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Hypothetical and fa...
Hypothetical and factual willingness to participate in biobank research
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- Johnsson, Linus, 1978- (författare)
- Uppsala universitet,Centrum för forsknings- och bioetik
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- Helgesson, Gert (författare)
- Karolinska Institutet
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- Rafnar, Thorunn (författare)
- UVS, Snorrabraut 60, Reykjavik, Iceland
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- Halldorsdottir, Ingibjörg (författare)
- UVS, Snorrabraut 60, Reykjavik, Iceland
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- Chia, Kee-Seng (författare)
- Yong Loo Lin School of Medicine, National University of Singapore, Singapore,Centre for Molecular Epidemiology
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- Eriksson, Stefan (författare)
- Uppsala universitet,Centrum för forsknings- och bioetik
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- Hansson, Mats G. (författare)
- Uppsala universitet,Centrum för forsknings- och bioetik
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(creator_code:org_t)
- 2010-07-21
- 2010
- Engelska.
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Ingår i: European Journal of Human Genetics. - : Nature Publishing Group. - 1018-4813 .- 1476-5438. ; 18, s. 1261-1264
- Relaterad länk:
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http://www.nature.co...
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https://uu.diva-port... (primary) (Raw object)
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https://www.nature.c...
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https://urn.kb.se/re...
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https://doi.org/10.1...
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http://kipublication...
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Abstract
Ämnesord
Stäng
- In the debate on biobank regulation, arguments often draw upon findings in surveys on public attitudes. However, surveys on willingness to participate in research may not always predict actual participation rates. We compared hypothetical willingness as estimated in 11 surveys conducted in Sweden, Iceland, United Kingdom, Ireland, United States and Singapore to factual participation rates in 12 biobank studies. Studies were matched by country and approximate time frame. Of 22 pairwise comparisons, 12 suggest that factual willingness to participate in biobank research is greater than hypothetical, six indicate the converse relationship, and four are inconclusive. Factual donors, in particular when recruited in health care or otherwise face-to-face with the researcher, are possibly motivated by factors that are less influential in a hypothetical context, such as altruism, trust, and sense of duty. The value of surveys in assessing factual willingness may thus be limited.
Nyckelord
- biobanks
- tissue banks
- genetic databases
- public attitudes
- trust
- public surveys
- MEDICINE
- MEDICIN
- Bioethics
- Bioetik
Publikations- och innehållstyp
- ref (ämneskategori)
- art (ämneskategori)
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