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Common measure of q...
Common measure of quality of life for people with systemic sclerosis across seven European countries : A cross-sectional study
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- Ndosi, Mwidimi (author)
- University of the West of England,NHS Foundation Trust
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- Alcacer-Pitarch, Begonya (author)
- University of Leeds,NIHR Leeds Biomedical Research Centre
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- Allanore, Yannick (author)
- Paris Descartes University
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- Del Galdo, Francesco (author)
- University of Leeds,NIHR Leeds Biomedical Research Centre
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- Frerix, Marc (author)
- Justus Liebig University Giessen
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- García-Díaz, Sílvia (author)
- Hospital de Sant Joan Despí Moisès Broggi
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- Hesselstrand, Roger (author)
- Lund University,Lunds universitet,Forskargruppen för systemisk skleros, Lund,Forskargrupper vid Lunds universitet,Lund Systemic Sclerosis Research Group,Lund University Research Groups
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- Kendall, Christine (author)
- Justus Liebig University Giessen
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- Matucci-Cerinic, Marco (author)
- University of Florence,Careggi University Hospital
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- Mueller-Ladner, Ulf (author)
- Justus Liebig University Giessen
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- Sandqvist, Gunnel (author)
- Lund University,Lunds universitet,Reumatologi och molekylär skelettbiologi,Sektion III,Institutionen för kliniska vetenskaper, Lund,Medicinska fakulteten,Rheumatology,Section III,Department of Clinical Sciences, Lund,Faculty of Medicine
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- Torrente-Segarra, Vicenç (author)
- Hospital de Sant Joan Despí Moisès Broggi
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- Schmeiser, Tim (author)
- St. Josef Hospital,Justus Liebig University Giessen
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- Sierakowska, Matylda (author)
- Medical University of Bialystok
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- Sierakowska, Justyna (author)
- Medical University of Bialystok
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- Sierakowski, Stanslaw (author)
- Medical University of Bialystok
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- Redmond, Anthony (author)
- NIHR Leeds Biomedical Research Centre,University of Leeds
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(creator_code:org_t)
- 2018-02-20
- 2018
- English 7 s.
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In: Annals of the Rheumatic Diseases. - : BMJ. - 0003-4967 .- 1468-2060. ; 77:7, s. 1032-1038
- Related links:
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http://dx.doi.org/10...
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https://ard.bmj.com/...
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https://lup.lub.lu.s...
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https://doi.org/10.1...
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Abstract
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- Objectives the aim of this study was to adapt the Systemic Sclerosis Quality of Life Questionnaire (SScQoL) into six European cultures and validate it as a common measure of quality of life in systemic sclerosis (SSc). Methods this was a seven-country (Germany, France, Italy, Poland, Spain, Sweden and UK) cross-sectional study. A forward–backward translation process was used to adapt the English SScQoL into target languages. SScQoL was completed by patients with SSc, then data were validated against the rasch model. to correct local response dependency, items were grouped into the following subscales: function, emotion, sleep, social and pain and reanalysed for fit to the model, unidimensionality and cross-cultural equivalence. results the adaptation of the SScQoL was seamless in all countries except Germany. Cross-cultural validation included 1080 patients with a mean age 58.0 years (Sd 13.9) and 87% were women. Local dependency was evident in individual country data. Grouping items into testlets corrected the local dependency in most country specific data. Fit to the model, reliability and unidimensionality was achieved in six-country data after cross-cultural adjustment for Italy in the social subscale. the SScQoL was then calibrated into an interval level scale. Conclusion the individual SScQoL items have translated well into five languages and overall, the scale maintained its construct validity, working well as a five-subscale questionnaire. Measures of quality of life in SSc can be directly compared across five countries (France, Poland Spain, Sweden and UK). data from Italy are also comparable with the other five countries although require an adjustment.
Subject headings
- MEDICIN OCH HÄLSOVETENSKAP -- Klinisk medicin -- Reumatologi och inflammation (hsv//swe)
- MEDICAL AND HEALTH SCIENCES -- Clinical Medicine -- Rheumatology and Autoimmunity (hsv//eng)
Publication and Content Type
- art (subject category)
- ref (subject category)
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- By the author/editor
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Ndosi, Mwidimi
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Alcacer-Pitarch, ...
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Allanore, Yannic ...
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Del Galdo, Franc ...
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Frerix, Marc
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García-Díaz, Síl ...
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Hesselstrand, Ro ...
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Kendall, Christi ...
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Matucci-Cerinic, ...
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Mueller-Ladner, ...
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Sandqvist, Gunne ...
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Torrente-Segarra ...
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Schmeiser, Tim
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Sierakowska, Mat ...
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Sierakowska, Jus ...
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Sierakowski, Sta ...
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Redmond, Anthony
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- MEDICAL AND HEALTH SCIENCES
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MEDICAL AND HEAL ...
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and Clinical Medicin ...
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and Rheumatology and ...
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Annals of the Rh ...
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Lund University