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  • Lu, Chun-WeiDepartment of Pediatrics, , National Taiwan University Hospital, , Taipei (TWN) (author)

Heart Failure and Patient-Reported Outcomes in Adults With Congenital Heart Disease from 15 Countries

  • Article/chapterEnglish2022

Publisher, publication year, extent ...

  • American Heart Association,2022
  • electronicrdacarrier

Numbers

  • LIBRIS-ID:oai:DiVA.org:umu-194837
  • https://urn.kb.se/resolve?urn=urn:nbn:se:umu:diva-194837URI
  • https://doi.org/10.1161/JAHA.121.024993DOI
  • https://urn.kb.se/resolve?urn=urn:nbn:se:hv:diva-18398URI

Supplementary language notes

  • Language:English
  • Summary in:English

Part of subdatabase

Classification

  • Subject category:ref swepub-contenttype
  • Subject category:art swepub-publicationtype

Notes

  • This work was supported by the Research Fund—KU Leuven (Leuven, Belgium) through grant OT/11/033 to K.L. and P.M.; by the Swedish Heart‐Lung Foundation (Sweden) through grant number 20130607 to M.D.; by the University of Gothenburg Centre for Person‐centred Care (Gothenburg, Sweden) to M.D. and P.M.; and by the Cardiac Children's Foundation (Taiwan) through grant CCF2013_02 to H.L.Y. Furthermore, this work was endorsed by and conducted in collaboration with the International Society for Adult Congenital Heart Disease.
  • Background: Heart failure (HF) is the leading cause of mortality and associated with significant morbidity in adults with congenital heart disease. We sought to assess the association between HF and patient-report outcomes in adults with congenital heart disease.Methods and Results: As part of the APPROACH-IS (Assessment of Patterns of Patient-Reported Outcomes in Adults with Congenital Heart disease-International Study), we collected data on HF status and patient-reported outcomes in 3959 patients from 15 countries across 5 continents. Patient-report outcomes were: perceived health status (12-item Short Form Health Survey), quality of life (Linear Analogue Scale and Satisfaction with Life Scale), sense of coherence-13, psychological distress (Hospital Anxiety and Depression Scale), and illness perception (Brief Illness Perception Questionnaire). In this sample, 137 (3.5%) had HF at the time of investigation, 298 (7.5%) had a history of HF, and 3524 (89.0%) had no current or past episode of HF. Patients with current or past HF were older and had a higher prevalence of complex congenital heart disease, arrhythmias, implantable cardioverter-defibrillators, other clinical comorbidities, and mood disorders than those who never had HF. Patients with HF had worse physical functioning, mental functioning, quality of life, satisfaction with life, sense of coherence, depressive symptoms, and illness perception scores. Magnitudes of differences were large for physical functioning and illness perception and moderate for mental functioning, quality of life, and depressive symptoms.Conclusions: HF in adults with congenital heart disease is associated with poorer patient-reported outcomes, with large effect sizes for physical functioning and illness perception.

Subject headings and genre

Added entries (persons, corporate bodies, meetings, titles ...)

  • Wang, Jou-KouDepartment of Pediatrics, , National Taiwan University Hospital, , Taipei (TWN)Department of Nursing, , National Taiwan University Hospital, , Taipe (author)
  • Yang, Hsiao-LingDepartment of Nursing, , National Taiwan University Hospital, , Taipei (TWN) (author)
  • Kovacs, Adrienne H.Toronto Adult Congenital Heart Disease Program, Peter Munk Cardiac Center, University Health Network, University of Toronto, , Toronto, (CAN) (author)
  • Luyckx, KoenKU Leuven School Psychology and Development in Context, , KU Leuven, , Leuven (BEL) (author)
  • Ruperti-Repilado, Francisco JavierCenter for Congenital Heart Disease , Department of Cardiology, , Inselspital ‐ Bern University Hospital, University of Bern, , Bern (CHE) (author)
  • Van De Bruaene, AlexanderKU Leuven Department of Cardiovascular Sciences, , KU Leuven, , Leuven (BEL) (author)
  • Enomoto, JunkoDepartment of Education, , Toyo University, , Tokyo, (JPN) (author)
  • Sluman, Maayke A.Coronel Institute of Occupational Health, Amsterdam UMC, University of Amsterdam, , Amsterdam, (NLD) (author)
  • Jackson, Jamie L.Center for Biobehavioral Health, , Nationwide Children’s Hospital, , Columbus, (USA) (author)
  • Khairy, PaulAdult Congenital Heart Center, Montreal Heart Institute, Université de Montréal, , Montreal, (CAN) (author)
  • Cook, Stephen C.Indiana University Health Adult Congenital Heart Disease Program, , Indianapolis (USA) (author)
  • Chidambarathanu, ShanthiPediatric Cardiology, , Frontier Lifeline Hospital (Dr. K. M. Cherian Heart Foundation), , Chennai (IND) (author)
  • Alday, LuisDivision of Cardiology, , Hospital de Niños, , Córdoba (ARG) (author)
  • Oechslin, ErwinToronto Adult Congenital Heart Disease Program, Peter Munk Cardiac Center, University Health Network, University of Toronto (CAN) (author)
  • Eriksen, KatrineAdult Congenital Heart Disease Center, , Oslo University Hospital ‐ Rikshospitalet, , Oslo, (NOR) (author)
  • Dellborg, MikaelInstitute of Medicine, , The Sahlgrenska Academy at University of Gothenburg, , Gothenburg (SWE) (author)
  • Berghammer, Malin,1970-Högskolan Väst,Avdelningen för omvårdnad - avancerad nivå,Department of Paediatrics, , Queen Silvia Children’s Hospital, Sahlgrenska University Hospital, , Gothenburg (SWE),LOV(Swepub:hv)malber (author)
  • Johansson, BengtUmeå universitet,Avdelningen för medicin,Department of Public Health and Clinical Medicine, , Umeå University, , Umeå (SWE)(Swepub:umu)bejo0003 (author)
  • Mackie, Andrew S.Division of Cardiology, , Stollery Children’s Hospital, University of Alberta, , Edmonton (CAN) (author)
  • Menahem, SamuelMonash Heart, Monash Medical Centre, Monash University, , Melbourne (AUS) (author)
  • Caruana, MaryanneDepartment of Cardiology, , Mater Dei Hospital, , Birkirkara Bypass (MLT) (author)
  • Veldtman, GruschenAdult Congenital Heart Disease Center, Cincinnati Children's Hospital Medical Center, , Cincinnati, , OH (USA) (author)
  • Soufi, AlexandraDepartment of Cardiac Rehabilitation, , Médipôle Lyon‐Villeurbanne, , Lyon (FRA) (author)
  • Fernandes, Susan M.Adult Congenital Heart Program at Stanford, Lucile Packard Children’s Hospital and Stanford Health Care, , Palo Alto, , CA (USA) (author)
  • White, KamilaAdult Congenital Heart Disease Center, Washington University and Barnes Jewish Heart & Vascular Center, University of Missouri, , Saint Louis, , MO (USA) (author)
  • Callus, EdwardDepartment of Biomedical Sciences for Health, , University of Milan, , Milan (ITA) (author)
  • Kutty, ShelbyAdult Congenital Heart Disease Center University of Nebraska, Medical Center/Children’s Hospital and Medical Center, , Omaha, , NE Taussig Heart Center, Johns Hopkins School of Medicine, , Baltimore, , MD (USA) (author)
  • Apers, SilkeKU Leuven Department of Public Health and Primary Care, , KU Leuven, , Leuven (BEL) (author)
  • Moons, PhilipKU Leuven Department of Public Health and Primary Care, Kapucijnenvoer 35, Box 7001, B‐3000 Leuven, (BEL) (author)
  • Department of Pediatrics, , National Taiwan University Hospital, , Taipei (TWN)Department of Pediatrics, , National Taiwan University Hospital, , Taipei (TWN)Department of Nursing, , National Taiwan University Hospital, , Taipe (creator_code:org_t)

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  • In:Journal of the American Heart Association: American Heart Association11:92047-9980

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