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The governance stru...
The governance structure for data access in the DIRECT consortium : An innovative medicines initiative (IMI) project
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- Teare, Harriet J.A. (author)
- University of Oxford,University of Melbourne
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- De Masi, Federico (author)
- Technical University of Denmark
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- Banasik, Karina (author)
- University of Copenhagen
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- Barnett, Anna (author)
- University of Dundee,Ninewells Hospital and Medical School
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- Herrgard, Sanna (author)
- Technical University of Denmark
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- Jablonka, Bernd (author)
- Sanofi-Aventis Deutschland GmbH
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- Postma, Jacqueline W.M. (author)
- Lund University,Lunds universitet,Diabetiska komplikationer,Forskargrupper vid Lunds universitet,Diabetic Complications,Lund University Research Groups
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- McDonald, Timothy J. (author)
- Royal Devon & Exeter Hospital
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- Forgie, Ian (author)
- University of Dundee,Ninewells Hospital and Medical School
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- Chmura, Piotr J. (author)
- Technical University of Denmark
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- Rydzka, Emil K. (author)
- Technical University of Denmark
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- Gupta, Ramneek (author)
- Technical University of Denmark
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- Brunak, Soren (author)
- Technical University of Denmark,University of Copenhagen
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- Pearson, Ewan (author)
- Ninewells Hospital and Medical School,University of Dundee
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- Kaye, Jane (author)
- University of Melbourne,University of Oxford
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(creator_code:org_t)
- 2018-09-04
- 2018
- English.
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In: Life Sciences, Society and Policy. - : Springer Science and Business Media LLC. - 2195-7819. ; 14:1
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Abstract
Subject headings
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- Biomedical research projects involving multiple partners from public and private sectors require coherent internal governance mechanisms to engender good working relationships. The DIRECT project is an example of such a venture, funded by the Innovative Medicines Initiative Joint Undertaking (IMI JU). This paper describes the data access policy that was developed within DIRECT to support data access and sharing, via the establishment of a 3-tiered Data Access Committee. The process was intended to allow quick access to data, whilst enabling strong oversight of how data were being accessed and by whom, and any subsequent analyses, to contribute to the overall objectives of the consortium.
Subject headings
- SAMHÄLLSVETENSKAP -- Medie- och kommunikationsvetenskap -- Biblioteks- och informationsvetenskap (hsv//swe)
- SOCIAL SCIENCES -- Media and Communications -- Information Studies (hsv//eng)
Keyword
- Data access
- Data access committee
- Governance
- IMI project
Publication and Content Type
- art (subject category)
- ref (subject category)
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- By the author/editor
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Teare, Harriet J ...
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De Masi, Federic ...
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Banasik, Karina
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Barnett, Anna
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Herrgard, Sanna
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Jablonka, Bernd
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show more...
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Postma, Jacqueli ...
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McDonald, Timoth ...
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Forgie, Ian
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Chmura, Piotr J.
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Rydzka, Emil K.
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Gupta, Ramneek
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Brunak, Soren
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Pearson, Ewan
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Kaye, Jane
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show less...
- About the subject
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- SOCIAL SCIENCES
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SOCIAL SCIENCES
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and Media and Commun ...
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and Information Stud ...
- Articles in the publication
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Life Sciences, S ...
- By the university
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Lund University