Search: onr:"swepub:oai:gup.ub.gu.se/191612" > Cross-border flow o...
Fältnamn | Indikatorer | Metadata |
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000 | 04081naa a2200529 4500 | |
001 | oai:gup.ub.gu.se/191612 | |
003 | SwePub | |
008 | 240528s2013 | |||||||||||000 ||eng| | |
024 | 7 | a https://gup.ub.gu.se/publication/1916122 URI |
024 | 7 | a https://doi.org/10.1093/eurpub/cks0432 DOI |
040 | a (SwePub)gu | |
041 | a eng | |
042 | 9 SwePub | |
072 | 7 | a ref2 swepub-contenttype |
072 | 7 | a art2 swepub-publicationtype |
100 | 1 | a Iorio Di, C T4 aut |
245 | 1 0 | a Cross-border flow of health information: is 'privacy by design' enough? Privacy performance assessment in EUBIROD. |
264 | c 2012-05-04 | |
264 | 1 | b Oxford University Press (OUP),c 2013 |
520 | a Background: The EUBIROD project aims to perform a cross-border flow of diabetes information across 19 European countries using the BIRO information system, which embeds privacy principles and data protection mechanisms in its architecture (privacy by design). A specific task of EUBIROD was to investigate the variability in the implementation of the EU Data Protection Directive (DPD) across participating centres. Methods: Compliance with privacy requirements was assessed by means of a specific questionnaire administered to all participating diabetes registers. Items included relevant issues e.g. patient consent, accountability of data custodian, communication (openness) and complaint procedures (challenging compliance), authority to disclose, accuracy, access and use of personal information, and anonymization. The identification of an ad hoc scoring system and statistical software allowed an overall quali-quantitative analysis and independent evaluation of questionnaire responses, automated through a dedicated IT platform (‘privacy performance assessment’). Results: A total of 18 diabetes registers from different countries completed the survey. Over 50% of the registers recorded a maximum score for accountability, openness, anonymization and challenging compliance. Low average values were found for disclosure and disposition, access, consent, use of personal information and accuracy. A high heterogeneity was found for anonymization, consent, accuracy and access. Conclusions: The novel method of privacy performance assessment realized in EUBIROD may improve the respect of privacy in each data source, reduce overall variability in the implementation of privacy principles and favour a sound and legitimate cross-border exchange of high quality data across Europe. | |
650 | 7 | a MEDICIN OCH HÄLSOVETENSKAPx Klinisk medicinx Allmänmedicin0 (SwePub)302242 hsv//swe |
650 | 7 | a MEDICAL AND HEALTH SCIENCESx Clinical Medicinex General Practice0 (SwePub)302242 hsv//eng |
700 | 1 | a Carinci, Fabrizio4 aut |
700 | 1 | a Brillante, Massimo4 aut |
700 | 1 | a Azzopardi, Joseph4 aut |
700 | 1 | a Beck, Peter4 aut |
700 | 1 | a Bratina, Natasa4 aut |
700 | 1 | a Cunningham, Scott G4 aut |
700 | 1 | a de Beaufort, Carine4 aut |
700 | 1 | a Debacker, Noemi4 aut |
700 | 1 | a Jarosz-Chobot, P4 aut |
700 | 1 | a Jecht, Michael4 aut |
700 | 1 | a Lindblad, Ulf,d 1950u Gothenburg University,Göteborgs universitet,Institutionen för medicin, avdelningen för samhällsmedicin och folkhälsa,Institute of Medicine, School of Public Health and Community Medicine4 aut0 (Swepub:gu)xliulf |
700 | 1 | a Moulton, Tony4 aut |
700 | 1 | a Metelko, Z4 aut |
700 | 1 | a Nagy, Attila4 aut |
700 | 1 | a Olympios, George4 aut |
700 | 1 | a Pruna, Simion4 aut |
700 | 1 | a Röder, Michael4 aut |
700 | 1 | a Skeie, Svein4 aut |
700 | 1 | a Storms, Fred4 aut |
700 | 1 | a Benedetti Massi, M4 aut |
710 | 2 | a Göteborgs universitetb Institutionen för medicin, avdelningen för samhällsmedicin och folkhälsa4 org |
773 | 0 | t European Journal of Public Healthd : Oxford University Press (OUP)g 23:2, s. 247-53q 23:2<247-53x 1101-1262x 1464-360X |
856 | 4 | u https://academic.oup.com/eurpub/article-pdf/23/2/247/1981638/cks043.pdf |
856 | 4 8 | u https://gup.ub.gu.se/publication/191612 |
856 | 4 8 | u https://doi.org/10.1093/eurpub/cks043 |
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