Designing and Evaluating IT Applications for Informal Caregivers: Protocol for a Scoping Review

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Premanandan, ShwetaUppsala universitet,Institutionen för informatik och media (author)

Designing and Evaluating IT Applications for Informal Caregivers : Protocol for a Scoping Review

Article/chapterEnglish2023

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JMIR Publications,2023
electronicrdacarrier

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LIBRIS-ID:oai:DiVA.org:uu-507526
https://urn.kb.se/resolve?urn=urn:nbn:se:uu:diva-507526URI
https://doi.org/10.2196/47650DOI

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Language:English
Summary in:English

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Subject category:for swepub-publicationtype

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Background: A growing number of informal caregivers in many countries are important for effective functioning of health care in our society. Hence, they must receive the required support and services to continue providing care. IT applications can be used to support informal caregivers in their caregiving activities. However, evidence-informed guidelines for developing such IT applications and their evaluation are scarce. Hence, this scoping review can aid researchers and designers by providing design recommendations for IT apps for caregivers and potentially improve the design of IT applications for caregivers to meet their needs better.Objective: This study aims to describe the proposal for a scoping review of current practices and recommendations in designing and evaluating IT applications for informal caregivers. The scoping review will also discuss the opportunities and challenges in designing these IT applications.Methods: We will use a 5-step scoping review methodology to map relevant literature published as follows: (1) identify the research question, (2) identify relevant studies, (3) select relevant studies for review, (4) chart the data from selected literature, and (5) summarize and report results. A structured search will be conducted in PubMed, Scopus, IEEE digital library, Web of Science, and ACM Digital Library databases. In addition, hand searches of reference lists and keyword searches in Google Scholar will also be conducted. Inclusion criteria will be researched (journal and conference) articles focused on IT applications designed for use by informal caregivers and study type to be qualitative studies. Two reviewers will independently identify articles for review and extract data. Conflicts will be discussed, and a third reviewer will be consulted if a consensus cannot be reached. These data will be analyzed using thematic analysis.Results: The results from this scoping review will be presented in a narrative form, and additional data on study characteristics will be presented in diagrams or tabular format. Uppsala University first initiated this scoping review protocol in December 2021 as part of the European Union–funded project ENTWINE. This work was also supported by the Swedish Research Council and the Swedish Cancer Society. The results will be presented in August 2023 and will be disseminated through a report to the European Union and a peer-reviewed journal publication. In addition, the team plans to share its findings on various public platforms, including social media, blog posts, and relevant conferences and workshops.Conclusions: This is, to our knowledge, the first study to map the literature on the design and evaluation of IT applications for informal caregivers. The scoping review’s results will detail the requirements, design suggestions, and user preferences, as well as the usability criteria and features of IT applications for informal caregivers. A mapping of studies could inform the design and implementation of future IT applications for informal caregivers.

Subject headings and genre

NATURVETENSKAP Data- och informationsvetenskap Systemvetenskap, informationssystem och informatik hsv//swe
NATURAL SCIENCES Computer and Information Sciences Information Systems hsv//eng
burnout
caregiver
caregiving activity
design guidelines
design
development
digital health
digital resources
effectiveness
evaluation
health care services
implementation
informal caregiver
IT applications
long term care
mobile app
smartphone
usability
work-life balance

Added entries (persons, corporate bodies, meetings, titles ...)

Ahmad, AwaisUppsala universitet,Avdelningen Vi3,Bildanalys och människa-datorinteraktion(Swepub:uu)awaah403 (author)
Cajander, Åsa,Professor,1971-Uppsala universitet,Avdelningen Vi3,Bildanalys och människa-datorinteraktion(Swepub:uu)ascaj168 (author)
Ågerfalk, Pär,1971-Uppsala universitet,Institutionen för informatik och media(Swepub:uu)parag790 (author)
van Gemert-Pijnen, LisetteCentre for eHealth and Wellbeing Research, Department of Psychology, Health & Technology, University of Twente, Enschede, Netherlands (author)
Uppsala universitetInstitutionen för informatik och media (creator_code:org_t)

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