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  • Abacan, MaryAnnUniv Philippines Manila, Inst Human Genet, NIH, Manila, Philippines (author)

The Global State of the Genetic Counseling Profession

  • Article/chapterEnglish2019

Publisher, publication year, extent ...

  • 2018-10-05
  • NATURE PUBLISHING GROUP,2019
  • electronicrdacarrier

Numbers

  • LIBRIS-ID:oai:DiVA.org:uu-377106
  • https://urn.kb.se/resolve?urn=urn:nbn:se:uu:diva-377106URI
  • https://doi.org/10.1038/s41431-018-0252-xDOI
  • http://kipublications.ki.se/Default.aspx?queryparsed=id:140056922URI

Supplementary language notes

  • Language:English
  • Summary in:English

Part of subdatabase

Classification

  • Subject category:ref swepub-contenttype
  • Subject category:for swepub-publicationtype

Notes

  • The profession of genetic counseling (also called genetic counselling in many countries) began nearly 50 years ago in the United States, and has grown internationally in the past 30 years. While there have been many papers describing the profession of genetic counseling in individual countries or regions, data remains incomplete and has been published in diverse journals with limited access. As a result of the 2016 Transnational Alliance of Genetic Counseling (TAGC) conference in Barcelona, Spain, and the 2017 World Congress of Genetic Counselling in the UK, we endeavor to describe as fully as possible the global state of genetic counseling as a profession. We estimate that in 2018 there are nearly 7000 genetic counselors with the profession established or developing in no less than 28 countries.

Subject headings and genre

Added entries (persons, corporate bodies, meetings, titles ...)

  • Alsubaie, LamiaKASCH, King Abdulaziz Med City, Riyadh, Saudi Arabia (author)
  • Barlow-Stewart, KristineUniv Sydney, Fac Med & Hlth, Northern Clin Sch, Sydney, NSW, Australia (author)
  • Caanen, BeppyMaastricht Univ, Dept Clin Genet, Med Ctr, Maastricht, Netherlands (author)
  • Cordier, ChristopheKarolinska Institutet (author)
  • Courtney, ElizaNatl Canc Ctr, Div Med Oncol, Canc Genet Serv, Singapore, Singapore (author)
  • Davoine, EmelineLausanne Univ Hosp CHUV, Lausanne, Switzerland (author)
  • Edwards, JaniceUniv South Carolina, Genet Counseling Program, Transnat Alliance Genet Counseling, Columbia, SC USA (author)
  • Elackatt, Niby J.Cloudnine Hosp, Org Rare Dis India, Bangalore, Karnataka, India (author)
  • Gardiner, KateLifeLabs Genet, Toronto, ON, Canada (author)
  • Guan, YueEmory Univ, Rollins Sch Publ Hlth, Atlanta, GA USA (author)
  • Huang, Lian-HuaChina Med Univ, Sch Nursing, Taichung, Taiwan;Natl Taiwan Univ, Coll Med, Sch Nursing, Taipei, Taiwan (author)
  • Ingvoldstad, CharlottaUppsala universitet,Livsstil och rehabilitering vid långvarig sjukdom,Institutionen för kvinnors och barns hälsa,Karolinska Univ Hosp, Ctr Fetal Med & Clin Genet, Stockholm, Sweden;Karolinska Inst, Dept Clin Sci Intervent & Technol, Stockholm, Sweden(Swepub:uu)cin24816 (author)
  • Kejriwal, SahilUniv Washington, Inst Publ Hlth Genet, Seattle, WA USA (author)
  • Kim, Hyon J.Ajou Univ, Med Sch, Suwon, South Korea;Konyang Univ, Grad Sch, Suwon, South Korea (author)
  • Lambert, DeborahNatl Rare Dis Off, Dublin, Ireland (author)
  • Lantigua-Cruz, Paulina AraceliUniv Med Sci Havana, Havana, Cuba (author)
  • Lee, Juliana M. H.Natl Univ Malaysia, Kuala Lumpur, Malaysia (author)
  • Lodahl, MarianneCopenhagen Univ Hosp, Rigshosp, Dept Clin Genet, Copenhagen, Denmark (author)
  • Lunde, AshildUniv Bergen, Dept Global Publ Hlth & Primary Care, Bergen, Norway (author)
  • Macaulay, ShelleyUniv Witwatersrand, Fac Hlth Sci, Div Human Genet, Johannesburg, South Africa;Natl Hlth Lab Serv, Johannesburg, South Africa (author)
  • Macciocca, IvanVictorian Clin Genet Serv, Melbourne, Vic, Australia (author)
  • Margarit, SoniaClin Alemana Univ Desarrollo, Fac Med, Ctr Genet & Genom, Santiago, Chile (author)
  • Middleton, AnnaSoc & Eth Res Connecting Sci, Wellcome Genome Campus, Cambridge, England;Univ Cambridge, Fac Educ, Cambridge, England (author)
  • Moldovan, RamonaBabes Bolyai Univ, Dept Psychol, Cluj Napoca, Romania (author)
  • Ngeow, JoanneNatl Canc Ctr, Div Med Oncol, Canc Genet Serv, Singapore, Singapore (author)
  • Obregon-Tito, Alexandra J.Univ Arkansas Med Sci, Little Rock, AR 72205 USA (author)
  • Ormond, Kelly E.Stanford Univ, Sch Med, Dept Genet, Stanford, CA USA;Stanford Univ, Sch Med, Stanford Ctr Biomed Eth, Stanford, CA USA;Stanford Univ, Sch Med, 300 Pasteur Dr,MC 5208, Stanford, CA USA (author)
  • Paneque, MilenaUniv Porto, CGPP Ctr Predict & Prevent Genet, I3S, Porto, Portugal;Univ Porto, IBMC Inst Mol & Cell Biol, Porto, Portugal (author)
  • Powell, KarenCone Hlth Canc Ctr, Greensboro, NC USA (author)
  • Sanghavi, KunalJackson Lab Genom Med, Farmington, CT USA (author)
  • Scotcher, DianaManchester Univ Hosp NHS Fdn Trust, St Marys Hosp, Manchester Ctr Genom Med, Manchester, Lancs, England (author)
  • Scott, JennaUniv British Columbia, Vancouver, BC, Canada (author)
  • Juhe, Clara SerraUniv Pompeu Fabra, Dept Ciencies Expt & Salut, Inst Hosp Mar Invest Med, Ctr Invest Biomed Red Enfermedades Raras, Barcelona, Spain (author)
  • Shkedi-Rafid, ShiriHadassah Hebrew Univ, Med Ctr, Jerusalem, Israel (author)
  • Wessels, Tina-MarieUniv Cape Town, Div Human Genet, Cape Town, South Africa (author)
  • Yoon, Sook-YeeNatl Univ Malaysia, Kuala Lumpur, Malaysia;Canc Res, Subang Jaya, Malaysia;Univ Malaya, Med Ctr, Kuala Lumpur, Malaysia (author)
  • Wicklund, CatherineNorthwestern Univ, Feinberg Sch Med, Chicago, IL 60611 USA (author)
  • Univ Philippines Manila, Inst Human Genet, NIH, Manila, PhilippinesKASCH, King Abdulaziz Med City, Riyadh, Saudi Arabia (creator_code:org_t)

Related titles

  • In:European Journal of Human Genetics: NATURE PUBLISHING GROUP27:2, s. 183-1971018-48131476-5438

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