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Phase III study of ...
Phase III study of the European Organisation for Research and Treatment of Cancer Quality of Life cancer survivorship core questionnaire
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van Leeuwen, Marieke (author)
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Kieffer, Jacobien M. (author)
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Young, Teresa E. (author)
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Annunziata, Maria Antonietta (author)
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Arndt, Volker (author)
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Arraras, Juan Ignacio (author)
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Autran, Didier (author)
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Hani, Hira Bani (author)
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Chakrabarti, Manas (author)
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Chinot, Olivier (author)
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Cho, Juhee (author)
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da Costa Vieira, Rene Aloisio (author)
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Darlington, Anne Sophie (author)
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Debruyne, Philip R. (author)
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Dirven, Linda (author)
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Doege, Daniela (author)
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Eller, Yannick (author)
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Eichler, Martin (author)
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Friðriksdóttir, Nanna (author)
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De Giorgi, Ugo (author)
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Gioulbasanis, Ioannis (author)
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- Hammerlid, Eva, 1957 (author)
- Gothenburg University,Göteborgs universitet,Institutionen för kliniska vetenskaper,Institute of Clinical Sciences
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van Hemelrijck, Mieke (author)
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Hermann, Silke (author)
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Husson, Olga (author)
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Jefford, Michael (author)
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Johansen, Christoffer (author)
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Johnson, Colin (author)
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Kjaer, Trille Kristina (author)
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Kontogianni, Meropi (author)
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Lagergren, Pernilla (author)
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Lidington, Emma (author)
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Lisy, Karolina (author)
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Morag, Ofir (author)
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Nordin, Andy (author)
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Al Omari, Amal S.H. (author)
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Pace, Andrea (author)
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De Padova, Silvia (author)
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Petranoviæ, Duska (author)
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Pinto, Monica (author)
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Ramage, John (author)
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Rammant, Elke (author)
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Reijneveld, Jaap (author)
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Serpentini, Samantha (author)
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Sodergren, Sam (author)
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Vassiliou, Vassilios (author)
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Verdonck-de Leeuw, Irma (author)
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Vistad, Ingvild (author)
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Aaronson, Neil K. (author)
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van de Poll-Franse, Lonneke V. (author)
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(creator_code:org_t)
- 2022-01-27
- 2023
- English.
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In: Journal of Cancer Survivorship. - : Springer Science and Business Media LLC. - 1932-2259 .- 1932-2267. ; 17:4, s. 1111-1130
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https://doi.org/10.1...
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Abstract
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- Purpose: The purpose of this study is to develop a European Organisation for Research and Treatment of Cancer Quality of Life Group (EORTC QLG) questionnaire that captures the full range of physical, mental, and social health-related quality of life (HRQOL) issues relevant to disease-free cancer survivors. In this phase III study, we pretested the provisional core questionnaire (QLQ-SURV111) and aimed to identify essential and optional scales. Methods: We pretested the QLQ-SURV111 in 492 cancer survivors from 17 countries with one of 11 cancer diagnoses. We applied the EORTC QLG decision rules and employed factor analysis and item response theory (IRT) analysis to assess and, where necessary, modify the hypothesized questionnaire scales. We calculated correlations between the survivorship scales and the QLQ-C30 summary score and carried out a Delphi survey among healthcare professionals, patient representatives, and cancer researchers to distinguish between essential and optional scales. Results: Fifty-four percent of the sample was male, mean age was 60 years, and, on average, time since completion of treatment was 3.8 years. Eleven items were excluded, resulting in the QLQ-SURV100, with 12 functional and 9 symptom scales, a symptom checklist, 4 single items, and 10 conditional items. The essential survivorship scales consist of 73 items. Conclusions: The QLQ-SURV100 has been developed to assess comprehensively the HRQOL of disease-free cancer survivors. It includes essential and optional scales and will be validated further in an international phase IV study. Implications for Cancer Survivors: The availability of this questionnaire will facilitate a standardized and robust assessment of the HRQOL of disease-free cancer survivors.
Subject headings
- MEDICIN OCH HÄLSOVETENSKAP -- Klinisk medicin -- Cancer och onkologi (hsv//swe)
- MEDICAL AND HEALTH SCIENCES -- Clinical Medicine -- Cancer and Oncology (hsv//eng)
- MEDICIN OCH HÄLSOVETENSKAP -- Hälsovetenskap -- Omvårdnad (hsv//swe)
- MEDICAL AND HEALTH SCIENCES -- Health Sciences -- Nursing (hsv//eng)
Keyword
- Cancer survivor
- Disease-free
- Health-related quality of life
- Oncology
- Patient reported outcomes
- Survivorship questionnaire
Publication and Content Type
- ref (subject category)
- art (subject category)
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- By the author/editor
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van Leeuwen, Mar ...
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Kieffer, Jacobie ...
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Young, Teresa E.
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Annunziata, Mari ...
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Arndt, Volker
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Arraras, Juan Ig ...
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show more...
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Autran, Didier
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Hani, Hira Bani
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Chakrabarti, Man ...
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Chinot, Olivier
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Cho, Juhee
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da Costa Vieira, ...
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Darlington, Anne ...
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Debruyne, Philip ...
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Dirven, Linda
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Doege, Daniela
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Eller, Yannick
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Eichler, Martin
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Friðriksdóttir, ...
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De Giorgi, Ugo
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Gioulbasanis, Io ...
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Hammerlid, Eva, ...
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van Hemelrijck, ...
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Hermann, Silke
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Husson, Olga
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Jefford, Michael
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Johansen, Christ ...
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Johnson, Colin
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Kjaer, Trille Kr ...
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Kontogianni, Mer ...
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Lagergren, Perni ...
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Lidington, Emma
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Lisy, Karolina
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Morag, Ofir
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Nordin, Andy
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Al Omari, Amal S ...
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Pace, Andrea
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De Padova, Silvi ...
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Petranoviæ, Dusk ...
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Pinto, Monica
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Ramage, John
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Rammant, Elke
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Reijneveld, Jaap
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Serpentini, Sama ...
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Sodergren, Sam
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Vassiliou, Vassi ...
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Verdonck-de Leeu ...
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Vistad, Ingvild
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Aaronson, Neil K ...
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van de Poll-Fran ...
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- About the subject
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- MEDICAL AND HEALTH SCIENCES
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MEDICAL AND HEAL ...
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and Clinical Medicin ...
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and Cancer and Oncol ...
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- MEDICAL AND HEALTH SCIENCES
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MEDICAL AND HEAL ...
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and Health Sciences
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and Nursing
- Articles in the publication
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Journal of Cance ...
- By the university
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University of Gothenburg
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Karolinska Institutet