Search: onr:"swepub:oai:DiVA.org:uu-182557" >
Medical registries ...
Medical registries represent vital patient interests and should not be dismantled by stricter regulation
-
- Hansson, Mats G (author)
- Uppsala universitet,Centrum för forsknings- och bioetik
-
- Simonsson, Bengt (author)
- Uppsala universitet,Hematologi
-
Feltelius, Nils (author)
-
show more...
-
- Forsberg, Joanna Stjernschantz (author)
- Uppsala universitet,Centrum för forsknings- och bioetik
-
Hasford, Joerg (author)
-
show less...
-
(creator_code:org_t)
- Elsevier BV, 2012
- 2012
- English.
-
In: Cancer Epidemiology. - : Elsevier BV. - 1877-7821 .- 1877-783X. ; 36:6, s. 575-578
- Related links:
-
https://urn.kb.se/re...
-
show more...
-
https://doi.org/10.1...
-
http://kipublication...
-
show less...
Abstract
Subject headings
Close
- BACKGROUND:Medical registries serve patients as beneficiaries of quality standards and new treatment opportunities. However, it has been argued that registries threaten patient privacy interests and should therefore be more strictly regulated.METHODS AND RESULTS:With the European Treatment and Outcome Study for Chronic Myeloid Leukemia as a concrete example we identify and describe how four of the major arguments put forward for stricter regulation fail.CONCLUSION:We conclude that medical registries should be promoted both for research and quality control, and that the regulatory bureaucratic burden should be reduced.
Publication and Content Type
- ref (subject category)
- art (subject category)
Find in a library
To the university's database