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- Malm, K.Lund University, Lund, Sweden; Spenshult Research and Development Center, Halmstad, Sweden; Rheumatology, Capio Movement, Halmstad, Sweden & FoU Spenshult, Halmstad, Sweden (author)
Quality of life in patients with established rheumatoid arthritis: A phenomenographic study
- Article/chapterEnglish2017
Publisher, publication year, extent ...
- 2017-06-07
- Thousand Oaks, CA :SAGE Publications,2017
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- LIBRIS-ID:oai:gup.ub.gu.se/271661
- https://gup.ub.gu.se/publication/271661URI
- https://doi.org/10.1177/2050312117713647DOI
- https://urn.kb.se/resolve?urn=urn:nbn:se:hh:diva-34944URI
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- Language:English
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- Funding: Swedish Rheumatism Association, the County Council of Halland Research fund, and the Norrbacka-Eugenia Foundation
- Objective: Patients with rheumatoid arthritis perceive reduced quality of life in several domains, such as physical health, level of independence, environment and personal beliefs, compared with the healthy population. There is an increasing interest in quality of life in clinical and medical interventions. Few studies have explored patients' individual conceptions of quality of life, and interviews can thus complement quantitative studies. There is a need for a deeper understanding of the patients' experiences of quality of life, with regard to living with a long-term condition such as rheumatoid arthritis. The aim of this study was to explore the variation of ways in which patients with established rheumatoid arthritis understand the concept of quality of life. Methods: The study had a qualitative design with a phenomenographic approach, which was used to describe variations in how individuals experience their quality of life. The study is based on interviews with 22 patients with established rheumatoid arthritis enrolled in the BARFOT (better anti-rheumatic pharmacotherapy) study. Results: The concept of quality of life could be understood in three different ways: (I) independence in terms of physical functioning and personal finances, (2) empowerment in how to manage life and (3) participation as an experience of belonging in a social context. Conclusion: The different conceptions of quality of life reflect the complexity in the concept, including physical, psychological and social aspects. This complexity is important to have in mind when health professionals support patients in enhancing their quality of life.
Subject headings and genre
- MEDICIN OCH HÄLSOVETENSKAP Hälsovetenskap Folkhälsovetenskap, global hälsa, socialmedicin och epidemiologi hsv//swe
- MEDICAL AND HEALTH SCIENCES Health Sciences Public Health, Global Health, Social Medicine and Epidemiology hsv//eng
- MEDICIN OCH HÄLSOVETENSKAP Hälsovetenskap Omvårdnad hsv//swe
- MEDICAL AND HEALTH SCIENCES Health Sciences Nursing hsv//eng
- Rheumatology/clinical immunology
- rheumatoid arthritis
- quality of life
- qualitative study
- health
- disease
- perspective
- remission
- exercise
- efficacy
- outcomes
- support
- people
- burden
- General & Internal Medicine
- Rheumatology/clinical immunology
Added entries (persons, corporate bodies, meetings, titles ...)
- Bergman, StefanHögskolan i Halmstad,Gothenburg University,Göteborgs universitet,Institutionen för medicin, avdelningen för samhällsmedicin och folkhälsa,Institute of Medicine, School of Public Health and Community Medicine,Centrum för forskning om välfärd, hälsa och idrott (CVHI),Lund University, Lund, Sweden; Spenshult Research and Development Center, Halmstad, Sweden & The Sahlgrenska Academy, University of Gothenburg, Gothenburg, Sweden(Swepub:hh)steber (author)
- Andersson, M. L. E.Lund University, Lund, Sweden; Spenshult Research and Development Center, Halmstad, Sweden (author)
- Bremander, Ann,1957-Högskolan i Halmstad,Rydberglaboratoriet för tillämpad naturvetenskap (RLAS),Lund University, Lund, Sweden; Spenshult Research and Development Center, Halmstad, Sweden(Swepub:hh)annbre (author)
- Larsson, Ingrid,1968-Högskolan i Halmstad,Hälsa och omvårdnad,Spenshult Research and Development Center, Halmstad, Sweden(Swepub:hh)inglar (author)
- Lund University, Lund, Sweden; Spenshult Research and Development Center, Halmstad, Sweden; Rheumatology, Capio Movement, Halmstad, Sweden & FoU Spenshult, Halmstad, SwedenInstitutionen för medicin, avdelningen för samhällsmedicin och folkhälsa (creator_code:org_t)
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- In:Sage Open MedicineThousand Oaks, CA : SAGE Publications52050-3121
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