Key components of person-centered care for people with dementia: A systematic review of interventions to design a patient preference study

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Mohr, WiebkeGerman Center for Neurodegenerative Diseases (DZNE), Site Rostock/Greifswald, Greifswald, Germany (author)

Key components of person-centered care for people with dementia : A systematic review of interventions to design a patient preference study

Article/chapterEnglish2021

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2022-02
Alzheimer's Association,2021
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LIBRIS-ID:oai:DiVA.org:umu-192523
https://urn.kb.se/resolve?urn=urn:nbn:se:umu:diva-192523URI
https://doi.org/10.1002/alz.052134DOI

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Language:English
Summary in:English

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Subject category:ref swepub-contenttype
Subject category:for swepub-publicationtype

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BACKGROUND: To provide Person-Centered Care (PCC) for People with Dementia (PwD), patient's stated preferences must be known. Data about stated care-preferences among PwD are limited. This study aimed to identify key components of PCC for PwD by a systematic review of PCC-interventions, to inform the construction of a decision model for PwD-preference elicitation.METHOD: A protocol was registered with PROSPERO (CRD42021225084). A search of the concepts Dementia, Person-Centered Care, and Intervention was performed in PubMed, EMBASE, and Web of Science in Nov2020. Study selection was based on 2-stage screening against eligibility criteria, limited to randomized controlled trials (RCT) and nonrandomized controlled study (NRS) designs. Risk of bias was assessed with version 2 of the Cochrane risk-of-bias tool for randomized trials (RoB2) and the Newcastle-Ottawa Scale (NOS) for nonrandomized studies. Information about authors, interventions, and outcomes were extracted and entered into an "Effects Table". The identified PCC-interventions were thus synthesized into intervention categories to form key components of PCC.RESULT: Searches identified 1781 records. 19 studies (15 RCT, 4 NRS) were included after screening. The quality of the studies varied between low to moderate. The individual interventions covered a wide range of non-pharmacological, psychosocial offers, oftentimes bundled in multi-component intervention-sets. Nine intervention categories, i.e. key components of PCC to inform the construction of a decision model for PwD-preference elicitation, emerged from data synthesis: sensory enhancement/relaxation, social contact, cognitive training, validation and reminiscence, physical activities, environmental adjustments, caregiver training and support, care organization and daily living assistance. Effect measures included i.a. agitation, quality of life, antipsychotic use, depression, neuropsychiatric symptoms and behavior, with mixed results concerning the effect of the PCC interventions. All studies were conducted in nursery home or hospital settings.CONCLUSION: Nine intervention categories as key components of PCC to inform the construction of a decision model for PwD-preference elicitation could be identified. As the findings were limited to nursery home and hospital settings, community-dwelling PwD and the primary care-setting should find greater consideration for future investigations on PCC interventions and patient preference studies.

Subject headings and genre

MEDICIN OCH HÄLSOVETENSKAP Hälsovetenskap Omvårdnad hsv//swe
MEDICAL AND HEALTH SCIENCES Health Sciences Nursing hsv//eng

Added entries (persons, corporate bodies, meetings, titles ...)

Raedke, AnikaDeutsches Zentrum für Neurodegenerative Erkrankungen, Greifswald, Germany (author)
Afi, AdelGerman Center for Neurodegenerative Diseases e.V. (DZNE), Site Rostock/Greifswald, Greifswald, Germany (author)
Edvardsson, DavidUmeå universitet,Institutionen för omvårdnad,School of Nursing & Midwifery, College of Science, Health and Engineering, La Trobe University, Heidelberg, VIC, Australia(Swepub:umu)dadlut99 (author)
Mühlichen, FrankaGerman Center for Neurodegenerative Diseases (DZNE), Site Rostock/Greifswald, Greifswald, Germany (author)
Platen, MoritzGerman Center for Neurodegenerative Diseases e.V. (DZNE), Site Rostock/Greifswald, Greifswald, Germany (author)
Roes, MartinaGerman Center for Neurodegenerative Diseases e.V. (DZNE), Site Witten, Witten, Germany (author)
Michalowsky, BernhardGerman Center for Neurodegenerative Diseases (DZNE), Site Rostock/Greifswald, Greifswald, Germany (author)
Hoffmann, WolfgangGerman Center for Neurodegenerative Diseases (DZNE), Site Rostock/Greifswald, Greifswald, Germany; Greifswald, Institute for Community Medicine / University of Greifswald, Germany (author)
German Center for Neurodegenerative Diseases (DZNE), Site Rostock/Greifswald, Greifswald, GermanyDeutsches Zentrum für Neurodegenerative Erkrankungen, Greifswald, Germany (creator_code:org_t)

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In:Alzheimer's & Dementia: Alzheimer's Association17:S7, s. e052134-1552-52601552-5279

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