Randomised controlled trial of a person-centred transition programme for adolescents with type 1 diabetes (STEPSTONES-DIAB): a study protocol

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Brorsson, Anna Lena,1964Karolinska Institutet,Gothenburg University,Göteborgs universitet,Centrum för personcentrerad vård vid Göteborgs universitet (GPCC),University of Gothenburg Centre for person-centred care (GPCC) (author)

Randomised controlled trial of a person-centred transition programme for adolescents with type 1 diabetes (STEPSTONES-DIAB): a study protocol

Article/chapterEnglish2020

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2020-04-14
BMJ,2020

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LIBRIS-ID:oai:gup.ub.gu.se/294287
https://gup.ub.gu.se/publication/294287URI
https://doi.org/10.1136/bmjopen-2019-036496DOI
http://kipublications.ki.se/Default.aspx?queryparsed=id:143864654URI

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Language:English

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Subject category:ref swepub-contenttype
Subject category:art swepub-publicationtype

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Introduction Adolescence is a critical period for youths with chronic conditions, when they are supposed to take over the responsibility for their health. Type 1 diabetes (T1D) is one of the most common chronic conditions in childhood and inadequate self-management increases the risk of short-term and long-term complications. There is a lack of evidence regarding the effectiveness of transition programmes. As a part of the Swedish Transition Effects Project Supporting Teenagers with chrONic mEdical conditionS research programme, the objective of this study is to evaluate the effectiveness and experiences of different transitional care models, including a person-centred transition programme aiming to empower adolescents with T1D to become active partners in their health and care. Methods and analysis In this randomised controlled trial, patients are recruited from two paediatric diabetes clinics at the age of 16 years. Patients are randomly assigned to either the intervention group (n=70) where they will receive usual care plus the structured transition programme, or to the control group (n=70) where they will only receive usual care. Data will be collected at 16, 17 and 18.5 years of age. In a later stage, the intervention group will be compared with adolescents in a dedicated youth clinic in a third setting. The primary outcome is patient empowerment. Secondary outcomes include generic, diabetes-specific and transfer-specific variables. Ethics and dissemination The study has been approved by the Ethical Review Board in Stockholm (Dnr 2018/1725-31). Findings will be reported following the Consolidated Standards of Reporting Trials statement and disseminated in peer-reviewed journals and at international conferences.

Subject headings and genre

MEDICIN OCH HÄLSOVETENSKAP Klinisk medicin hsv//swe
MEDICAL AND HEALTH SCIENCES Clinical Medicine hsv//eng
quality-of-life
health-care
psychometric properties
emerging adults
young-adults
children
interventions
statement
outcomes
burden
General & Internal Medicine

Added entries (persons, corporate bodies, meetings, titles ...)

Bratt, Ewa-Lena,1970Gothenburg University,Göteborgs universitet,Institutionen för vårdvetenskap och hälsa,Institute of Health and Care Sciences(Swepub:gu)xbraew (author)
Moons, Philip,1968Gothenburg University,Göteborgs universitet,Institutionen för vårdvetenskap och hälsa,Institute of Health and Care Sciences(Swepub:gu)xmooph (author)
Ek, A.Karolinska Institutet (author)
Jelleryd, E.Karolinska Institutet (author)
Torbjornsdotter, T. (author)
Sparud Lundin, Carina,1964Gothenburg University,Göteborgs universitet,Institutionen för vårdvetenskap och hälsa,Centrum för personcentrerad vård vid Göteborgs universitet (GPCC),Institute of Health and Care Sciences,University of Gothenburg Centre for person-centred care (GPCC)(Swepub:gu)xspaca (author)
Göteborgs universitetCentrum för personcentrerad vård vid Göteborgs universitet (GPCC) (creator_code:org_t)

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In:BMJ Open: BMJ10:42044-6055

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MEDICAL AND HEALTH SCIENCES: MEDICAL AND HEAL ...; and Clinical Medicin ...

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By the university: University of Gothenburg; Karolinska Institutet

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