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Palliative care ser...
Palliative care services in paediatric oncology centres across Europe : A cross-sectional survey
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- Pedraza, Eddy Carolina (author)
- University of Lucerne
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- Raguindin, Peter Francis (author)
- University of Lucerne
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- Hendriks, Manya Jerina (author)
- University of Lucerne
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- Vokinger, Anna Katharina (author)
- University of Lucerne
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- De Clercq, Eva (author)
- University of Lucerne
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- Rüesch, Katja (author)
- University of Lucerne
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- Hjorth, Lars (author)
- Lund University,Lunds universitet,Pediatrik, Lund,Sektion V,Institutionen för kliniska vetenskaper, Lund,Medicinska fakulteten,Sena effekter efter barncancerbehandling,Forskargrupper vid Lunds universitet,LUCC: Lunds universitets cancercentrum,Övriga starka forskningsmiljöer,Paediatrics (Lund),Section V,Department of Clinical Sciences, Lund,Faculty of Medicine,Late effects after childhood cancer treatment,Lund University Research Groups,LUCC: Lund University Cancer Centre,Other Strong Research Environments,Skåne University Hospital
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von Bueren, André Oscar (author)
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- Tinner, Eva Maria (author)
- Bern University Hospital
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- Bergstraesser, Eva (author)
- Children's University Hospital, Zurich
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- Wiener, Lori (author)
- National Cancer Institute, USA
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- Michel, Gisela (author)
- University of Lucerne
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(creator_code:org_t)
- 2023
- 2023
- English.
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In: EJC Paediatric Oncology. - 2772-610X. ; 2
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Abstract
Subject headings
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- Background: Palliative care (PC) is an integral part of cancer treatment. However, data on service availability is limited in childhood cancers. Aim: To describe the availability of PC services in paediatric oncology centres across Europe, and to identify barriers and facilitators for implementing and providing paediatric palliative care (PPC). Methods: Paediatric oncology centres across Europe were invited to complete an online questionnaire. Results: A total of 158 paediatric oncology centres from 27 European countries participated. More than half of the centres (n = 102, 64.6 %) reported offering specialised PPC (defined as 24/7 coverage services with a specialised physician and a multidisciplinary team). Most centres included a multidisciplinary care team (n = 123, 80.9 %) and PC at home (n = 105, 69.1 %). In 38.7 % centres, service capacity was reported to be lower than demand. In most centres, PC consultation was initiated for a refractory neoplasm (n = 126, 81.2 %). Few centres (n = 11, 7.1 %) offered PC consultation at the time of a new cancer diagnosis. Eighty-two centres (52.6 %) reported having bereavement services. Negative parental perception (n = 99, 64.7 %) and late referrals (n = 91, 59.5 %) were major barriers to implementation perceived by health care providers. Conclusion: Our results suggest that specialised PPC is available in more than half of paediatric oncology settings across Europe. Although half have had PPC available for > 10 years, many cannot fulfil the demand for service. Barriers to implementation (i.e., parental education, staff training) should be addressed, with resources and services further expanded to cover the demand for PPC, including bereavement care.
Subject headings
- MEDICIN OCH HÄLSOVETENSKAP -- Klinisk medicin -- Cancer och onkologi (hsv//swe)
- MEDICAL AND HEALTH SCIENCES -- Clinical Medicine -- Cancer and Oncology (hsv//eng)
Keyword
- Bereavement
- Childhood cancer
- Health services
- Integrative Oncology
- Paediatrics
- Palliative care
- Palliative supportive care
- Patient care
- Services
Publication and Content Type
- art (subject category)
- ref (subject category)
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Pedraza, Eddy Ca ...
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Raguindin, Peter ...
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Hendriks, Manya ...
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Vokinger, Anna K ...
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De Clercq, Eva
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Rüesch, Katja
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show more...
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Hjorth, Lars
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von Bueren, Andr ...
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Tinner, Eva Mari ...
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Bergstraesser, E ...
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Wiener, Lori
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Michel, Gisela
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- About the subject
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- MEDICAL AND HEALTH SCIENCES
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MEDICAL AND HEAL ...
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and Clinical Medicin ...
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and Cancer and Oncol ...
- Articles in the publication
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EJC Paediatric O ...
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Lund University