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Transitioning patie...
Transitioning patients with juvenile idiopathic arthritis to adult care: the Nordic experience
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- Mikola, K. (author)
- Univ Helsinki, Pediat Res Ctr, New Childrens Hosp, Stenbackinkatu 9, Helsinki 00290, Finland.;Helsinki Univ Hosp, Stenbackinkatu 9, Helsinki 00290, Finland.
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- Rebane, K. (author)
- Univ Helsinki, Pediat Res Ctr, New Childrens Hosp, Stenbackinkatu 9, Helsinki 00290, Finland.;Helsinki Univ Hosp, Stenbackinkatu 9, Helsinki 00290, Finland.
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- Arnstad, E. D. (author)
- Nord Trondelag Hosp Trust, Levanger Hosp, Dept Pediat, Levanger, Norway.;NTNU Norwegian Univ Sci & Technol, Dept Clin & Mol Med, Trondheim, Norway.
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- Berntson, Lillemor, 1957- (author)
- Uppsala universitet,Institutionen för kvinnors och barns hälsa
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- Fasth, Anders, 1945 (author)
- Gothenburg University,Göteborgs universitet,Institutionen för kliniska vetenskaper, Avdelningen för pediatrik,Institute of Clinical Sciences, Department of Pediatrics,Univ Gothenburg, Sahlgrenska Acad, Inst Clin Sci, Dept Pediat, Gothenburg, Sweden.
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- Glerup, M. (author)
- Aarhus Univ Hosp, Dept Pediat, Aarhus, Denmark.
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- Herlin, T. (author)
- Aarhus Univ Hosp, Dept Pediat, Aarhus, Denmark.
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- Kautiainen, H. (author)
- Kuopio Univ Hosp, Primary Hlth Care Unit, Kuopio, Pohjois Savo, Finland.;Folkhalsan Res Ctr, Helsinki, Finland.
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- Nielsen, S. (author)
- Copenhagen Univ Hosp, Dept Pediat, Rigshosp, Copenhagen, Denmark.
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- Nordal, E. (author)
- Univ Hosp North Norway, Dept Pediat, Tromso, Norway.;Pediat Res Grp, Tromso, Norway.;UIT Arctic Univ Norway, Dept Clin Med, Tromso, Norway.
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- Peltoniemi, S. (author)
- Helsinki Univ Cent Hosp, HUS Inflammat Ctr, Rheumatol, Helsinki, Finland.;Univ Helsinki, Helsinki, Finland.
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- Rygg, M. (author)
- NTNU Norwegian Univ Sci & Technol, Dept Clin & Mol Med, Trondheim, Norway.;St Olavs Univ Hosp, Dept Pediat, Trondheim, Norway.
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- Rypdal, V. (author)
- Univ Hosp North Norway, Dept Pediat, Tromso, Norway.;Pediat Res Grp, Tromso, Norway.
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- Zak, M. (author)
- Copenhagen Univ Hosp, Dept Pediat, Rigshosp, Copenhagen, Denmark.
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- Aalto, K. (author)
- Univ Helsinki, Pediat Res Ctr, New Childrens Hosp, Stenbackinkatu 9, Helsinki 00290, Finland.;Helsinki Univ Hosp, Stenbackinkatu 9, Helsinki 00290, Finland.
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Univ Helsinki, Pediat Res Ctr, New Childrens Hosp, Stenbackinkatu 9, Helsinki 00290, Finland;Helsinki Univ Hosp, Stenbackinkatu 9, Helsinki 00290, Finland. Nord Trondelag Hosp Trust, Levanger Hosp, Dept Pediat, Levanger, Norway.;NTNU Norwegian Univ Sci & Technol, Dept Clin & Mol Med, Trondheim, Norway. (creator_code:org_t)
- 2022-10-01
- 2022
- English.
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In: Pediatric Rheumatology. - : Springer Science and Business Media LLC. - 1546-0096. ; 20:1
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Abstract
Subject headings
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- Background With juvenile idiopathic arthritis (JIA), there are several protocols and practices used worldwide for the transition from paediatric to adult care. In this study, we examined the transferral rates and disease activity after transition, as well as the disease- and health-related outcomes. We also introduce the transition practices employed in the Nordic countries. Methods The study population comprised 408 participants with a disease onset from 1997 to 2000 who attended an 18-year follow-up visit in this population-based Nordic JIA cohort study. The patients were retrospectively divided into three subgroups: Patients transferred directly from paediatric care to adult rheumatology care, patients referred there later, and patients never transferred during the 18-year follow-up period. Results One hundred and sixty-three (40%) JIA patients had been directly transferred to an adult clinic. The cumulative transition rate was 52%, but there were significant differences between the participating centres. Fifty patients had later been referred to an adult clinic. Among the 195 patients who had never been transferred, 39% were found to have disease activity at the study visit. Conclusion This study highlights the need to reconsider transition practices to avoid our undesirable finding of patients with disease activity in JIA, but no appropriate health care follow-up.
Subject headings
- MEDICIN OCH HÄLSOVETENSKAP -- Klinisk medicin -- Pediatrik (hsv//swe)
- MEDICAL AND HEALTH SCIENCES -- Clinical Medicine -- Pediatrics (hsv//eng)
- MEDICIN OCH HÄLSOVETENSKAP -- Klinisk medicin -- Reumatologi och inflammation (hsv//swe)
- MEDICAL AND HEALTH SCIENCES -- Clinical Medicine -- Rheumatology and Autoimmunity (hsv//eng)
Keyword
- Juvenile idiopathic arthritis
- Uveitis
- Transition
- Disease activity
- Remission
- Follow-up study
- Multicentre study
- disease-activity
- validation
- categories
- cohort
- Pediatrics
- Rheumatology
- Juvenile idiopathic arthritis
Publication and Content Type
- ref (subject category)
- art (subject category)
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- By the author/editor
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Mikola, K.
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Rebane, K.
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Arnstad, E. D.
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Berntson, Lillem ...
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Fasth, Anders, 1 ...
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Glerup, M.
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Herlin, T.
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Kautiainen, H.
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Nielsen, S.
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Nordal, E.
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Peltoniemi, S.
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Rygg, M.
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Rypdal, V.
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Zak, M.
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Aalto, K.
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- About the subject
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- MEDICAL AND HEALTH SCIENCES
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MEDICAL AND HEAL ...
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and Clinical Medicin ...
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and Pediatrics
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- MEDICAL AND HEALTH SCIENCES
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MEDICAL AND HEAL ...
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and Clinical Medicin ...
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and Rheumatology and ...
- Articles in the publication
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Pediatric Rheuma ...
- By the university
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University of Gothenburg
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Uppsala University