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YouTube as a source...
YouTube as a source of information on clinical trials for paediatric cancer
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- Godskesen, Tove (författare)
- Ersta Sköndal Bräcke högskola,Palliativt forskningscentrum, PFC,Uppsala universitet,Centrum för forsknings- och bioetik,Ersta Sköndal University College, Stocholm, Sweden
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- Frygner Holm, Sara (författare)
- Uppsala universitet,Institutionen för neurovetenskap,Centrum för forsknings- och bioetik
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- Höglund, Anna T, 1960- (författare)
- Uppsala universitet,Centrum för forsknings- och bioetik
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visa fler...
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- Eriksson, Stefan, Docent, 1963- (författare)
- Uppsala universitet,Centrum för forsknings- och bioetik
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(creator_code:org_t)
- Taylor & Francis, 2023
- 2023
- Engelska.
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Ingår i: Information, Communication and Society. - : Taylor & Francis. - 1369-118X .- 1468-4462. ; 26:4, s. 716-729
- Relaterad länk:
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https://doi.org/10.1...
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https://uu.diva-port... (primary) (Raw object)
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https://urn.kb.se/re...
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https://doi.org/10.1...
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https://urn.kb.se/re...
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Abstract
Ämnesord
Stäng
- Little is known about the information parents of children with cancer find when searching for clinical trials information on YouTube. Thus, this study aimed to analyse the content, quality and reliability of YouTube videos focused on clinical trials for paediatric cancer. A descriptive cross-sectional design was used, and YouTube was searched using the phrases ‘clinical trials for children with cancer’ and ‘paediatric cancer clinical trials’. Videos that met inclusion criteria were assessed using the instruments Global Quality Scale and DISCERN. About half of the examined videos were in the GQS excellent-quality group and exhibited a total of 84,804 views. The mean time for videos was 5.7 minutes, they originated from the US or UK, were uploaded after 2016, and had a cancer centre/foundation or children hospital as video source. Half of them were focusing on early experimental trials and had a positive tone. Twenty percent were classified as useful without serious shortcomings, almost 50% as misleading with serious shortcomings, and 30% as inappropriate sources of information. In conclusion, most YouTube videos on paediatric cancer trials are not very informative and fall short of what could ethically be required regarding their facilitation of informed decision-making.
Ämnesord
- HUMANIORA -- Filosofi, etik och religion -- Etik (hsv//swe)
- HUMANITIES -- Philosophy, Ethics and Religion -- Ethics (hsv//eng)
- MEDICIN OCH HÄLSOVETENSKAP -- Hälsovetenskap -- Medicinsk etik (hsv//swe)
- MEDICAL AND HEALTH SCIENCES -- Health Sciences -- Medical Ethics (hsv//eng)
Nyckelord
- YouTube
- Social media
- Clinical trials
- Paediatric cancer
- E-learning
Publikations- och innehållstyp
- ref (ämneskategori)
- art (ämneskategori)
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