onr:"swepub:oai:DiVA.org:uu-393304"
Search: onr:"swepub:oai:DiVA.org:uu-393304" > Trust in genomic da...
- 1 of 1
- Previous record
- Next record
- To hitlist
Trust in genomic data sharing among members of the general public in the UK, USA, Canada and Australia
- Milne, Richard (author)
- Morley, Katherine I. (author)
-
- Howard, Heidi (author)
- Uppsala universitet,Centrum för forsknings- och bioetik
- show more...
- Nicol, Dianne (author)
- Critchley, Christine (author)
- Prainsack, Barbara (author)
- Vears, Danya (author)
- Smith, James (author)
- Steed, Claire (author)
- Bevan, Paul (author)
- Atutornu, Jerome (author)
- Farley, Lauren (author)
- Goodhand, Peter (author)
- Thorogood, Adrian (author)
- Kleiderman, Erika (author)
- Middleton, Anna (author)
- show less...
- (creator_code:org_t)
- 2019-09-17
- 2019
- English.
- In: Human Genetics. - : Springer Science and Business Media LLC. - 0340-6717 .- 1432-1203. ; 138:11-12, s. 1237-1246
- Journal article (peer-reviewed)
Abstract
Subject headings
Close
- Trust may be important in shaping public attitudes to genetics and intentions to participate in genomics research and big data initiatives. As such, we examined trust in data sharing among the general public. A cross-sectional online survey collected responses from representative publics in the USA, Canada, UK and Australia (n = 8967). Participants were most likely to trust their medical doctor and less likely to trust other entities named. Company researchers were least likely to be trusted. Low, Variable and High Trust classes were defined using latent class analysis. Members of the High Trust class were more likely to be under 50 years, male, with children, hold religious beliefs, have personal experience of genetics and be from the USA. They were most likely to be willing to donate their genomic and health data for clinical and research uses. The Low Trust class were less reassured than other respondents by laws preventing exploitation of donated information. Variation in trust, its relation to areas of concern about the use of genomic data and potential of legislation are considered. These findings have relevance for efforts to expand genomic medicine and data sharing beyond those with personal experience of genetics or research participants.
Subject headings
- SAMHÄLLSVETENSKAP -- Annan samhällsvetenskap -- Tvärvetenskapliga studier inom samhällsvetenskap (hsv//swe)
- SOCIAL SCIENCES -- Other Social Sciences -- Social Sciences Interdisciplinary (hsv//eng)
- MEDICIN OCH HÄLSOVETENSKAP -- Hälsovetenskap -- Medicinsk etik (hsv//swe)
- MEDICAL AND HEALTH SCIENCES -- Health Sciences -- Medical Ethics (hsv//eng)
Keyword
- Data sharing
- Donation
- Genome
- Public
- Survey
- Trust
Publication and Content Type
- ref (subject category)
- art (subject category)
Find in a library
- Human Genetics (Search for host publication in LIBRIS)
To the university's database
- 1 of 1
- Previous record
- Next record
- To hitlist
Find more in SwePub
- By the author/editor
- Milne, Richard
- Morley, Katherin ...
- Howard, Heidi
- Niemiec, Emilia, ...
- Nicol, Dianne
- Critchley, Chris ...
- show more...
- Prainsack, Barba ...
- Vears, Danya
- Smith, James
- Steed, Claire
- Bevan, Paul
- Atutornu, Jerome
- Farley, Lauren
- Goodhand, Peter
- Thorogood, Adria ...
- Kleiderman, Erik ...
- Middleton, Anna
- show less...
- About the subject
-
- SOCIAL SCIENCES
- SOCIAL SCIENCES
- and Other Social Sci ...
- and Social Sciences ...
-
- MEDICAL AND HEALTH SCIENCES
- MEDICAL AND HEAL ...
- and Health Sciences
- and Medical Ethics
- Articles in the publication
- Human Genetics
- By the university
- Uppsala University
Search outside SwePub
- Extend your search to:
- Google Book Search
- Google Scholar
Kungliga biblioteket hanterar dina personuppgifter i enlighet med EU:s dataskyddsförordning (2018), GDPR. Läs mer om hur det funkar här.
Så här hanterar KB dina uppgifter vid användning av denna tjänst.
- Copyright © LIBRIS - National Library Systems
- LIBRIS.kb.se
