will be able to answer different research questions from a quantitative and qualitative perspective, by describing and evaluating long-term consequences and their associations with recovery, as well as exploring patients’, next of kins’ and staffs’ views and experiences of the disease and its consequences. This will form a base for a deeper and better understanding of the consequences of the disease from different perspectives as well as helping the society to better prepare for a future pandemic.

Subject headings

MEDICIN OCH HÄLSOVETENSKAP  -- Hälsovetenskap -- Omvårdnad (hsv//swe)
MEDICAL AND HEALTH SCIENCES  -- Health Sciences -- Nursing (hsv//eng)

Keyword

Infection
Physical function
Well-being

Publication and Content Type

ref (subject category)
art (subject category)

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