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  • Noten, SuzieErasmus University Medical Center,Erasmus MC Univ Med Ctr, Dept Rehabil Med, POB 2040, NL-3000 CA Rotterdam, Netherlands.;Rijndam Rehabil, Rotterdam, Netherlands. (author)

ICF Core Sets for the assessment of functioning of adults with cerebral palsy

  • Article/chapterEnglish2022

Publisher, publication year, extent ...

  • 2021-11-20
  • Wiley,2022

Numbers

  • LIBRIS-ID:oai:lup.lub.lu.se:369d4140-3338-4ddd-92cb-a7b7d6373184
  • https://lup.lub.lu.se/record/369d4140-3338-4ddd-92cb-a7b7d6373184URI
  • https://doi.org/10.1111/dmcn.15104DOI
  • https://urn.kb.se/resolve?urn=urn:nbn:se:uu:diva-479414URI

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  • Language:English
  • Summary in:English

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  • Subject category:art swepub-publicationtype
  • Subject category:ref swepub-contenttype

Notes

  • Aim: To report on the results of the online international consensus process to develop the comprehensive and brief International Classification of Functioning, Disability and Health (ICF) Core Sets for adults with cerebral palsy (CP). Method: An online iterative decision-making and consensus process involved 25 experts, including clinicians and researchers working with adults with CP, an adult with CP, and the parents of adults with CP from all six regions of the World Health Organization. The most relevant categories were selected from a list of 154 unique second-level candidate categories to develop the ICF Core Sets for adults with CP. This list resulted from evidence gathered during four preparatory studies, that is, a systematic literature review, a qualitative study, an expert survey, and an empirical study. Results: The consensus process resulted in the comprehensive ICF Core Set containing 120 second-level ICF categories: 33 body functions; eight body structures; 50 activities and participation; and 29 environmental factors, from which the most essential categories, 33 in total, were selected for the brief ICF Core Set. For body functions, most of the categories were mental functions and neuromusculoskeletal and movement-related functions. Body structures were mostly related to movement. All the chapters of the activities and participation component were represented, with mobility and self-care as the most frequently covered chapters. For environmental factors, most of the categories addressed products and technology and services, systems, and policies. Interpretation: The comprehensive and brief ICF Core Sets for adults with CP were created using a new online version of an established ICF Core Set consensus process. These Core Sets complement the age-specific ICF Core Sets for children and young people with CP and will promote standardized data collection worldwide.

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  • Selb, MelissaSwiss Paraplegic Centre,ICF Res Branch, Nottwil, Switzerland.;Swiss Parapleg Res, Nottwil, Switzerland. (author)
  • Troenosemito, Lorenzo A.A.Erasmus University Medical Center,Erasmus MC Univ Med Ctr, Dept Rehabil Med, POB 2040, NL-3000 CA Rotterdam, Netherlands. (author)
  • Thorpe, Deborah E.University of North Carolina,Univ N Carolina, Div Phys Therapy, Sch Med, Chapel Hill, NC USA. (author)
  • Rodby-Bousquet, ElisabetUppsala universitet,Uppsala University,Lund University,Lunds universitet,Ortopedi, Lund,Sektion III,Institutionen för kliniska vetenskaper, Lund,Medicinska fakulteten,Orthopaedics (Lund),Section III,Department of Clinical Sciences, Lund,Faculty of Medicine,Centrum för klinisk forskning, Västerås,Lund Univ, Dept Clin Sci, Orthopaed, Lund, Sweden.(Swepub:uu)eliel158 (author)
  • van der Slot, Wilma M.A.Erasmus University Medical Center,Erasmus MC Univ Med Ctr, Dept Rehabil Med, POB 2040, NL-3000 CA Rotterdam, Netherlands.;Rijndam Rehabil, Rotterdam, Netherlands. (author)
  • Roebroeck, Marij E.Erasmus University Medical Center,Erasmus MC Univ Med Ctr, Dept Rehabil Med, POB 2040, NL-3000 CA Rotterdam, Netherlands.;Rijndam Rehabil, Rotterdam, Netherlands. (author)
  • Erasmus University Medical CenterErasmus MC Univ Med Ctr, Dept Rehabil Med, POB 2040, NL-3000 CA Rotterdam, Netherlands.;Rijndam Rehabil, Rotterdam, Netherlands. (creator_code:org_t)
  • the ICF Core Set for Adults with CP Consensus Group

Related titles

  • In:Developmental Medicine and Child Neurology: Wiley64:5, s. 569-5770012-16221469-8749

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