Exploring the meaning, role and experiences of a patient-led social innovation for people affected by cancer: a new collaborative care model complementing traditional cancer rehabilitation in Sweden

Smith, Frida,1973Chalmers tekniska högskola,Chalmers University of Technology (author)

Objective Kraftens Hus is the first support centre in Sweden designed by and for people affected by cancer, including patients, family, friends, staff members and local community representatives (collectively 'stakeholders'). The purpose of this study was to explore the meaning, role and experiences of Kraftens Hus stakeholders using a patient and public involved methodology. Methods To understand and map the experiences of visitors to Kraftens Hus, we applied concept mapping (CM), a mixed methods approach where data are collected and analysed in four structured steps designed to capture the diverse perspectives of multiple stakeholders. Qualitative interviews with relevant stakeholders supplemented the CM findings. Results The final concept map contained six clusters of ideas. Within the clusters, there was a recurring theme that cancer-affected people value accessible and long-term psychosocial support (PSS). The intended emotional, social and practical needs identified in a previous design process seem to have been addressed and appreciated by Kraftens Hus visitors. Conclusion Kraftens Hus is an example of a new patient-led social innovation based on a life-event perspective and integration of resources from different sectors in society. By focusing on life, not the disease, the care continuum expands, and long-term PSS is provided alongside cancer treatment. The evaluation confirms that PSS should focus on health and well-being in the broadest sense.

Hellström, Andreas,1972Chalmers tekniska högskola,Chalmers University of Technology(Swepub:cth)andhel (author)
Gunnarsdottir, Katrin AstaVästra Götalandsregionen,Region Västra Götaland,Regional Cancer Centre West, Western Sweden Healthcare Region (author)
Genell, AnnaVästra Götalandsregionen,Region Västra Götaland,Regional Cancer Centre West, Western Sweden Healthcare Region (author)
Eriksson, Erik,1977Chalmers tekniska högskola,Chalmers University of Technology(Swepub:hb)erer (author)
Mannefred, CarinaVästra Götalandsregionen,Region Västra Götaland,Regional Cancer Centre West, Western Sweden Healthcare Region (author)
Björk-Eriksson, Thomas,1960Gothenburg University,Göteborgs universitet,Institutionen för kliniska vetenskaper, Avdelningen för onkologi,Institute of Clinical Sciences, Department of Oncology,Department of Oncology, Sahlgrenska Academy, Gothenburg(Swepub:gu)xbjoth (author)
Vaughn, LisaUniversity of Cincinnati,University of Cincinnati, USA (author)
Chalmers tekniska högskolaChalmers University of Technology (creator_code:org_t)

By the author/editor: Smith, Frida, 19 ...; Hellström, Andre ...; Gunnarsdottir, K ...; Genell, Anna; Eriksson, Erik, ...; Mannefred, Carin ...; show more...; Björk-Eriksson, ...; Vaughn, Lisa; show less...

About the subject

MEDICAL AND HEALTH SCIENCES: MEDICAL AND HEAL ...; and Health Sciences; and Health Care Serv ...

MEDICAL AND HEALTH SCIENCES: MEDICAL AND HEAL ...; and Health Sciences; and Nursing

MEDICAL AND HEALTH SCIENCES: MEDICAL AND HEAL ...; and Clinical Medicin ...; and Cancer and Oncol ...

MEDICAL AND HEALTH SCIENCES: MEDICAL AND HEAL ...; and Health Sciences; and Public Health Gl ...

By the university: Chalmers University of Technology; University of Gothenburg; University of Borås

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