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Sökning: onr:"swepub:oai:DiVA.org:uu-524643" > Toward Shared Decis...

  • Sangeorzan, IrinaMyelopathy org, Cambridge, Cambridgeshire, United Kingdom. (författare)

Toward Shared Decision-Making in Degenerative Cervical Myelopathy : Protocol for a Mixed Methods Study

  • Artikel/kapitelEngelska2023

Förlag, utgivningsår, omfång ...

  • JMIR Publications,2023
  • electronicrdacarrier

Nummerbeteckningar

  • LIBRIS-ID:oai:DiVA.org:uu-524643
  • https://urn.kb.se/resolve?urn=urn:nbn:se:uu:diva-524643URI
  • https://doi.org/10.2196/46809DOI

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  • Språk:engelska
  • Sammanfattning på:engelska

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  • Ämneskategori:ref swepub-contenttype
  • Ämneskategori:art swepub-publicationtype

Anmärkningar

  • Background: Health care decisions are a critical determinant in the evolution of chronic illness. In shared decision-making (SDM), patients and clinicians work collaboratively to reach evidence-based health decisions that align with individual circumstances, values, and preferences. This personalized approach to clinical care likely has substantial benefits in the oversight of degenerative cervical myelopathy (DCM), a type of nontraumatic spinal cord injury. Its chronicity, heterogeneous clinical presentation, complex management, and variable disease course engenders an imperative for a patient-centric approach that accounts for each patient's unique needs and priorities. Inadequate patient knowledge about the condition and an incomplete understanding of the critical decision points that arise during the course of care currently hinder the fruitful participation of health care providers and patients in SDM. This study protocol presents the rationale for deploying SDM for DCM and delineates the groundwork required to achieve this.Objective: The study's primary outcome is the development of a comprehensive checklist to be implemented upon diagnosis that provides patients with essential information necessary to support their informed decision-making. This is known as a core information set (CIS). The secondary outcome is the creation of a detailed process map that provides a diagrammatic representation of the global care workflows and cognitive processes involved in DCM care. Characterizing the critical decision points along a patient's journey will allow for an effective exploration of SDM tools for routine clinical practice to enhance patient-centered care and improve clinical outcomes.Methods: Both CISs and process maps are coproduced iteratively through a collaborative process involving the input and consensus of key stakeholders. This will be facilitated by Myelopathy.org, a global DCM charity, through its Research Objectives and Common Data Elements for Degenerative Cervical Myelopathy community. To develop the CIS, a 3-round, web-based Delphi process will be used, starting with a baseline list of information items derived from a recent scoping review of educational materials in DCM, patient interviews, and a qualitative survey of professionals. A priori criteria for achieving consensus are specified. The process map will be developed iteratively using semistructured interviews with patients and professionals and validated by key stakeholders.Results: Recruitment for the Delphi consensus study began in April 2023. The pilot-testing of process map interview participants started simultaneously, with the formulation of an initial baseline map underway.Conclusions: This protocol marks the first attempt to provide a starting point for investigating SDM in DCM. The primary work centers on developing an educational tool for use in diagnosis to enable enhanced onward decision-making. The wider objective is to aid stakeholders in developing SDM tools by identifying critical decision junctures in DCM care. Through these approaches, we aim to provide an exhaustive launchpad for formulating SDM tools in the wider DCM community.

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Biuppslag (personer, institutioner, konferenser, titlar ...)

  • Antonacci, GraziaImperial Coll London, Appl Res Collaborat ARC Northwest London, Natl Inst Hlth Res NIHR, Dept Primary Care & Publ Hlth, London, England.;Imperial Coll London, Ctr Hlth Econ & Policy Innovat CHEPI, Business Sch, London, England. (författare)
  • Martin, AnneCanterbury Christ Church Univ, Fac Med Hlth & Social Care, Canterbury, England. (författare)
  • Grodzinski, BenUniv Hosp Sussex NHS Fdn Trust, Brighton, England. (författare)
  • Zipser, Carl M.Balgrist Univ Hosp, Spinal Cord Injury Ctr, Zurich, Switzerland. (författare)
  • Murphy, Rory K. J.St Josephs Hosp, Barrow Neurol Inst, Dept Neurosurg, Phoenix, AZ USA. (författare)
  • Andriopoulou, PanoraiaUniv Ioannina, Sch Social Sci, Psychol Dept, Ioannina, Greece. (författare)
  • Cook, Chad E.Duke Univ, Sch Med, Div Phys Therapy, Durham, CA USA.;Duke Univ, Sch Med, Dept Orthopaed, Durham, CA USA.;Duke Univ, Sch Med, Dept Populat Hlth Sci, Durham, CA USA.;Duke Univ, Duke Clin Res Inst, Durham, CA USA. (författare)
  • Anderson, David B.Univ Sydney, Fac Med & Hlth, Sydney Sch Hlth Sci, Sydney, Australia. (författare)
  • Guest, JamesUniv Miami, Miller Sch Med, Miami Project Cure Paralysis, Miami, FL USA. (författare)
  • Furlan, Julio C.Univ Toronto, Dept Med, Div Phys Med & Rehabil, Toronto, ON, Canada.;Univ Hlth Network, KITE Res Inst, Toronto Rehabil Inst, Toronto, ON, Canada. (författare)
  • Kotter, Mark R. N.Myelopathy org, Cambridge, Cambridgeshire, United Kingdom.;Univ Cambridge, Dept Clin Neurosurg, Cambridge, England. (författare)
  • Boerger, Timothy F.Med Coll Wisconsin, Dept Neurosurg, Milwaukee, WI USA. (författare)
  • Sadler, IwanMyelopathy org, Cambridge, Cambridgeshire, United Kingdom. (författare)
  • Roberts, Elizabeth A.Myelopathy org, Cambridge, Cambridgeshire, United Kingdom. (författare)
  • Wood, HelenMyelopathy org, Cambridge, Cambridgeshire, United Kingdom. (författare)
  • Fraser, ChristineUniv Stirling, Dept Hlth Sci, Stirling, Scotland.;Natl Hlth Serv Lothian, Physiotherapy Dept, Edinburgh, Scotland. (författare)
  • Fehlings, Michael G.Univ Toronto, Dept Surg, Div Neurosurg & Spine Program, Toronto, ON, Canada.;Univ Hlth Network, Toronto Western Hosp, Krembil Neurosci Ctr, Div Neurosurg, Toronto, ON, Canada. (författare)
  • Kumar, VishalPostgrad Inst Med Educ & Res, Dept Orthopaed, Chandigarh, India.;All India Inst Med Sci, Dept Orthopaed, Deoghar, India. (författare)
  • Jung, JosephineKings Coll London, Inst Psychiat Psychol & Neurosci, London, England.;Kings Coll Hosp London, Dept Neurosurg, London, England. (författare)
  • Milligan, JamesMcMaster Univ, Dept Family Med, Hamilton, ON, Canada. (författare)
  • Nouri, AriaUniv Geneva, Geneva Univ Hosp, Div Neurosurg, Geneva, Switzerland. (författare)
  • Martin, Allan R.Univ Calif Davis, Dept Neurol Surg, Davis, CA USA. (författare)
  • Blizzard, TammyMyelopathy org, Cambridge, Cambridgeshire, United Kingdom. (författare)
  • Vialle, Luiz RobertoPontif Catholic Univ Parana, Sch Med, Curitiba, Brazil. (författare)
  • Tetreault, LindsayNYU, Dept Neurol, New York, NY USA. (författare)
  • Kalsi-Ryan, SukhvinderUniv Hlth Network, KITE Res Inst, Toronto Rehabil Inst, Toronto, ON, Canada.;Univ Toronto, Dept Surg, Toronto, ON, Canada. (författare)
  • MacDowall, AnnaUppsala universitet,Ortopedi och Handkirurgi,Acad Hosp Uppsala, Dept Orthopaed, Uppsala, Sweden.(Swepub:uu)annma990 (författare)
  • Martin-Moore, EstherMyelopathy org, Cambridge, Cambridgeshire, United Kingdom. (författare)
  • Burwood, MartinMyelopathy org, Cambridge, Cambridgeshire, United Kingdom. (författare)
  • Wood, LianneUniv Exeter, Fac Hlth & Life Sci, Exeter, England.;Nottingham Univ Hosp NHS Trust, NeuroSpinal Assessment Unit, Nottingham, England. (författare)
  • Lalkhen, AbdulSalford Royal NHS Fdn Trust, Northern Care Alliance, Manchester, England. (författare)
  • Ito, ManabuNatl Hosp Org Hokkaido Med Ctr, Dept Orthopaed Surg, Sapporo, Japan. (författare)
  • Wilson, NickyKings Coll Hosp NHS Fdn Trust, Physiotherapy Dept, London, England. (författare)
  • Treanor, CarolineBeaumont Hosp, Dept Physiotherapy, Dublin, Ireland.;Beaumont Hosp, Dept Neurosurg, Dublin, Ireland.;Royal Coll Surgeons Ireland, Sch Physiotherapy, Dublin, Ireland. (författare)
  • Dugan, SheilaMyelopathy org, Cambridge, Cambridgeshire, United Kingdom. (författare)
  • Davies, Benjamin M.Myelopathy org, Cambridge, Cambridgeshire, United Kingdom.;Univ Cambridge, Dept Clin Neurosurg, Cambridge, England.;Univ Cambridge, Addenbrookes Hosp, Dept Clin Neurosurg, Box 167,Cambridge Biomed Campus, Cambridge CB2 0QQ, England. (författare)
  • Myelopathy org, Cambridge, Cambridgeshire, United Kingdom.Imperial Coll London, Appl Res Collaborat ARC Northwest London, Natl Inst Hlth Res NIHR, Dept Primary Care & Publ Hlth, London, England.;Imperial Coll London, Ctr Hlth Econ & Policy Innovat CHEPI, Business Sch, London, England. (creator_code:org_t)

Sammanhörande titlar

  • Ingår i:JMIR Research Protocols: JMIR Publications121929-0748

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