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International and I...
International and Interdisciplinary Identification of Health Care Transition Outcomes
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- Fair, Cynthia (author)
- Elon University
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- Cuttance, Jessica (author)
- University of North Carolina
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- Sharma, Niraj (author)
- Harvard Medical School
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- Maslow, Gary (author)
- Duke University
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- Wiener, Lori (author)
- National Cancer Institute, Lithuania
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- Betz, Cecily (author)
- University of Southern California
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- Porter, Jerlym (author)
- St Jude Children´s Research Hospital, Memphis
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- McLaughlin, Suzanne (author)
- Brown University
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- Gilleland-Marchak, Jordan (author)
- Emory University
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- Renwick, Amy (author)
- Nemours Alfred I. duPont Hospital for Children
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Naranjo, Diana (author)
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- Jan, Sophia (author)
- The Children's Hospital of Philadelphia
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- Javalkar, Karina (author)
- University of North Carolina
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- Ferris, Maria (author)
- University of North Carolina
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- Alriksson-Schmidt, Ann (creator_code:cre_t)
- Lund University,Lunds universitet,Ortopedi, Lund,Sektion III,Institutionen för kliniska vetenskaper, Lund,Medicinska fakulteten,CPUP - barnortopedisk forskningsgrupp,Forskargrupper vid Lunds universitet,Att leva med funktionsnedsättning: Forskning ur ett folkhälsoperspektiv,Orthopaedics (Lund),Section III,Department of Clinical Sciences, Lund,Faculty of Medicine,CPUP - Children's Orthopedics Group,Lund University Research Groups,Living with a Disability: Research from a Public Health Perspective
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(creator_code:org_t)
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- American Medical Association (AMA), 2016
- 2016
- English.
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In: JAMA Pediatrics. - : American Medical Association (AMA). - 2168-6211 .- 2168-6203. ; 170:3, s. 11-205
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http://dx.doi.org/10...
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Abstract
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- IMPORTANCE: There is a lack of agreement on what constitutes successful outcomes for the process of health care transition (HCT) among adolescent and young adults with special health care needs.OBJECTIVE: To present HCT outcomes identified by a Delphi process with an interdisciplinary group of participants.DESIGN, SETTING, AND PARTICIPANTS: A Delphi method involving 3 stages was deployed to refine a list of HCT outcomes. This 18-month study (from January 5, 2013, of stage 1 to July 3, 2014, of stage 3) included an initial literature search, expert interviews, and then 2 waves of a web-based survey. On this survey, 93 participants from outpatient, community-based, and primary care clinics rated the importance of the top HCT outcomes identified by the Delphi process. Analyses were performed from July 5, 2014, to December 5, 2014.EXPOSURES: Health care transition outcomes of adolescents and young adults with special health care needs.MAIN OUTCOMES AND MEASURES: Importance ratings of identified HCT outcomes rated on a Likert scale from 1 (not important) to 9 (very important).RESULTS: The 2 waves of surveys included 117 and 93 participants as the list of outcomes was refined. Transition outcomes were refined by the 3 waves of the Delphi process, with quality of life being the highest-rated outcome with broad agreement. The 10 final outcomes identified included individual outcomes (quality of life, understanding the characteristics of conditions and complications, knowledge of medication, self-management, adherence to medication, and understanding health insurance), health services outcomes (attending medical appointments, having a medical home, and avoidance of unnecessary hospitalization), and a social outcome (having a social network). Participants indicated that different outcomes were likely needed for individuals with cognitive disabilities.CONCLUSIONS AND RELEVANCE: Quality of life is an important construct relevant to HCT. Future research should identify valid measures associated with each outcome and further explore the role that quality of life plays in the HCT process. Achieving consensus is a critical step toward the development of reliable and objective comparisons of HCT outcomes across clinical conditions and care delivery locations.
Subject headings
- MEDICIN OCH HÄLSOVETENSKAP -- Hälsovetenskap -- Hälso- och sjukvårdsorganisation, hälsopolitik och hälsoekonomi (hsv//swe)
- MEDICAL AND HEALTH SCIENCES -- Health Sciences -- Health Care Service and Management, Health Policy and Services and Health Economy (hsv//eng)
Keyword
- Adolescent
- Canada
- Delphi Technique
- Europe
- Female
- Humans
- Interdisciplinary Communication
- International Cooperation
- Male
- Outcome Assessment, Health Care/methods
- Quality of Life
- Surveys and Questionnaires
- Transition to Adult Care/organization & administration
- United States
- Young Adult
Publication and Content Type
- art (subject category)
- ref (subject category)
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- By the author/editor
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Fair, Cynthia
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Cuttance, Jessic ...
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Sharma, Niraj
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Maslow, Gary
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Wiener, Lori
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Betz, Cecily
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show more...
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Porter, Jerlym
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McLaughlin, Suza ...
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Gilleland-Marcha ...
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Renwick, Amy
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Naranjo, Diana
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Jan, Sophia
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Javalkar, Karina
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Ferris, Maria
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Alriksson-Schmid ...
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show less...
- About the subject
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- MEDICAL AND HEALTH SCIENCES
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MEDICAL AND HEAL ...
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and Health Sciences
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and Health Care Serv ...
- Articles in the publication
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JAMA Pediatrics
- By the university
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Lund University