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  • Acuña Mora, Mariela,1990Högskolan i Borås,Gothenburg University,Göteborgs universitet,Institutionen för vårdvetenskap och hälsa,Institute of Health and Care Sciences,Institute of Health and Care Sciences, University of Gothenburg, Gothenburg, Sweden; Faculty of Caring Science, Work Life and Social Welfare, University of Borås, Borås, Sweden,Akademin för vård, arbetsliv och välfärd,Univ Gothenburg, Sweden; Univ Boras, Sweden (author)

The longitudinal association between patient empowerment and patient-reported outcomes: What is the direction of effect?

  • Article/chapterEnglish2022

Publisher, publication year, extent ...

  • 2022-11-10
  • Public Library of Science (PLoS),2022

Numbers

  • LIBRIS-ID:oai:gup.ub.gu.se/321902
  • https://gup.ub.gu.se/publication/321902URI
  • https://doi.org/10.1371/journal.pone.0277267DOI
  • https://urn.kb.se/resolve?urn=urn:nbn:se:umu:diva-201231URI
  • https://urn.kb.se/resolve?urn=urn:nbn:se:hb:diva-28984URI
  • https://urn.kb.se/resolve?urn=urn:nbn:se:liu:diva-192210URI
  • http://kipublications.ki.se/Default.aspx?queryparsed=id:151846847URI

Supplementary language notes

  • Language:English

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  • Subject category:ref swepub-contenttype
  • Subject category:art swepub-publicationtype

Notes

  • Funding Agencies|Swedish Research Council for Health, Working Life and Welfare-FORTE [STYA-2015/0003]; Swedish Heart-Lung Foundation [20150535]; Swedish Research Council [2015-02503]; Swedish Children Heart Association
  • Theoretical literature and cross-sectional studies suggest empowerment is associated with other patient-reported outcomes (PROs). However, it is not known if patient empowerment is leading to improvements in other PROs or vice versa.The present study aimed to examine the direction of effects between patient empowerment and PROs in young persons with congenital heart disease (CHD).As part of the STEPSTONES-CHD trial, adolescents with CHD from seven pediatric cardiology centers in Sweden were included in a longitudinal observational study (n = 132). Data were collected when patients were 16 (T0), 17 (T1) and 18 ½ years old (T2). The Gothenburg Young Persons Empowerment Scale (GYPES) was used to measure patient empowerment. Random intercepts cross-lagged panel models between patient empowerment and PROs (communication skills; patient-reported health; quality of life; and transition readiness) were undertaken.We found a significant cross-lagged effect of transition readiness over patient empowerment between T1 and T2, signifying that a higher level of transition readiness predicted a higher level of patient empowerment. No other significant cross-lagged relationships were found.Feeling confident before the transition to adult care is necessary before young persons with CHD can feel in control to manage their health and their lives. Clinicians interested in improving patient empowerment during the transitional period should consider targeting transition readiness.

Subject headings and genre

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  • Sparud Lundin, Carina,1964Gothenburg University,Göteborgs universitet,Institutionen för vårdvetenskap och hälsa,Institute of Health and Care Sciences,Institute of Health and Care Sciences, University of Gothenburg, Gothenburg, Sweden,Univ Gothenburg, Sweden(Swepub:gu)xspaca (author)
  • Fernlund, EvaLinköpings universitet,Avdelningen för barns och kvinnors hälsa,Medicinska fakulteten,Region Östergötland, H.K.H. Kronprinsessan Victorias barn- och ungdomssjukhus(Swepub:liu)evafe41 (author)
  • Fadl, ShalanDepartment of Children and Young Adults, University Hospital Örebro, Örebro, Sweden,Univ Hosp Orebro, Sweden (author)
  • Kalliopi, KazamiaKarolinska Institutet (author)
  • Rydberg, AnnikaUmeå universitet,Pediatrik,Department of Clinical Sciences, Umeå University, Umeå, Sweden,Umea Univ, Sweden(Swepub:umu)anry0014 (author)
  • Burström, ÅsaKarolinska Institutet (author)
  • Hanseus, KatarinaChildren's Heart Center, Skåne University Hospital Lund, Lund, Sweden,Skane Univ Hosp Lund, Sweden (author)
  • Moons, Philip,1968Gothenburg University,Göteborgs universitet,Institutionen för vårdvetenskap och hälsa,Institute of Health and Care Sciences,Institute of Health and Care Sciences, University of Gothenburg, Gothenburg, Sweden; Department of Public Health and Primary Care, KU Leuven, Leuven, Belgium. Department of Paediatrics and Child Health, University of Cape Town, Cape Town, South Africa,Univ Gothenburg, Sweden; Katholieke Univ Leuven, Belgium; Univ Cape Town, South Africa(Swepub:gu)xmooph (author)
  • Bratt, Ewa-Lena,1970Gothenburg University,Göteborgs universitet,Institutionen för vårdvetenskap och hälsa,Institute of Health and Care Sciences,Institute of Health and Care Sciences, University of Gothenburg, Gothenburg, Sweden; Department of Pediatric Cardiology, Queen Silvia Children's Hospital, Gothenburg, Sweden,Department of Pediatric Cardiology, The Queen Silvia Children’s Hospital, Gothenburg, Sweden,Univ Gothenburg, Sweden; Queen Silvia Childrens Hosp, Sweden(Swepub:gu)xbraew (author)
  • Göteborgs universitetInstitutionen för vårdvetenskap och hälsa (creator_code:org_t)

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  • In:PloS one: Public Library of Science (PLoS)17:111932-6203

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