Self-reported restrictions in different life domains and associated factors among people with multiple sclerosis in Sweden

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Teni, Fitsum SebsibeKarolinska Institutet (author)

Self-reported restrictions in different life domains and associated factors among people with multiple sclerosis in Sweden

Article/chapterEnglish2023

Publisher, publication year, extent ...

2023-03-30
Wiley,2023

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LIBRIS-ID:oai:gup.ub.gu.se/325365
https://gup.ub.gu.se/publication/325365URI
https://doi.org/10.1111/ene.15790DOI
http://kipublications.ki.se/Default.aspx?queryparsed=id:152327136URI

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Language:English

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Subject category:ref swepub-contenttype
Subject category:art swepub-publicationtype

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Background and purpose: The heterogeneous symptoms of multiple sclerosis (MS) can considerably impact the lives of people with MS (PwMS). The aim of this study was to describe the extent of restrictions in different life domains that PwMS experience in relation to their symptoms and level of disability. Methods: A cross-sectional survey was conducted among working-age PwMS in Sweden. The 4052 participants who answered the questions on restrictions in work and private life domains (family, leisure activities, and contact with friends/acquaintances) were included. Predictors of restrictions in the four domains were determined through multinomial logistic regression. Results: Approximately one-third of the PwMS reported no restrictions in the domains of work (35.7%), family (38.7%), leisure activities (31.1%) or contact with friends/acquaintances (40.3%), the remaining participants reported moderate to severe restrictions. Tiredness/fatigue was the most commonly reported most-limiting symptom (49.5%). PwMS with Expanded Disability Status Scale (EDSS) scores of zero reported restrictions in life domains ranging from 39.6% (friends/acquaintances) to 45.7% (leisure activities). Age, sex, education, type of living area, MS type, type of most-limiting symptom, and EDSS score predicted restrictions in work and private life domains. Conclusions: Most PwMS reported similar levels of restrictions in both their work and private lives. Restrictions in these life domains were also reported by PwMS with low disability levels (EDSS = 0) and were often associated with invisible symptoms such as fatigue. Even in a contemporary MS cohort, close to 90% of PwMS report limitations due to MS.

Subject headings and genre

MEDICIN OCH HÄLSOVETENSKAP Klinisk medicin Neurologi hsv//swe
MEDICAL AND HEALTH SCIENCES Clinical Medicine Neurology hsv//eng
MEDICIN OCH HÄLSOVETENSKAP Hälsovetenskap Folkhälsovetenskap, global hälsa, socialmedicin och epidemiologi hsv//swe
MEDICAL AND HEALTH SCIENCES Health Sciences Public Health, Global Health, Social Medicine and Epidemiology hsv//eng
family
fatigue
friends
leisure
work

Added entries (persons, corporate bodies, meetings, titles ...)

Machado, AlejandraKarolinska Institutet (author)
Murley, ChantelleKarolinska Institutet (author)
Fink, KatharinaKarolinska Institutet (author)
Gyllensten, Hanna,1979Gothenburg University,Göteborgs universitet,Institutionen för vårdvetenskap och hälsa,Institute of Health and Care Sciences(Swepub:gu)xgylha (author)
Dervish, JessicaKarolinska Institutet (author)
Hillert, JanKarolinska Institutet (author)
Friberg, EmilieKarolinska Institutet (author)
Karolinska InstitutetInstitutionen för vårdvetenskap och hälsa (creator_code:org_t)

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In:European Journal of Neurology: Wiley30:7, s. 1843-18531351-51011468-1331

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MEDICAL AND HEALTH SCIENCES: MEDICAL AND HEAL ...; and Clinical Medicin ...; and Neurology

MEDICAL AND HEALTH SCIENCES: MEDICAL AND HEAL ...; and Health Sciences; and Public Health Gl ...

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