Search: onr:"swepub:oai:DiVA.org:uu-78528" >
Keep people informe...
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Eriksson, Stefan,1963-Uppsala universitet,Centrum för forsknings- och bioetik
(author)
Keep people informed or leave them alone? : A suggested tool for identifying those research participants who rightly want only limited information
- Article/chapterEnglish2005
Publisher, publication year, extent ...
Numbers
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LIBRIS-ID:oai:DiVA.org:uu-78528
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https://urn.kb.se/resolve?urn=urn:nbn:se:uu:diva-78528URI
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https://doi.org/10.1136/jme.2004.009753DOI
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http://kipublications.ki.se/Default.aspx?queryparsed=id:1928278URI
Supplementary language notes
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Language:English
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Summary in:English
Part of subdatabase
Classification
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Subject category:ref swepub-contenttype
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Subject category:art swepub-publicationtype
Notes
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People taking part in research vary in the extent to which they understand information concerning their participation. Since they may choose to limit the time and effort spent on such information, lack of understanding is not necessarily an ethical problem. Researchers who notice a lack of understanding are in the quandary of not knowing whether this is due to flaws in the information process or to participants’ deliberate choices. We argue that the two explanations call for different responses.A tool for identifying those research participants who want limited information is presented. This consists of a restricted number of questions about trust in and appraisal of research, priority of time and privacy, and perception of a duty to participate. It is argued that an important group of participants who purposely lack understanding of the study can be identified with this tool. Some limitations to this approach are also discussed.
Subject headings and genre
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Biomedical Research/*ethics/methods
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Humans
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Information Dissemination/ethics/methods
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Motivation
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Patient Education/*ethics/methods
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Patient Participation/*methods
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Privacy
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Questionnaires
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Social Responsibility
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Social Values
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Time Factors
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Trust
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Bioethics
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Bioetik
Added entries (persons, corporate bodies, meetings, titles ...)
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Helgesson, GertKarolinska Institutet,Uppsala universitet,Institutionen för folkhälso- och vårdvetenskap,Biomedical Ethics(Swepub:uu)gerthelg
(author)
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Uppsala universitetCentrum för forsknings- och bioetik
(creator_code:org_t)
Related titles
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In:Journal of Medical Ethics: BMJ31:11, s. 674-6780306-68001473-4257
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