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Issues and needs in...
Issues and needs in end-of-life decision making : An international modified Delphi study
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Raijmakers, Natasja J. H. (author)
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van Zuylen, Lia (author)
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Costantini, Massimo (author)
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Caraceni, Augusto (author)
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Clark, Jean B. (author)
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De Simone, Gustavo (author)
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- Lundquist, Gunilla (author)
- Umeå universitet,Onkologi
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Voltz, Raymond (author)
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Ellershaw, John E. (author)
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van der Heide, Agnes (author)
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(creator_code:org_t)
- 2011-10-03
- 2012
- English.
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In: Palliative Medicine. - : SAGE Publications. - 0269-2163 .- 1477-030X. ; 26:7, s. 947-953
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https://urn.kb.se/re...
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https://doi.org/10.1...
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Abstract
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- Background: end-of-life decision making is an important aspect of end-of-life care that can have a significant impact on the process of dying and patients' comfort in the last days of life. Aim: the aim of our study was to identify issues and considerations in end-of-life decision making, and needs for more evidence among palliative care experts, across countries and professions. Participants: 90 palliative care experts from nine countries participated in a modified Delphi study. Participants were asked to identify important issues and considerations in end-of-life decision making and to rate the need for more evidence. Results: experts mentioned 219 issues in end-of-life decision making related to the medical domain, 122 issues related to the patient wishes and 92 related to relatives' wishes, regardless of profession or country (p > 0.05). In accordance, more than 90% of the experts rated the comfort and wishes of the patient and the potential futility of treatment as important considerations in end-of-life decision making, although some variation was present. When asked about issues that are in need of more evidence, 87% mentioned appropriate indications for using sedatives and effects of artificial hydration at the end of life. A total of 83% mentioned adequate communication approaches. Conclusions: palliative care experts from different professions in different countries encounter similar issues in end-of-life decision making. Adequate communication about these issues is universally experienced as a challenge, which might benefit from increased knowledge. This shared experience enables and emphasizes the need for more international research.
Keyword
- decision making
- expert opinion
- research priorities
- palliative care
- terminal care
Publication and Content Type
- ref (subject category)
- art (subject category)
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- By the author/editor
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Raijmakers, Nata ...
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van Zuylen, Lia
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Costantini, Mass ...
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Caraceni, August ...
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Clark, Jean B.
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De Simone, Gusta ...
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show more...
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Lundquist, Gunil ...
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Voltz, Raymond
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Ellershaw, John ...
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van der Heide, A ...
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show less...
- Articles in the publication
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Palliative Medic ...
- By the university
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Umeå University