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Assessment of Healt...
Assessment of Health-Related Quality of Life and Patient Satisfaction in Children and Adolescents with Growth Hormone Deficiency or Idiopathic Short Stature - Part 1 : A Critical Evaluation of Available Tools
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Bruett, Anna Levke (author)
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Sandberg, David E. (author)
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- Chaplin, John, 1955 (author)
- Gothenburg University,Göteborgs universitet,Institutionen för kliniska vetenskaper,Institute of Clinical Sciences
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Wollmann, Hartmut (author)
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Noeker, Meinolf (author)
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- Koltowska-Häggström, Maria (author)
- Uppsala universitet,Institutionen för farmaci
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Bullinger, Monika (author)
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(creator_code:org_t)
- 2009-08-18
- 2009
- English.
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In: Hormone Research. - : S. Karger AG. - 0301-0163 .- 1423-0046. ; 72:2, s. 65-73
- Related links:
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https://www.karger.c...
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https://urn.kb.se/re...
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https://doi.org/10.1...
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https://gup.ub.gu.se...
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Abstract
Subject headings
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- The concept of health-related quality of life (HrQoL) reflects the subjective perception of health and includes aspects of well-being and functioning in physical, emotional, mental and social life domains. Nowadays, HrQoL has become a relevant treatment outcome from epidemiological and clinical perspectives and is also broadly employed in health economic analyses. To assess HrQoL generic as well as condition-specific instruments are used. The former are applicable to a wide range of health conditions and aim at measuring HrQoL across different conditions. The latter focus on capturing the impact of a specific disease. Although HrQoL research in adults is now well-advanced, there are still open questions regarding how to assess HrQoL in pediatric conditions, such as short stature. Eight generic (one chronic-generic) and seven condition-specific (one treatment-specific) instruments used in HrQoL research in short stature of youth are described. Additionally, this mini review identifies a need for further research and indicates potential directions.
Keyword
- Growth hormone deficiency
- Health-related quality of life
- Short stature
- idiopathic
- MEDICINE
- MEDICIN
Publication and Content Type
- ref (subject category)
- for (subject category)
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